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Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
I still think you are amazing! I am sure the antibiotics will work quickly to control the infection. Hang in there!
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Hi Kim, sorry to hear you got hit with an infection. As others have said, it's not uncommon at this stage of an SCT. Hang in there and get better soon!
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mikeb - Name: mikeb
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 2009 (MGUS at that time)
- Age at diagnosis: 55
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Hi Kim,
I can relate to what you said about the truck! Did you get it's license number, because I think it could be same truck that hit me first?!
I'm on Day +15, Any symptoms of my C. diff infection have disappeared, I'm still completing the vancomycin regimen. My WBC count started rising yesterday, it's at 1.61 today.
I was shocked you were as active as you were up to Day 10. I don't think I was able to do much after Day 5 or so. Impressive!
I hope you recover from the infection quickly and you're able to get active soon!
Wishing you the best!
Larry
I can relate to what you said about the truck! Did you get it's license number, because I think it could be same truck that hit me first?!
I'm on Day +15, Any symptoms of my C. diff infection have disappeared, I'm still completing the vancomycin regimen. My WBC count started rising yesterday, it's at 1.61 today.
I was shocked you were as active as you were up to Day 10. I don't think I was able to do much after Day 5 or so. Impressive!
I hope you recover from the infection quickly and you're able to get active soon!
Wishing you the best!
Larry
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Larmo222 - Name: Larry M
- Who do you know with myeloma?: me
- When were you/they diagnosed?: February, 2014
- Age at diagnosis: 58
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)ui
Well, today is actually Day 10. I guess the fever affected me more than I thought.
Thank you all for your kind words. I know this is pretty common at this stage of the game. I am doing better today. My temp has still been up a couple of times this morning, but I'm not getting the chills like I was, so I feel a lot better. I'm still feeling weak, but I think I'm going to bounce back from this pretty quickly.
There are lots of hairs on my pillow. If I run my fingers through my hair, I get about 10 hairs on my hand. I must be losing my eyelashes too because I keep having hair in my eyes. I will have them shave my head as soon as I can see a real bald patch. I'm just not ready yet. But I have a bunch of cool hats to wear, so I plan to make the best of it.
Have a great day everyone!
Thank you all for your kind words. I know this is pretty common at this stage of the game. I am doing better today. My temp has still been up a couple of times this morning, but I'm not getting the chills like I was, so I feel a lot better. I'm still feeling weak, but I think I'm going to bounce back from this pretty quickly.
There are lots of hairs on my pillow. If I run my fingers through my hair, I get about 10 hairs on my hand. I must be losing my eyelashes too because I keep having hair in my eyes. I will have them shave my head as soon as I can see a real bald patch. I'm just not ready yet. But I have a bunch of cool hats to wear, so I plan to make the best of it.
Have a great day everyone!
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KimT - Name: Kim Tank
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: July 2013
- Age at diagnosis: 53
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Keep on truckin!
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Hi Kim,
So glad to hear you're starting to feel better and sorry about the hair. I know you said that would be hard to deal with.
You have been really lucky, though. Mine started falling out in handfuls a week after high dose chemo prior to collection. Just managed the school ball photos with my 16 year old daughter and clipped it the next day. The spikey bits are annoying, but I found rubbing your head in the shower with a bit of shampoo takes it off really quickly. I think the warm water helps.
Don't be surprised to get the occasional fright when you go past a mirror!
Take care you're nearly there!
Jen
So glad to hear you're starting to feel better and sorry about the hair. I know you said that would be hard to deal with.
You have been really lucky, though. Mine started falling out in handfuls a week after high dose chemo prior to collection. Just managed the school ball photos with my 16 year old daughter and clipped it the next day. The spikey bits are annoying, but I found rubbing your head in the shower with a bit of shampoo takes it off really quickly. I think the warm water helps.
Don't be surprised to get the occasional fright when you go past a mirror!
Take care you're nearly there!
Jen
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NZMum - Name: NZMum
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: March2014
- Age at diagnosis: 49
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Kim - you're still doing great! Follow the protocol and get lots of rest. Stay connected when you can. You know we're all rooting for you!
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Toni - Name: Toni
- Who do you know with myeloma?: self - MGUS
- When were you/they diagnosed?: April 2014
- Age at diagnosis: 51
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Keep on getting well! Push those fluids! And continue to inspire others!
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Well done Kim, hang in there. Apart from the hair loss, it should be all good news starting soon as the stem cells start doing their thing.
When I shaved my head I was surprised to find how sensitive my scalp was to temperature changes and wind gusts. Its like enabling a new sensor on top of your head which was previously masked by nice warm hair.
Hope the chickens recognize you when you get home. Keep posting. Andy
When I shaved my head I was surprised to find how sensitive my scalp was to temperature changes and wind gusts. Its like enabling a new sensor on top of your head which was previously masked by nice warm hair.
Hope the chickens recognize you when you get home. Keep posting. Andy
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MattSchtick - Name: Andy
- Who do you know with myeloma?: me
- When were you/they diagnosed?: Feb27 2014
- Age at diagnosis: 61
Re: KimT's Stem Cell Transplant (Stanford, Inpatient)
Kim,
Reading about your experience reminded me a lot of mine, which went pretty well as far as SCTs go. I had a lot of trouble eating too, even before my SCT. My not eating was what was holding me up from being discharged. My appetite eventually came back though. I did not get any kind of a significant fever though, and we are all hoping you get through yours.
SCT are not easy, but it seems you are doing remarkably well overall. It is thankful to hear about a SCT that is going well as there have been some others recently on the Beacon who had difficulty with theirs.
Andy makes a good point about feeling the temperature changes with no hair. That was a surprise for me too. I know what they mean now when they say we lose a lot of body heat from our heads. I would expect that your hair will be back long before winter comes though. Keep hanging in there - the worst part will be behind you soon.
Reading about your experience reminded me a lot of mine, which went pretty well as far as SCTs go. I had a lot of trouble eating too, even before my SCT. My not eating was what was holding me up from being discharged. My appetite eventually came back though. I did not get any kind of a significant fever though, and we are all hoping you get through yours.
SCT are not easy, but it seems you are doing remarkably well overall. It is thankful to hear about a SCT that is going well as there have been some others recently on the Beacon who had difficulty with theirs.
Andy makes a good point about feeling the temperature changes with no hair. That was a surprise for me too. I know what they mean now when they say we lose a lot of body heat from our heads. I would expect that your hair will be back long before winter comes though. Keep hanging in there - the worst part will be behind you soon.
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Eric Hofacket - Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
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