As with our myeloma, each of us has had such different experiences with the transplant. Mine also wasn't bad except for nausea that lasted for 2-3 months. The worst of it was while I was in the hospital and none of the drugs they gave me helped. I could tolerate water, tea, plain yogurt and chicken broth fairly well. Once home and off the neutropenic diet, I was able to add melon without difficulty. That was it for about 6 weeks. There are still some things 4 years later that I still can't tolerate or even tolerate the thought of eating.
Other than the nausea, the time in the hospital was a wonderful "down" time with no responsibilities and no need to plan what I was going to do for the day. I did do a lot of reading and watched a bunch of movies that I had downloaded onto my laptop. I had bought an eReader prior to going into the hospital so that I would have a large selection of various kinds of books to read depending on my mood and energy. It also made it so I didn't have to lug a suitcase full of books to the hospital with me. I was out of bed all day every day except for the day of my transplant, when I had received Ativan and it knocked me out pretty much.
Because there were to blizzards while I was in the hospital I didn't have many visitors and they didn't stay very long. I really enjoyed the alone time and the quiet. I wrote on my CaringBridge site daily except for 2-3 days when my energy was really low and my blood numbers had bottomed out.
Every person's experience is different, but usually not as bad as we think it will be.
Nancy in Phila
Forums
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: Steve Mohr's Stem Cell Transplant
Steve's last post was June 20 and I have not seen anyone post on this since June 23rd. Hopefully Steve is doing ok and successfully progressing with his SCT. Is there any information on his progress? Does anyone know where Steve is having his transplant?
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Dano - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Jan 2014
- Age at diagnosis: 65
Re: Steve Mohr's Stem Cell Transplant
Dano,
I believe Steve posted he was having the transplant done at James Cancer Center. I believe this is located in Columbus, Ohio.
I believe Steve posted he was having the transplant done at James Cancer Center. I believe this is located in Columbus, Ohio.
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Jerseygyrl - Name: Kim
- Who do you know with myeloma?: My Loved One
- When were you/they diagnosed?: February 2014
- Age at diagnosis: 58
Re: Steve Mohr's Stem Cell Transplant
I've not heard from Steve since his posting in the forum on the 20th. I emailed him this past Thursday, just to check in and wish him well. I have not yet gotten a response to that email. (Also, as best I know, none of my colleagues here at The Beacon have heard from Steve since the 20th either.)
Steve is probably having a rougher time with the transplant than he expected. I'm sure we'll hear from him again sometime in the near future.
In the meantime, let's all wish him and his family the best.
Steve is probably having a rougher time with the transplant than he expected. I'm sure we'll hear from him again sometime in the near future.
In the meantime, let's all wish him and his family the best.
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Boris Simkovich - Name: Boris Simkovich
Founder
The Myeloma Beacon
Re: Steve Mohr's Stem Cell Transplant
Mohr-man:
Sounds like white knuckle time......
Take care, this shall pass.
Regards
R
Sounds like white knuckle time......
Take care, this shall pass.
Regards
R
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Rneb
Re: Steve Mohr's Stem Cell Transplant
Best Wishes to Steve. Though it seems like the majority of posters on the Beacon did not go through the severe nausea, for those that do, posting to a public forum would be very low on their priority list!
They gave my husband every anti-nausea med known to man, and he spent 10 days in bed (often in that baby position: head buried in hands, knees under body, butt in air) retching and unable to stand the lights or TV on and also unable to take even sips of water. Add to this a C-diff infection, and the horrible diarrhea that brings on, and it was a new level in Dante's hell.
Would he do it again? YES - in a heartbeat. He is a high risk type multiple myeloma, and he has had 2.5 years post transplant, feeling good, in spite of never totally getting rid of his m-spike.
They gave my husband every anti-nausea med known to man, and he spent 10 days in bed (often in that baby position: head buried in hands, knees under body, butt in air) retching and unable to stand the lights or TV on and also unable to take even sips of water. Add to this a C-diff infection, and the horrible diarrhea that brings on, and it was a new level in Dante's hell.
Would he do it again? YES - in a heartbeat. He is a high risk type multiple myeloma, and he has had 2.5 years post transplant, feeling good, in spite of never totally getting rid of his m-spike.
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rumnting - Who do you know with myeloma?: husband
- When were you/they diagnosed?: 4/9/11
- Age at diagnosis: 54
Re: Steve Mohr's Stem Cell Transplant
Hey all,
As Boris has already pointed out, it would seem that Steve may be having a more challenging time with the SCT than anticipated.
I will be in Columbus, at The James Cancer Center, this coming Tuesday, meeting with one of their multiple myeloma specialists and will inquire about Steve then. They may or may not comment on his condition, even in a general sense, but if I hear anything I will let all of the concerned folks here know.
Best,
S.
As Boris has already pointed out, it would seem that Steve may be having a more challenging time with the SCT than anticipated.
I will be in Columbus, at The James Cancer Center, this coming Tuesday, meeting with one of their multiple myeloma specialists and will inquire about Steve then. They may or may not comment on his condition, even in a general sense, but if I hear anything I will let all of the concerned folks here know.
Best,
S.
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Steve - Name: Steve
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: December 2009
- Age at diagnosis: 55
Re: Steve Mohr's Stem Cell Transplant
Thanks, Steve, for offering to check in and see how Steve Mohr is doing.
If you do find anything out, please be sure that it's okay to share the information more broadly with everyone here before you do so. As much as I and everyone else would like to know how Steve is doing, I don't think any of us here would want information being passed along without the consent of Steve, his family, and/or his doctor.
Of course, if you are able to speak with Steve or his family, please pass along to all of the "hang in there and get a lot better soon" wishes from everyone here in the forum.
If you do find anything out, please be sure that it's okay to share the information more broadly with everyone here before you do so. As much as I and everyone else would like to know how Steve is doing, I don't think any of us here would want information being passed along without the consent of Steve, his family, and/or his doctor.
Of course, if you are able to speak with Steve or his family, please pass along to all of the "hang in there and get a lot better soon" wishes from everyone here in the forum.
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Boris Simkovich - Name: Boris Simkovich
Founder
The Myeloma Beacon
Re: Steve Mohr's Stem Cell Transplant
Yes ... Boris ... of course ... will exercise the utmost discretion.
And if given the opportunity, I will pass along the well wishes of TMB staff and members to Steve and his family.
S.
And if given the opportunity, I will pass along the well wishes of TMB staff and members to Steve and his family.
S.
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Steve - Name: Steve
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: December 2009
- Age at diagnosis: 55
Re: Steve Mohr's Stem Cell Transplant
Like everybody else, I hope Steve is not in a dire situation. I know Steve intended to write more than he has and it is a bit disconcerting that we have not heard more from him.
I remember when I was having my SCT. I brought in a bunch of reading material to pass the time, but hardly read any of it. My concentration was just not there. Just after finishing reading a page I would find I could hardly remember any of it. When I got out, I had trouble signing my name.
Maybe Steve is just too blasted and fatigued to have the energy to write. Looking back I do not think I would have been able write a column during my SCT.
I remember when I was having my SCT. I brought in a bunch of reading material to pass the time, but hardly read any of it. My concentration was just not there. Just after finishing reading a page I would find I could hardly remember any of it. When I got out, I had trouble signing my name.
Maybe Steve is just too blasted and fatigued to have the energy to write. Looking back I do not think I would have been able write a column during my SCT.
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Eric Hofacket - Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
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