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Re: Dear hubby's stem cell transplant saga
Great news!
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TCG - Name: Tara
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: June 2016
- Age at diagnosis: 43
Re: Dear hubby's stem cell transplant saga
Day +26
Got his central line (CVC) pulled today. They checked his platelets before pulling just to make sure and they told him they were over 200,000. He does not have to go back until a week from Thursday for blood checks again. A whole week off!
Got his central line (CVC) pulled today. They checked his platelets before pulling just to make sure and they told him they were over 200,000. He does not have to go back until a week from Thursday for blood checks again. A whole week off!
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dogmom - Who do you know with myeloma?: husband
- When were you/they diagnosed?: December 2015
- Age at diagnosis: 58
Re: Dear hubby's stem cell transplant saga
Day + 29
My husband is still having trouble with nausea. Seems to do better if he doesn't let his tummy get too empty. He is wanting to get off the nausea meds, but he still needs at least one dose a day.
My husband is still having trouble with nausea. Seems to do better if he doesn't let his tummy get too empty. He is wanting to get off the nausea meds, but he still needs at least one dose a day.
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dogmom - Who do you know with myeloma?: husband
- When were you/they diagnosed?: December 2015
- Age at diagnosis: 58
Re: Dear hubby's stem cell transplant saga
Dogmom,
Sounds like things are going well! Janet struggled with tummy problems up through Day +60, but we did get her off the Zofran (ondansetron) by Day + 40. At about Day +60, our nurse practitioner suggested a probiotic which seemed to put everything back on track. I would consult with the doctor / nurse first though.
Janet is at Day + 110 now and doing well! The honey-do projects just keep rolling in! She's wondering why I've been laggin for the last year!
Best regards!
Sounds like things are going well! Janet struggled with tummy problems up through Day +60, but we did get her off the Zofran (ondansetron) by Day + 40. At about Day +60, our nurse practitioner suggested a probiotic which seemed to put everything back on track. I would consult with the doctor / nurse first though.
Janet is at Day + 110 now and doing well! The honey-do projects just keep rolling in! She's wondering why I've been laggin for the last year!
Best regards!
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JohnBoy5456 - Name: John
- Who do you know with myeloma?: Janet
- When were you/they diagnosed?: 6/15/15
- Age at diagnosis: 64
Re: Dear hubby's stem cell transplant saga
Day +35
Went back for nurse visit and blood work yesterday. WBC is 4.9, platelets 198,000, hemoglobin is 11.5. He is feeling good and is eating well. He just needs to get his stamina going again. He is getting bored since he can do no yard work, farm work, etc. We don't go back until the 20th to see the doctor. All in all he is doing well.
Went back for nurse visit and blood work yesterday. WBC is 4.9, platelets 198,000, hemoglobin is 11.5. He is feeling good and is eating well. He just needs to get his stamina going again. He is getting bored since he can do no yard work, farm work, etc. We don't go back until the 20th to see the doctor. All in all he is doing well.
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dogmom - Who do you know with myeloma?: husband
- When were you/they diagnosed?: December 2015
- Age at diagnosis: 58
Re: Dear hubby's stem cell transplant saga
Day +39
Just wanted to update you guys a little. He is feeling pretty good. No more nausea and he is eating well. He is bored!
He sees all the things outside at the house and on the farm he had planned on doing this summer and can do none of it.
We go back for blood work and doctor's visit Thursday. He is going to ask if he can go back to work even if it is just half days and office work only (nothing out in the work yard). He is a project manager at a barge building company. Most of his day is spent in the office, but he sometimes would go out in the yard to consult on building issues, etc,. but he has an assistant who can do that if needed and report back to him.
Just wanted to update you guys a little. He is feeling pretty good. No more nausea and he is eating well. He is bored!
He sees all the things outside at the house and on the farm he had planned on doing this summer and can do none of it. We go back for blood work and doctor's visit Thursday. He is going to ask if he can go back to work even if it is just half days and office work only (nothing out in the work yard). He is a project manager at a barge building company. Most of his day is spent in the office, but he sometimes would go out in the yard to consult on building issues, etc,. but he has an assistant who can do that if needed and report back to him.
