Welcome to this week's Beacon Weekly Polls. This week’s question is about how long it's been since your diagnosis. This poll is specifically for patients with multiple myeloma. Separate polls are being run this week for patients with monoclonal gammopathy of undetermined significance (MGUS) and smoldering multiple myeloma (see the links below in this posting).
A few clarifications:
First, as indicated in the question, you should only respond if you currently have multiple myeloma, not smoldering multiple myeloma or MGUS.
Patients are diagnosed with multiple myeloma, also called active or symptomatic myeloma, if they have shown any of the common myeloma-related symptoms, such as elevated calcium levels in the blood, anemia, bone disease, or kidney damage.
Second, if you are a caregiver or spouse of of someone with myeloma, feel free to answer on their behalf.
Once you have answered the question above, add whatever comments you feel might be relevant in the discussion below.
As mentioned above, we are also currently running polls for MGUS and smoldering myeloma patients. If you currently have MGUS or smoldering myeloma, please vote in the appropriate poll. And, of course, feel free to check out the results of all of the polls:
Smoldering multiple myeloma:
https://myelomabeacon.org/forum/weekly-poll-how-long-since-your-smoldering-diagnosis-2013-t1606.html
MGUS:
https://myelomabeacon.org/forum/weekly-poll-how-long-since-your-mgus-diagnosis-2013-t1605.html
We previously ran each of these polls before, but are running them again so that Beacon readers have access to the latest information and can compare it to the previous data.
Previous polls:
Active multiple myeloma:
https://myelomabeacon.org/forum/weekly-poll-how-long-has-it-been-since-your-diagnosis-t621.html
Smoldering multiple myeloma:
https://myelomabeacon.org/forum/weekly-poll-how-long-since-your-smoldering-diagnosis-t662.html
MGUS:
https://myelomabeacon.org/forum/weekly-poll-how-long-since-your-mgus-diagnosis-t1202.html
Forums
Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2
I wan dx with multiple myeloma in may 2005,
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audreypatrick
Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2
It is 8 1/2 years since diagnosis
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2ManyCats
Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2
11 years
currently in 2 clinical trial this time with geneticly engineered t-cells
currently in 2 clinical trial this time with geneticly engineered t-cells
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mgmelley
Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2
Hey Mgmelley,
Congrats.
Which specific engineered Tcell trials are you in? How is it going with these trials? (feel free to respond via a new thread). I'd be incredibly curious to hear more about them.
Congrats.
Which specific engineered Tcell trials are you in? How is it going with these trials? (feel free to respond via a new thread). I'd be incredibly curious to hear more about them.
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2
Hi Multibilly,
You can find more information about the trial, and mgmelley's participation in it, here:
https://myelomabeacon.org/forum/t-cell-treatment-with-sct-for-myeloma-t2178.html
You can find more information about the trial, and mgmelley's participation in it, here:
https://myelomabeacon.org/forum/t-cell-treatment-with-sct-for-myeloma-t2178.html
Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2
It has been 9 1/2 years for me and I can safely say, that I feel the best I have felt for many many years!-
redcarnation - Name: Jennifer
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: 2004
- Age at diagnosis: 49
Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2
My husband was diagnosed in 2008, so 6 years
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Deb8228
18 posts
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