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19th anniversary of multiple myeloma diagnosis

by GaryH on Sun Nov 06, 2016 8:49 pm

This last Friday marked the 19th anniversary from when I first presented with a broken back, and subsequent multiple myeloma diagnosis. It's been quite the ride since then, but it's always worthwhile! Hope to keep on keeping on.

Gary

GaryH
Name: GaryH
Who do you know with myeloma?: Myself
When were you/they diagnosed?: Nov./97
Age at diagnosis: 44

Re: 19th anniversary of multiple myeloma diagnosis

by Gala on Sun Nov 06, 2016 9:14 pm

Excellent news. Congratulations! Good to hear such inspiring stories.

Gala
Name: Gala
Who do you know with myeloma?: sister, LgA-k
When were you/they diagnosed?: December 2015
Age at diagnosis: 48

Re: 19th anniversary of multiple myeloma diagnosis

by hykergirl on Sun Nov 06, 2016 10:25 pm

Congratulations Gary! Love hearing of long-term survival. I was diagnosed 5 years ago and didn't think I would make it to my 50th birthday, but happily 2 months ago we did!

I'm sure it has not been easy. Nineteen years is amazing, truly inspirational. Thank you for sharing.

hykergirl
Name: Hykergirl
Who do you know with myeloma?: Myself
When were you/they diagnosed?: 2012
Age at diagnosis: 45

Re: 19th anniversary of multiple myeloma diagnosis

by Multibilly on Mon Nov 07, 2016 7:52 am

That's fantastic and inspiring. Congrats!

Multibilly
Name: Multibilly
Who do you know with myeloma?: Me
When were you/they diagnosed?: Smoldering, Nov, 2012

Re: 19th anniversary of multiple myeloma diagnosis

by KarenaD on Mon Nov 07, 2016 9:21 am

Congratulations, Gary! What an amazing milestone! Your inspirational post gives us all such hope. :)

KarenaD
Name: Karen
Who do you know with myeloma?: Myself
When were you/they diagnosed?: November 4, 2015
Age at diagnosis: 54

Re: 19th anniversary of multiple myeloma diagnosis

by mikeb on Mon Nov 07, 2016 10:13 am

Congratulations, Gary! That's great to hear and very inspirational for us relative newcomers to the myeloma fraternity. Here's to your next 19 years!

Mike

mikeb
Name: mikeb
Who do you know with myeloma?: self
When were you/they diagnosed?: 2009 (MGUS at that time)
Age at diagnosis: 55

Re: 19th anniversary of multiple myeloma diagnosis

by Mark Pouley on Mon Nov 07, 2016 11:08 am

Congratulations. I'm sure you've seen many ups and downs in that long time, but what an inspiring and happy story.

Mark Pouley
Name: Mark
Who do you know with myeloma?: Self
When were you/they diagnosed?: April 2015
Age at diagnosis: 53

Re: 19th anniversary of multiple myeloma diagnosis

by Nancy Shamanna on Mon Nov 07, 2016 11:16 am

Congratulations Gary! Could you share with us any ideas as to what has helped you in this journey, perhaps year by year? Each of us is different, but we are all interested in living a relatively normal long life. Regards, Nancy

Nancy Shamanna
Name: Nancy Shamanna
Who do you know with myeloma?: Self and others too
When were you/they diagnosed?: July 2009

Re: 19th anniversary of multiple myeloma diagnosis

by K_Shash on Mon Nov 07, 2016 11:25 am

I am sure all of us would appreciate the details of your treatment and any other precautions you may be taking.

I hope you have many, many returns of this anniversary.

K_Shash

K_Shash
Name: K_Shash
Who do you know with myeloma?: Self
When were you/they diagnosed?: November 2014
Age at diagnosis: 67

Re: 19th anniversary of multiple myeloma diagnosis

by Dean UK on Mon Nov 07, 2016 12:39 pm

Great news Gary.

Being on the younger side for multiple myeloma, this is the news I need to hear. I've met several myeloma patients since I was diagnosed, including one who was 20 years into his journey, and another who was 17years into it. I get the impression it's all down to how your myeloma behaves itself.

I also have my stem cell transplant tomorrow. Will be pleased when that's behind me. Getting a bit stressed and worried now. I bet you remember that feeling back in the day of your multiple myeloma journey?

Thanks for the post.
Dean

Dean UK
Name: Dean
Who do you know with myeloma?: Myself
When were you/they diagnosed?: April 2016
Age at diagnosis: 41

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