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dogmom - Who do you know with myeloma?: husband
- When were you/they diagnosed?: December 2015
- Age at diagnosis: 58
Re: Dear hubby's stem cell transplant saga
Hi Cathy!
Glad to hear that your hubby is doing so well that he is now bored! I know, I can relate. I am now 4 months post transplant (I don't know, what is that? 120 days?) Tell him life will be back to normal soon. The boredom - I found: walking outside with my mask on - a lot! Getting on my bike with my mask on. Or driving to new areas with my hubby to walk (to change it up a bit).
We also found a good, long great TV series to watch, Downton Abbey, which helped a lot to pass some time. I also watched "Making of a Murderer." Just anything interesting to pass the time. We took up jigsaw puzzles too. Now, I am out swimming (head above the water), babysitting our grandkids, going to the gym, pretty much doing everything that I want. Except I haven't been able to fully enjoy doing things with my horse at the barn – hay mold, manure, dirt are still to be avoided... And I haven't allowed myself to swim underwater.
One day at a time is a great thing to remember each day. Getting through all of this truly just takes time and putting one foot in front of the other.
Glad to hear that your hubby is doing so well that he is now bored! I know, I can relate. I am now 4 months post transplant (I don't know, what is that? 120 days?) Tell him life will be back to normal soon. The boredom - I found: walking outside with my mask on - a lot! Getting on my bike with my mask on. Or driving to new areas with my hubby to walk (to change it up a bit).
We also found a good, long great TV series to watch, Downton Abbey, which helped a lot to pass some time. I also watched "Making of a Murderer." Just anything interesting to pass the time. We took up jigsaw puzzles too. Now, I am out swimming (head above the water), babysitting our grandkids, going to the gym, pretty much doing everything that I want. Except I haven't been able to fully enjoy doing things with my horse at the barn – hay mold, manure, dirt are still to be avoided... And I haven't allowed myself to swim underwater.
One day at a time is a great thing to remember each day. Getting through all of this truly just takes time and putting one foot in front of the other.
Re: Dear hubby's stem cell transplant saga
This is a pretty inspiring story. My chemo day is Wednesday and cell infusion Friday. I look forward to days of boredom like your dear hubby. Thank you, and him, for sharing and making the journey easier for those of us following.
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Mark Pouley - Name: Mark
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: April 2015
- Age at diagnosis: 53
Re: Dear hubby's stem cell transplant saga
Debbie, so glad you are doing well. Mark, I hope your transplant goes well for you.
We go Wednesday for a doctor visit and we are anxious to see his labs.
We go Wednesday for a doctor visit and we are anxious to see his labs.
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dogmom - Who do you know with myeloma?: husband
- When were you/they diagnosed?: December 2015
- Age at diagnosis: 58
Re: Dear hubby's stem cell transplant saga
Had a great doctor's visit today! The doctor is so pleased with how my husband is doing. He released him to go back to work Monday with hours as tolerated. He is to do office work only – nothing out in the shipyard. We went by there on our way home and they are so glad to get him back any hours he can. He was glad as well. He has been there 40 years and it is a great place to work. They have been so good to us through all this. We are lucky in that aspect.
My husband does not have to go to the doctor for four more weeks! He was also released to do yard work (nothing on the farm yet) as long as he wears an N95 mask and takes it easy. We asked about maintenance therapy and our doc said that is how he is leaning but will decide for sure when he evaluates him fully on Day +90.
My husband does not have to go to the doctor for four more weeks! He was also released to do yard work (nothing on the farm yet) as long as he wears an N95 mask and takes it easy. We asked about maintenance therapy and our doc said that is how he is leaning but will decide for sure when he evaluates him fully on Day +90.
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dogmom - Who do you know with myeloma?: husband
- When were you/they diagnosed?: December 2015
- Age at diagnosis: 58
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