The Myeloma Beacon

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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Dear hubby's stem cell transplant saga

by dogmom on Tue May 31, 2016 10:57 am

Tomorrow is the day ... :| My hubby went into work today for a few hours to tie up a few loose ends. I am here at home getting last minute things together to be gone for a month. I keep thinking of little stuff to take care of. Tonight I plan on letting it all go, maybe having a glass of wine. I so need this to go well for him. Good thoughts please everyone.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by Wife on Tue May 31, 2016 5:05 pm

We will be watching your steps along the way, and keeping you both in thoughts and prayers. I had stopped reading the Beacon for a few weeks, trying to ignore multiple myeloma, but it just can't be done. My husband goes to Hopkins June 13th to determine if he is ready for transplant, so it's good to have someone so close to his date. Good luck and prayers are sent.

Wife
Name: Mary
Who do you know with myeloma?: Husband
When were you/they diagnosed?: Oct4 2015
Age at diagnosis: 68

Re: Dear hubby's stem cell transplant saga

by dogmom on Fri Jun 03, 2016 8:44 am

Well, today is transplant day. He has done very well with the high-dose chemo so far. No nausea or other tummy issues and still eating good. If all goes well, we will be discharged tomorrow to our hotel for the next three weeks.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by lems on Fri Jun 03, 2016 10:27 am

This is my first post. I thank you so much for taking the time to post your experience. I do not know where my journey will go at this time. I am returning to the center in a few days. I am hoping I will get another 3 months before I have to start any kind of treatment. Thanks so much, and good luck on your journey to recovery.

lems

Re: Dear hubby's stem cell transplant saga

by dogmom on Fri Jun 03, 2016 1:50 pm

Stem cells in and the whole room smells like creamed corn. LoL he is sleeping off the pre-meds (Benadryl and Ativan). Our son is coming up this afternoon to help me get the motel room ready for his discharge tomorrow. Hope all continues to go routine. Good thoughts.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by Robert on Fri Jun 03, 2016 2:15 pm

Hello. I've been following along somewhat as time allows and just wanted to wish you both well.

It's great that your husband will be allowed to recover at the hotel and not be confined to the hospital. I think that's a big advantage that you'll both appreciate even though it means more work for the caregivers. I found the confinement to be the hardest part and felt that my family was much better at caring for me than the nurses, who are busy and often forgetful. The hospital will be there if you need it.

Anyway, just know that many are thinking of you both and praying for a quick and uneventful recovery and also the best possible outcome with many, many years of remission. He will do great and so will you!

Robert

Re: Dear hubby's stem cell transplant saga

by dogmom on Sat Jun 04, 2016 9:34 pm

Well we are settled in the motel. He has started feeling the effects of the chemo. He is finding it hard to find something that sounds good to eat and his energy is crappy, but at least he is not throwing up. He is trying small meals and that is working pretty good. Hopefully he will start the up swing in a few days.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by reece93 on Sun Jun 05, 2016 9:28 am

Good morning, Cathy.

I checked several times yesterday for updates from you to see how things were going. I'm glad to read that so far, so good. I know it was a relief to be allowed to leave the hospital even for a few hours. You guys are in my thoughts and prayers that all continues to go well.

Debra

reece93
Name: reece93
Who do you know with myeloma?: Husband
When were you/they diagnosed?: October 2014
Age at diagnosis: 57

Re: Dear hubby's stem cell transplant saga

by Ellen Harris on Sun Jun 05, 2016 10:26 am

Dogmom,

Don't wait until he feels really nauseous to take something. It's important to get ahead of the nausea before it starts. Water may not taste good to him ... very common. For me, Ativan (lorazepam) worked better for nausea than any of the nausea meds they usually prescribe, but by all means try them to see what works. Little bits of food, sips of anything he finds appealing, but there may be a few days where he doesn't eat much. I'm sure he has an IV for fluids. If he can handle ensure or boost, that can be an option.

How are his blood counts? Have they bottomed out? When they do, that is probably the worst he will feel. Hang in there. This too shall pass! I have a feeling that he will breeze through, based upon his response to induction. Sounds like a strong guy!

Ellen

Ellen Harris

Re: Dear hubby's stem cell transplant saga

by dogmom on Sun Jun 05, 2016 12:39 pm

Thanks for all the kind wishes and tips.

He does not have an IV as we are already discharged to the motel. His counts were still holding good upon discharge yesterday. We go to clinic tomorrow to have them checked again.

The Zofran (ondansetron) does work for him so far, with Compazine (prochlorperazine) along if needed. He eats small meals and nibbles on crackers and Sprite. He does not like Boost, Ensure etc. ;)

He is up now working on his computer doing his office paperwork, so I think he feels some better this morning, just weak. I told him it will get better in a few days. I hope so.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

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