Forums
Re: My story
Well, we are home from the hospital and I am at my parent's place. Other than a bit of tiredness, he is fine. He received his subcutaneous Velcade and pamidronate (Aredia) IV just a few hours ago.
-
Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: My story
No severe side effects at this point. Little bit of a dry mouth. Also some tiredness and nausea.
-
Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: My story
Hope your dad tolerates it well. My wife was treated at NYGH for her CyBorD induction for 4 months, including pamidronate monthly. She tolerated it very well, except developed weakness in her quads and leg pain in the evenings. It's believed the steroids caused the weakness, not sure about the leg pain. It's important for him to keep as active as he can. She's now on her 2nd transplant at PMCC as outpatient.
Glad to hear you're getting a 2nd opinion at PMCC; their myeloma deptartment is fantastic. The doctors and researchers are top notch. If he ends up there, the staff are terrific as well.
Whom at PMCC did you get the 2nd opinion from?
Good luck to him and your family!
Glad to hear you're getting a 2nd opinion at PMCC; their myeloma deptartment is fantastic. The doctors and researchers are top notch. If he ends up there, the staff are terrific as well.
Whom at PMCC did you get the 2nd opinion from?
Good luck to him and your family!
-
SK1 - Name: SK
- Who do you know with myeloma?: Spouse
- When were you/they diagnosed?: June 2015
- Age at diagnosis: 62
Re: My story
Hi SK,
Ya thanks, my dad is keeping active around the house and also some short (non-hospital) outings. My dad is getting the same deal as your wife, four months of CyBorD and monthly pamidronate; no major leg pain / peripheral neuropathy.
My dad's haemotologist sent him to PMCC last fall for some treatment guidance due to PMCC having well-known multiple myeloma experts on staff.
Ya thanks, my dad is keeping active around the house and also some short (non-hospital) outings. My dad is getting the same deal as your wife, four months of CyBorD and monthly pamidronate; no major leg pain / peripheral neuropathy.
My dad's haemotologist sent him to PMCC last fall for some treatment guidance due to PMCC having well-known multiple myeloma experts on staff.
-
Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: My story
Well, I can see the dex side effect; on a recent family road trip (I was driving), my dad yelled obscenities at two drivers along the highway for their driving habits. Not the worst side effect I guess.
-
Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: My story
Little Monkey,
Well, now that explains it! Pretty much every driver here in New Jersey must be on dex.
Mike
Well, now that explains it! Pretty much every driver here in New Jersey must be on dex.
Mike
-
mikeb - Name: mikeb
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 2009 (MGUS at that time)
- Age at diagnosis: 55
Re: My story
Hi Little Monkey,
It is good that YOU were driving! Your Dad's reaction times may be off, or he may over-react to situations in traffic. I don't drive too much when on dex actually.
It is good that YOU were driving! Your Dad's reaction times may be off, or he may over-react to situations in traffic. I don't drive too much when on dex actually.
-
Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: My story
Ya, I've heard the Jersey driving jokes before; even more about Massachusetts.
Nah, there is no highway driving for my dad while on chemo; my mom drives him to his weekly injection of Velcade; as her hours of work are semi-flexible.
Nah, there is no highway driving for my dad while on chemo; my mom drives him to his weekly injection of Velcade; as her hours of work are semi-flexible.
-
Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: My story
Well, the parents and I went to the stem cell transplant doctor (a haematology professor) today at the London Regional Cancer Centre. He was very honest about the pros and cons of doing the auto stem cell transplant. It is a tough decision my dad will have to make in the next while, and I'm glad the doctor was so up front with both sides of the story.
We also inquired about stem cell transplant versus maintenance therapy, just to compare the two.
We also inquired about stem cell transplant versus maintenance therapy, just to compare the two.
-
Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Return to Member Introductions / Personal Stories