Hi all,
Just got back from OSUCC (The James) in Columbus. The doctor I was meeting with said that, although Steve Mohr was not his patient, he (my doctor) had attended this week's patient census and that during that meeting none of the doctors brought up any unusual concerns with current SCT patients. Sometimes no news is good news, and I suspect that is the case here.
As well, I checked at the front desk and they indicated that, although Steve is currently a patient there, they had no room number to give to the public, so I wasn't really sure how to contact Steve's family even if I'd wanted to. I'm guessing Steve and his family probably need this time to themselves anyway.
Best,
S.
Forums
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Steve - Name: Steve
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: December 2009
- Age at diagnosis: 55
Re: Steve Mohr's Stem Cell Transplant
Thanks so much for the update, Steve. We appreciate your checking in to see what you could find out about Steve's situation.
Re: Steve Mohr's Stem Cell Transplant
We got an update from Steve Mohr this morning.
He is at his home, having been released from the hospital last Thursday -- 16 days from the date of his admission. However, he's been dealing with a number of challenges associated with the transplant process, and they've kept him from having the energy and focus to post here.
He's sorry he hasn't been able to post updates nearly as frequently as he had hoped, and he really appreciates everyone's care and concern for how he has been doing.
It's not clear when he'll post again, but we're sure he'll do so as soon as he's up to it again.
He is at his home, having been released from the hospital last Thursday -- 16 days from the date of his admission. However, he's been dealing with a number of challenges associated with the transplant process, and they've kept him from having the energy and focus to post here.
He's sorry he hasn't been able to post updates nearly as frequently as he had hoped, and he really appreciates everyone's care and concern for how he has been doing.
It's not clear when he'll post again, but we're sure he'll do so as soon as he's up to it again.
Re: Steve Mohr's Stem Cell Transplant
Steve need not worry about posting until he feels up to it. I'm sure everyone can relate.
Here a prayer and a hope for Steve's speedy recovery.
marvin
Here a prayer and a hope for Steve's speedy recovery.
marvin
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gmarv - Name: marvin
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: aug.2012
- Age at diagnosis: 57
Re: Steve Mohr's Stem Cell Transplant
Hoping that he gets through the hurdle he is currently facing with ease.
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LibbyC - Name: LibbyC
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 2009
- Age at diagnosis: 43
Re: Steve Mohr's Stem Cell Transplant
I am keeping you in my prayers Steve. Hope things aren't as bad as we may fear. Hang in there, they say in the end it will all be worth it! Me ... I haven't even had my SCT yet, so easy for me to say right now. Looking forward to the time when you are feeling good again and more yourself. Then, you can relay the whole experience to us all. For now, just know there are many people out here praying for you and wanting you to recover ASAP and feel better.
Hang in there and get lots of rest.
Terri
Hang in there and get lots of rest.
Terri
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Terri Michigan - Name: Terri Michigan
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: 2009
- Age at diagnosis: 45
Re: Steve Mohr's Stem Cell Transplant
The first thing I want to do is apologize to The Beacon and its readers for not upholding my commitment to giving a regular report on my experience with my stem cell transplant. The bottom line ... I just was not tough enough to do what we (The Beacon and I) agreed for me to do. So I will attempt to summarize my 16 day stay in several postings over the next few days.
I was surprised to learn that the Hickman Line that was installed on my first day was a surgical procedure. The chemo infusion that took place later that day was uneventful - it took barely 45 minutes. Having to chew ice for 6 hours after the infusion was a challenge and like most of what I ate during my 16 days while hospitalized, I now have an aftertaste memory for each thing I ate. I cannot stand to have ice in my beverages now.
Unfortunately, shortly after I was admitted, my blood pressure skyrocketed and I developed a rather significant urinary tract infection resulting in what my wife and I call "The Dark Days" of my stay. Due to having these conditions treated as well as having the normal reactions to melphalan, I remember very little from the first 9 days of my stay. My wife says I did little more than curl up in bed and sleep.
The amount of personal medical care provided was overwhelming at first. I had an RN and PCA (personal care assistant) assigned to me 24/7. In addition, a nurse practitioner saw me daily, as did my oncologist and, if he did not, one of the other myeloma oncologists from the myeloma department would.
What was so impressive is that all of these people could predict, almost to the hour, what would be happening with my body. Vitals were checked every 2-4 hours, blood was drawn every morning at around 5:00 a.m., and several times during each shift they (the RNs) would conduct examinations that never varied. The nurse practitioners and oncologist did the same every time they saw me as well.
Equally impressive was their willingness to do whatever was necessary to ease the nausea and diarrhea that I suffered from the outset by either changing medications or changing the dosages. When I struggled swallowing the numerous pills I was taking due to nausea and diarrhea, they would administer the drugs intravenously.
One of the most disconcerting (and embarrassing) aspects of this procedure is the fact that everything that enters the body must be charted, as well as everything that leaves the body. Being racked with almost hourly bouts of nausea or diarrhea during The Dark Days of my stay resulted in far more entries on what was leaving my body than what was entering it.
Tomorrow I will share what I experienced during the second half of my hospitalization.
I was surprised to learn that the Hickman Line that was installed on my first day was a surgical procedure. The chemo infusion that took place later that day was uneventful - it took barely 45 minutes. Having to chew ice for 6 hours after the infusion was a challenge and like most of what I ate during my 16 days while hospitalized, I now have an aftertaste memory for each thing I ate. I cannot stand to have ice in my beverages now.
Unfortunately, shortly after I was admitted, my blood pressure skyrocketed and I developed a rather significant urinary tract infection resulting in what my wife and I call "The Dark Days" of my stay. Due to having these conditions treated as well as having the normal reactions to melphalan, I remember very little from the first 9 days of my stay. My wife says I did little more than curl up in bed and sleep.
The amount of personal medical care provided was overwhelming at first. I had an RN and PCA (personal care assistant) assigned to me 24/7. In addition, a nurse practitioner saw me daily, as did my oncologist and, if he did not, one of the other myeloma oncologists from the myeloma department would.
What was so impressive is that all of these people could predict, almost to the hour, what would be happening with my body. Vitals were checked every 2-4 hours, blood was drawn every morning at around 5:00 a.m., and several times during each shift they (the RNs) would conduct examinations that never varied. The nurse practitioners and oncologist did the same every time they saw me as well.
Equally impressive was their willingness to do whatever was necessary to ease the nausea and diarrhea that I suffered from the outset by either changing medications or changing the dosages. When I struggled swallowing the numerous pills I was taking due to nausea and diarrhea, they would administer the drugs intravenously.
One of the most disconcerting (and embarrassing) aspects of this procedure is the fact that everything that enters the body must be charted, as well as everything that leaves the body. Being racked with almost hourly bouts of nausea or diarrhea during The Dark Days of my stay resulted in far more entries on what was leaving my body than what was entering it.
Tomorrow I will share what I experienced during the second half of my hospitalization.
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Steve Mohr - Name: Steve Mohr
- Who do you know with myeloma?: No one
- When were you/they diagnosed?: April 20 12
- Age at diagnosis: 56
Re: Steve Mohr's Stem Cell Transplant
Nice to see you back online and posting, Steve! Sorry you had a difficult time in the hospital and hope that all will be improving for you now.
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Steve Mohr's Stem Cell Transplant
Steve, We're sure we won't be the first to say this, but we'll say it anyway: No apologies are necessary. We're just glad you're doing better, and we wish you all the best going forward.
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