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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by KimT on Wed Sep 03, 2014 7:48 pm

Hello from my new location!

It is now Day 15. My counts were about the same as yesterday and I have had no more fevers, so I was allowed to go. I was discharged about 1:30 this afternoon and I'm now in a very nice 2 bedroom, 2 bath apartment, 6 miles [10 km] from Stanford.

I will have several appointments over the next couple of weeks while I am monitored in the ITA (Infusion Treatment Area)

I am on IV antibiotics which I will give to myself daily though the PICC line, and lots of other stuff too.

I loved the fresh air when I got outside for the first time, even though I had my mask on.

Have a great day everyone!

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KimT
Name: Kim Tank
Who do you know with myeloma?: Me
When were you/they diagnosed?: July 2013
Age at diagnosis: 53

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by Ellen Harris on Wed Sep 03, 2014 9:13 pm

You are sprung! Enjoy the apartment and the relative freedom. It must haver felt good to feel the fresh air. How's your appetite?

Ellen Harris

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by NZMum on Wed Sep 03, 2014 10:01 pm

Well done Kim. You rock!

Enjoy the sunshine and smell the flowers!

Jen

NZMum
Name: NZMum
Who do you know with myeloma?: myself
When were you/they diagnosed?: March2014
Age at diagnosis: 49

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by KimT on Wed Sep 03, 2014 10:28 pm

My appetite has still not recovered. However, tonight I did feel hungry and ate some chicken, a small piece of bread, and part of a banana. That is the most I've been able to eat in a while. I hope I'm on the upswing! Thanks!

KimT
Name: Kim Tank
Who do you know with myeloma?: Me
When were you/they diagnosed?: July 2013
Age at diagnosis: 53

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by Toni on Wed Sep 03, 2014 10:56 pm

Go Kim! Love that picture of you. You're attitude is infectious :-)

Toni
Name: Toni
Who do you know with myeloma?: self - MGUS
When were you/they diagnosed?: April 2014
Age at diagnosis: 51

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by KimT on Thu Sep 04, 2014 10:31 pm

Hi!

It's Day 16.

My white count is now at 4.7. I visited the ITA today and checked out fine. My platelets are still low, but not dangerously so. There is talk of sending me home before the 30-day point. I may be let go a week early.

I probably don't need to post daily now, but I'll check again soon!

Thanks for all your support!

KimT
Name: Kim Tank
Who do you know with myeloma?: Me
When were you/they diagnosed?: July 2013
Age at diagnosis: 53

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by MattSchtick on Fri Sep 05, 2014 12:42 am

You've done brilliantly well Kim, and I found it just keeps getting better from this stage onward. Gradually they give you less and less drugs, your line comes out, there's less injections, your appetite comes back, your 'joie de vivre' and energy levels come back, and eventually your hair starts growing back hopefully.

Thanks for sharing Kim and keep up the good work. Andy

MattSchtick
Name: Andy
Who do you know with myeloma?: me
When were you/they diagnosed?: Feb27 2014
Age at diagnosis: 61

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by darnold on Sat Sep 06, 2014 6:26 pm

Congratulations, Kim, on doing so well!!

A couple of notes: You'll probably find for a while that foods you used to like taste weird or you have cravings for weird foods. For me, it was canned peaches. And chocolate, which I adore, tasted weird for a long time. I knew I was really on the road to recovery when good, dark chocolate finally tasted like good, dark chocolate again.

I noted in a previous post that my hair was longer than yours when I lost it. It grew back the same color -- brunette where I had been brunette, and gray where I had been gray. But, it was very curly and much thicker both in texture and quantity, especially on top. Now, four years later, it has returned to its previous state and is getting longer every day ...

You might also find that you are more susceptible to getting sick and stay sicker longer than you did pre-myeloma. This past year was the first year that I didn't have multiple respiratory infections. Several of my staff have young children (under 5 years), and they know to warn me if their kids are sick. Even if they themselves are not sick, they sometimes carry the germs into the office.

Dana A

darnold
Name: Dana Arnold
Who do you know with myeloma?: self
When were you/they diagnosed?: May 2009
Age at diagnosis: 52

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by KimT on Sun Sep 07, 2014 5:53 pm

Thanks for your comments, Andy and Dana.

Last night I developed a fever. It persisted, so they sent me to the ED to be checked. One reason I'm glad I'm not yet home, which is an hour drive!

In addition, I had developed a very annoying pain in my right calf, starting the day I was released. I had an appointment in the ITA yesterday and brought it up, but the Physician Assistant was not too worried because there was no redness, no fever at that moment, and minimal swelling. When I went to Emergency, they decided to do an ultrasound to check for blood clots, and found I have a small one in my right leg.

The doc said they are a bit more common in amyloidosis patients, as the balance between the clotting and not clotting cells (that's the way he explained it) can be thrown off due the deposits in the kidney. It should dissolve on its own and is less dangerous than one above the knee. But I need to be watched to make sure it is not getting bigger. If it does,they will use blood thinners to stop the spread of it.

So, I'm back in the hospital for a couple of days to be monitored and make sure the fever does not come back. It was quite a surprise, but I had been told it's very common to have to come back.
I'm feeling pretty good today. I'm on some decent pain meds, so I am back to a little sunnier outlook on life! I will overcome! :)

KimT
Name: Kim Tank
Who do you know with myeloma?: Me
When were you/they diagnosed?: July 2013
Age at diagnosis: 53

Re: KimT's Stem Cell Transplant (Stanford, Inpatient)

by Nancy Shamanna on Sun Sep 07, 2014 6:04 pm

Hope you are doing better soon, Kim! I have been reading your posts and admiring your fortitude through the ASCT.

If it's any consolation, the same thing happened to me, although I was being treated as an outpatient. I did develop a fever, and if it goes up over a certain level, it's an automatic admission into hospital.

It turned out just to be a reaction to the Neupogen shots being used to boost my blood counts, thankfully. It was a rough couple of days though ... I was really sick!

Best wishes for a speedy recovery.

Nancy Shamanna
Name: Nancy Shamanna
Who do you know with myeloma?: Self and others too
When were you/they diagnosed?: July 2009

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