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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Medical Cannabis Treatments?

by SoundAdvocate on Fri Dec 09, 2011 3:08 am

Matt wrote:

The doctor who performed my stem cell transplant said to stay away from medical marijuana. With your immune system depleted, smoking anything can lead to pneumonia

??? WTFreak ???

Who ever claimed the benefits from THC and CBD must be "smoked" from a marijuana "joint"? The most potent form I've seen is directly consuming the THC/CBD oil extract. You don't get "high" or anything like that. Yet, you do obtain all the health benefits attached.

This is the type of mis-information that BIG Pharma and the corporate owned media slaves want you to believe to keep you in fear. Trust me, Matt, your doctor isn't getting paid, kickbacks or any kind of incentives for you or anyone going to a LEGAL medical marijuana dispensary to seek help for their health and or wellness issues. Though he DOES get paid and incentives (you wouldn't believe) for prescribing what his pharmaceutical reps contract with him to prescribe. In MOST cases, the doctors NEVER EVER EVEN DO THEIR OWN RESEARCH ON THE DRUGS THEY PRESCRIBE. They essentially leave it up to the pharm rep to explain things to them. THAT should be regulated, but it's not. Who suffers? The patient.

How do I know this? - you might ask. I come from a large family of MDs, ODs and a bunch of other health related field careers. I practically grew up in a doctors office and still interact today with more health care professionals than anyone should in their life.

BIG PHARMA lobbies against the medicinal use of THC & CBD (marijuana derivatives) while at the same time researching, developing, and fighting to patent strains of such! Research, "Marinol". That is what the pharmaceutical industry's marijuana wannabe ... but THIS one comes WITH side-effects (FAIL).

SoundAdvocate

Re: Medical Cannabis Treatments?

by suzierose on Fri Dec 09, 2011 8:36 am

"but THIS one comes WITH side-effects"

really?...and THC doesn't? lol ...

The team of immunologists, led by Dr. Prakash Nagarkatti of the USC School of Medicine, published their findings in this month’s European Journal of Immunology. Their work focused on cannabinoids, a group of compounds found inside the cannabis plant, including THC (delta-9 tetahydrocannabinol).

“Cannabis is one of the most widely used drugs of abuse worldwide, and it is already believed to suppress immune functions making the user more susceptible to infections and some types of cancer,” Nagarkatti said. “We believe the key to this suppression is a unique type of immune cell, which has only recently been identified by immunologists, called myeloid-derived suppressor cells, MDSCs.”

While most immune cells fight against infections and cancers to protect the host, MDSCs actively suppress the immune system. The presence of these cells is known to increase in cancer patients, and it is believed that MDSCs may suppress the immune system against cancer therapy, actually promoting cancer growth. Nagarkatti’s team demonstrated that cannabinoids can trigger a massive number of MDSCs through activation of cannabinoid receptors.

“Our research for the first time demonstrates that marijuana cannabinoids can activate a unique type of immune cell, and the job of these cells is to suppress the immune response,” said Nagarkatti, the Carolina Distinguished Professor in the department of pathology, microbiology and immunology at the School of Medicine."

suzierose
Name: suzierose
When were you/they diagnosed?: 2 sept 2011

Re: Medical Cannabis Treatments?

by NotAgain on Mon Jan 23, 2012 2:05 pm

My advice is to NOT listen to doctors when it comes to medical dannabis. Most of them have not done the research and merely repeat the myths, stereotypes, and propaganda that our government pushes on this issue. It can be used in many forms if smoking concerns you. One does not have to be "high" to get medicinal value. (BTW: whoever wrote about Marinol ... you cannot get high from Marinol, so it must have been mind over matter.)

NotAgain

Re: Medical Cannabis Treatments?

by NotAgain on Mon Jan 23, 2012 2:08 pm

Also, there is new evidence that supports the fact that cannabis's anti-inflammatory properties may actually help fight against tumors. It is also inaccurate to say that it lowers the immune system. New findings report the opposite.

