[Manon Veilleux]

Re: Weekly Poll - How Long Since Myeloma Diagnosis? - 2013

by Manon Veilleux on Sun Feb 16, 2014 12:27 pm

:) It has been 9 1/2 years for me and I can safely say, that I feel the best I have felt for many many years!

Thank you so much for sharing your good news with us! I have just been diagnosed for multiple myeloma at age 48 and your comment makes me feel so good!

Can you tell me if you had the bone marrow transfer? Yours or someone else's ?

Enjoy life and good health!

Manon from Quebec City!

[adrienne]

Re: Weekly Poll - How Long Since Myeloma Diagnosis? - 2013

by adrienne on Sun Feb 23, 2014 8:22 pm

I was diagnosed in July 2011.

[mustangsallie]

Re: Weekly Poll - How Long Since Myeloma Diagnosis? - 2013

by mustangsallie on Fri Feb 28, 2014 12:47 am

I was diagnosed in March of 2012. I am presently being treated with the Pomalyst drug and am now near the remission stage .

[Melita 6T4w]

Re: Weekly Poll - How Long Since Myeloma Diagnosis? - 2013

by Melita 6T4w on Fri Apr 25, 2014 5:13 pm

Diagnosed February 28, 2011. Stem cell transplant January 2012. Still on Zometa and Revlimid. Doing well and having PET scan next month along with 24 hr urine. Doing well.

[PegB]

Re: Weekly Poll - How Long Since Myeloma Diagnosis? - 2013

by PegB on Thu May 08, 2014 10:28 pm

Diagnosed in March 2014. On Revlimid, dexamethasone, Zometa and Aranesp.

[Nellh]

Re: Weekly Poll - How Long Since Myeloma Diagnosis? - 2013

by Nellh on Thu Jun 05, 2014 9:13 pm

My hubby was diagnosed in February 2014, so 4 months ago.

[johanna]

Re: Weekly Poll - How Long Since Myeloma Diagnosis? - 2013

by johanna on Wed Sep 24, 2014 9:04 am

Diagnosed 2 years and 2 months ago.

[Rneb]

Re: Weekly Poll - How Long Since Your Myeloma Diagnosis? - 2

by Rneb on Tue Feb 10, 2015 6:10 pm

Diagnosed 5/12/12 IgG t,11-14 Kappa Light chains ( Low/Std risk disease--per Mayo sMART)
-Surgery
-Radiation- 2 areas ( 12 weeks)
-Induction w/ Velcade/Dex ( 4 months+)
-Stem cell collection 4/13 ( 4 transplants + collected in 3 hrs)
-NO STC UNDERTAKEN
On Revlimid-Zometa -since 5/13
low M Spike- (1/13-12/14) (0.1- 0.3)
ZOMETA ( Monthly DQ'd 10/2014)

In complete remission ( 12/2014) (0.0)

On Revlimid (10 Mg) oral maintenance--no dex! ($12,000 +cost )
Zometa IV -every 3 months

Feel fairly good--lingering GI Tract and PN issues from Velcade;
Usual Revlimid side effects--fatigue, muscle stiffness, lowered platelets, a bit of FOG, etc.

I could do 10 more years of this treatment protocol...standing on my head !

and I hope to do so....so I can see Revlimid monthly cost = $1200 / Month ! (or less)