Well, I thought that I would update this thread to include today! It's now 20 years!
Once again, I thank all involved in my ongoing treatment and dedication. I've just been through a serious bout of GI bleeding, probably from the cyclophosphamide. That had me losing blood faster than I could keep it. However, it appears to have resolved itself.
I just knew there was a good reason to keep hanging in there, and that is my daughter is getting married in a month! That is something to really look forward to!
We are still searching for a new and upcoming myeloma therapy, or ? for me. There doesn't appear to be anything , but we're keeping our fingers crossed. Who knows, maybe it wllk be the miracle drug.
Take care,
gary
Forums
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GaryH - Name: GaryH
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: Nov./97
- Age at diagnosis: 44
Re: 19th anniversary of multiple myeloma diagnosis
Thank you so much for your update Gary. I was wondering how you were doing.
It will only be 5 years for me, and I am now waiting to get my fifth line of therapy. I also hope the next one is the miracle drug !
Wish you all the best,
Jane
It will only be 5 years for me, and I am now waiting to get my fifth line of therapy. I also hope the next one is the miracle drug !
Wish you all the best,
Jane
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jane84 - Name: jane84
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 11,2012
- Age at diagnosis: 44
Re: 19th anniversary of multiple myeloma diagnosis
Gary,
As I read some of your posts from several years ago, and I get a small glimpse of your journey, I am filled with a mixture of emotions. First of all, thank you for all the help and information you have given to untold hundreds of multiple myeloma folks! Some of your treatment seems to be a little less common, which will really be meaningful for newbies who are considering the same regimens.
I was diagnosed a short four months ago, so it's a bit like looking through a time tunnel to your place 19 years ahead of me. Of course, the time span is compressed, which heightens the sense of endless setbacks and hardship.
The effects of the disease are sometimes as bad as the side effects of the treatment. That is so unnerving. But that is what most of us will face as bravely as we can.
One thing you mentioned that is so important to me is total faith in God and total commitment to my oncologist. I would be a basket case without those two things.
Please keep us posted!
As I read some of your posts from several years ago, and I get a small glimpse of your journey, I am filled with a mixture of emotions. First of all, thank you for all the help and information you have given to untold hundreds of multiple myeloma folks! Some of your treatment seems to be a little less common, which will really be meaningful for newbies who are considering the same regimens.
I was diagnosed a short four months ago, so it's a bit like looking through a time tunnel to your place 19 years ahead of me. Of course, the time span is compressed, which heightens the sense of endless setbacks and hardship.
The effects of the disease are sometimes as bad as the side effects of the treatment. That is so unnerving. But that is what most of us will face as bravely as we can.
One thing you mentioned that is so important to me is total faith in God and total commitment to my oncologist. I would be a basket case without those two things.
Please keep us posted!
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Pepperink - Name: Jimmie
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: June 16, 2017
- Age at diagnosis: 66
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