NotAgain

Re: Medical Cannabis Treatments?

by rumnting on Mon Jan 23, 2012 4:44 pm

My husband received Marinol for intractable nausea after his transplant. It did with the nausea, but he said "no more" after the second dose because of the visual hallucinations he was having . This had never happened to him "back in the day".

He was on several anti-emetics at the time, so it could have been the combined drugs giving him the hallucinations, but after stopping the Marinol, the hallucinations stopped.

rumnting
Who do you know with myeloma?: husband
When were you/they diagnosed?: 4/9/11
Age at diagnosis: 54

Re: Medical Cannabis Treatments?

by NStewart on Sun Jan 29, 2012 3:57 pm

If he was taking Ativan for the nausea, that could have been the drug to cause the hallucina­tions. I was given Ativan when my stem cells were reinfused. Within a short period of time, I was seeing the molecules in the air moving. I could see the individual stem cells as they were being infused. It was quite fun. But then they started giving it to me when I developed nausea and I started having very scary hallucinations. I refused it after that and made them put it down as a drug that I am allergic to.

NStewart
Name: Nancy Stewart
Who do you know with myeloma?: self
When were you/they diagnosed?: 3/08
Age at diagnosis: 60

Re: Medical Cannabis Treatments?

by Merek007 on Mon Feb 13, 2012 3:27 pm

I have been eating a quarter of pot cookie nightly, bought at a compassion club in bc. It has helped me sleep and reduced Ativan use to only dex day. Also reduced painkiller use initially.

I also bought some oil that I have only used twice for nausea . Drop of oil on finger. Oil is very strong with a stoned effect, don't notice cookies. Compassion club people seem to recommend twice required dosage.

Merek007

Re: Medical Cannabis Treatments?

by beecrofter on Mon Apr 09, 2012 3:34 pm

At one quarter of the recreational dose, ingested cannabis provides relief from peripheral neuropathy and leg pain.

I strongly agree with not using smoked cannabis, as the lungs are at far too much risk while your immune system is depressed by this disease and it's treatment.

If you look at big pharma's offerings (pregabalin), its possible side effects are frightening in com­parison.

beecrofter

Re: Medical Cannabis Treatments?

by GaryH on Sat Apr 14, 2012 12:39 pm

I had to stop using opiates for my pain quite a few years ago. They left me constipated so that I couldn't function very well. So I grinned and bared it for a number of years.

Two years ago, I joined a compassion club because they tested all of their product for molds, mildews, and quality. I can say that it does not take away the pain, but rather puts my mind on other things so that i'm not thinking of the pain. In that sense, it works great! It also depends which strain one is using. It also has the effect of relaxing my body, which in turn helps with the pain.

I don't think I would go so far as to say it's a cure, but maybe someday someone will do the valid research. I use a vaporizer that is a lot better than smoking. I also at times bake with it.

GaryH
Name: GaryH
Who do you know with myeloma?: Myself
When were you/they diagnosed?: Nov./97
Age at diagnosis: 44

Re: Medical Cannabis Treatments?

by Eric Hofacket on Mon Apr 16, 2012 3:15 pm

Last summer when I was put on Velcade after being initially diagnosed with multiple myeloma in April, I started losing my appetite and stopped eating. I was losing weight quickly and my doctor prescribed dronabinol (Marinol) to help increase my appetite. It is my understanding that dronabinol is essentially synthetic THC, an active ingredient in marijuana. It is FDA approved and I was able to pick it up at regular pharmacy.

The FDA approval was important, as my job has drug testing requirements and I need a valid FDA recognized prescription for anything I test positive for. I found the drug did not do much to help my appetite and I ultimately lost 50 lbs before regaining weight again after going off Velcade and completing my stem cell transplant. I also did not experience any effects of getting high – it did not seem to affect me much at all, but my girlfriend said it seemed to relax me some during a difficult time.

Eric Hofacket
Name: Eric H
When were you/they diagnosed?: 01 April 2011
Age at diagnosis: 44

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