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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Dear hubby's stem cell transplant saga

by Mark Pouley on Fri Jul 22, 2016 10:25 pm

Great news!

Mark Pouley
Name: Mark
Who do you know with myeloma?: Self
When were you/they diagnosed?: April 2015
Age at diagnosis: 53

Re: Dear hubby's stem cell transplant saga

by dogmom on Wed Jul 27, 2016 9:10 am

Day +50

Well, his first week back to work is going really well. He has worked pretty much all day. He is a little tired, but he says it is a good tired. LoL I just hope the transplant puts him in a good enough remission. Can't help but worry a little.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by NStewart on Wed Jul 27, 2016 2:00 pm

I don't think that you can see me doing the "happy dance" for your husband. But, I am. Fantastic that he is able to return to work and is doing ok so far. Make sure that he knows to rest when he needs to. He might be quite tired by the end of the week.

What an improvement from how he was doing back in December and January. Good job both of you!

Nancy in Phila

NStewart
Name: Nancy Stewart
Who do you know with myeloma?: self
When were you/they diagnosed?: 3/08
Age at diagnosis: 60

Re: Dear hubby's stem cell transplant saga

by mikeb on Thu Jul 28, 2016 10:06 pm

Hi,

I second what Nancy said!

But I'd like to add one thing. I think it might be easy for your husband to overdo things at this point in the recovery. Just from my experience, your husband working a full day right now seems like a lot to me. Everybody is different in how they recover, but please make sure he follows his doctor's orders about how much to work (or not). His top priority has to be continuing to recover from the stem cell transplant.

As a comparison (not that I'm the perfect test case), I had a "desk job" that I could do from home. I started working 1/2 time around Day +45 and gradually ramped up to full time by around Day +120. And then a couple weeks later I finally went back into the office.

Having said all that, it's wonderful news that your husband is working again, period.

Best wishes for continued progress!
Mike

mikeb
Name: mikeb
Who do you know with myeloma?: self
When were you/they diagnosed?: 2009 (MGUS at that time)
Age at diagnosis: 55

Re: Dear hubby's stem cell transplant saga

by dogmom on Sat Jul 30, 2016 5:27 am

Yes, Mike, I agree. I am always saying to not overdo it. He calls me the water nazi. lol. I am afraid he is slacking off on his fluid intake. Even though his kidney functions are normal now, I just don't want him to forget how close he was to dialysis at diagnosis, and try to explain he really needs to keep those kidneys flushed. The doctor is always telling him the same thing. I just think he forgets to hydrate as much.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by dogmom on Thu Aug 04, 2016 8:57 am

Well, football season in the schools and junior pro are starting this month. My husband is going to take photos at a junior high game tonight for the first time in almost a year. He is so excited to feel like doing his hobby / side business again. I do hope his stem cell transplant gives him a good lengthy remission. Keep good thoughts for him please.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by Mark Pouley on Thu Aug 04, 2016 10:23 am

Such a happy report. It must feel great for him to be out doing something he loves. I know for the short time of the game that is all he will be thinking about and it will be glorious.

Mark Pouley
Name: Mark
Who do you know with myeloma?: Self
When were you/they diagnosed?: April 2015
Age at diagnosis: 53

Re: Dear hubby's stem cell transplant saga

by mikeb on Sat Aug 06, 2016 12:39 pm

Great to hear that your husband is back shooting photos at football games. That's ex­cel­lent – he's sure come a long way since the transplant.

Mike

mikeb
Name: mikeb
Who do you know with myeloma?: self
When were you/they diagnosed?: 2009 (MGUS at that time)
Age at diagnosis: 55

Re: Dear hubby's stem cell transplant saga

by dogmom on Tue Aug 16, 2016 7:19 am

We have another doctor's appointment tomorrow. It has been a month since his last one and a little over two months since transplant. I won't lie, I am nervous about it. I have no reason to believe his labs will not be good. He feels good and is doing a full work schedule and throwing in some photo shooting as well and he says it feels good!

Keep good thoughts.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Dear hubby's stem cell transplant saga

by Mark Pouley on Tue Aug 16, 2016 12:54 pm

Only good thoughts for you. I sure understand the nervousness.

Mark Pouley
Name: Mark
Who do you know with myeloma?: Self
When were you/they diagnosed?: April 2015
Age at diagnosis: 53

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