Ciro,
I just enter my numbers into Microsoft Excel and run a graph. You could just as easily use a free spreadsheet program on Windows such as OpenOffice. I also add the trendlines and standard-deviation error bars (those extra things you see in my graphs) with some advanced functions in Excel.
There's many good threads on curcumin and dosing on this site and I hope this thread doesn't turn into another one. But to answer your question, I happen to take 3 x 600 mg Theracumin + 2 x 10 mg bioperine twice a day.
For D3+K2, I take three drops of Thorne liquid D3 K2 once a day.
You can easily find these supplements on many online shopping sites.
I also always first clear any supplement or new Rx usage with my onc.
Forums
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Fenofibrate (Tricor) and multiple myeloma
Ciro-
I agree that MultiBilly"s graphs are beautiful and very helpful in visualizing the trends over time. The patient portal that my cancer center uses has the ability to graph each of the lab test values that are reported except for the m-spike. I periodically graph the results that I watch for my myeloma just to see how things are going. It's so helpful to be able to see where I had a relapse and then my response to restarting treatment.
Thank you MultiBilly for letting us see how you are following your numbers. As always you are so helpful to all of us with your attention to detail.
Nancy in Phila
I agree that MultiBilly"s graphs are beautiful and very helpful in visualizing the trends over time. The patient portal that my cancer center uses has the ability to graph each of the lab test values that are reported except for the m-spike. I periodically graph the results that I watch for my myeloma just to see how things are going. It's so helpful to be able to see where I had a relapse and then my response to restarting treatment.
Thank you MultiBilly for letting us see how you are following your numbers. As always you are so helpful to all of us with your attention to detail.
Nancy in Phila
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: Fenofibrate (Tricor) and multiple myeloma
I printed out these graphs this morning. Thanks, Multibilly! You post some good info and very helpful comments.
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Lawrence2xl - Name: Lawrence
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: March 2016
- Age at diagnosis: 65
Re: Fenofibrate (Tricor) and multiple myeloma
Really interesting and helpful for putting these kinds of numbers into a bigger picture. You can't find that kind of information elsewhere, great value!
Thanks for sharing, Multibilly!
Thanks for sharing, Multibilly!
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GreenForest - Name: GreenForest
- Who do you know with myeloma?: -
- When were you/they diagnosed?: -
- Age at diagnosis: 34
Re: Fenofibrate (Tricor) and multiple myeloma
Below are my latest graphs. I continue on my same regimen (including fenofibrate), except that I now also take stabilized rice bran a couple of times a day. My serum free light chain numbers continue to slowly improve, while my M-spike just seems to bounce along in its merry range.
- igg-v2.png (29.07 KiB) Viewed 1920 times
- mspike-v2.png (30.98 KiB) Viewed 1920 times
- lambda-flc-v2.png (32.36 KiB) Viewed 1920 times
- flc-ratio-v2.png (34.25 KiB) Viewed 1920 times
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Fenofibrate (Tricor) and multiple myeloma
Hi Multibilly,
Glad to see that your lambda light chain level and free light chain ratio have come down and stayed down after going up over the course of almost two years.
Your M-spike seems to have plateaued, which is great, and I hope it stays that way (or comes down!). But your recent IgG readings have been on the high end of what's been measured since your diagnosis. Any idea what might account for what appears to be higher-than-usual levels of healthy (polyclonal) IgG?
Thanks for keeping us posted on your lab results. It's really helpful to see them.
Glad to see that your lambda light chain level and free light chain ratio have come down and stayed down after going up over the course of almost two years.
Your M-spike seems to have plateaued, which is great, and I hope it stays that way (or comes down!). But your recent IgG readings have been on the high end of what's been measured since your diagnosis. Any idea what might account for what appears to be higher-than-usual levels of healthy (polyclonal) IgG?
Thanks for keeping us posted on your lab results. It's really helpful to see them.
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JimNY
Re: Fenofibrate (Tricor) and multiple myeloma
Hi Jim,
No idea what might account for the polyclonal component of my IgG reading. But I also track that value separately, and it has really moved around a LOT, having bounced between 760 and 1568 mg/dL a few times over nearly 5 years (all still within the normal IgG range). Other than bouncing around between the rails of the normal IgG range (694 - 1618 mg/dL), there is no clear trend to my polyclonal IgG data and my oncologist doesn't seem concerned. Since I feel just dandy, I haven't really worried about it.
No idea what might account for the polyclonal component of my IgG reading. But I also track that value separately, and it has really moved around a LOT, having bounced between 760 and 1568 mg/dL a few times over nearly 5 years (all still within the normal IgG range). Other than bouncing around between the rails of the normal IgG range (694 - 1618 mg/dL), there is no clear trend to my polyclonal IgG data and my oncologist doesn't seem concerned. Since I feel just dandy, I haven't really worried about it.
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Fenofibrate (Tricor) and multiple myeloma
Thanks for the information about your IgG, Multibilly.
I should clarify that I'm not suggesting there should be any concern about your recent IgG levels. Sorry if my question suggested there should be concern. I only asked out of curiosity. I thought it would be useful to know if you had identified any reason why your "healthy" (polyclonal) IgG has fluctuated the way it has.
I should clarify that I'm not suggesting there should be any concern about your recent IgG levels. Sorry if my question suggested there should be concern. I only asked out of curiosity. I thought it would be useful to know if you had identified any reason why your "healthy" (polyclonal) IgG has fluctuated the way it has.
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JimNY
Re: Fenofibrate (Tricor) and multiple myeloma
Jim,
Understood and thanks. It is kind of a peculiar situation, but so is this disease
Understood and thanks. It is kind of a peculiar situation, but so is this disease
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Fenofibrate (Tricor) and multiple myeloma
Interesting article on the effect of statins – e.g. Lipitor (atorvastatin) – on multiple myeloma mortality:
Sanfilippo, KM, et al, "Statins Are Associated With Reduced Mortality in Multiple Myeloma," Journal of Clinical Oncology, Sep 19 2016 (full text of article)
Note that I happen to take both Lipitor and fenofibrate (fenofibrate is a fibrate drug and is not a statin). But be clear that one needs to be careful with the combination of fibrates and statins, as it can potentially lead to rhabdomyolysis, a condition that involves the breakdown of skeletal muscle tissue. My doctor screens for this potential condition by tracking my CPK level (creatinine phosphokinase).
Sanfilippo, KM, et al, "Statins Are Associated With Reduced Mortality in Multiple Myeloma," Journal of Clinical Oncology, Sep 19 2016 (full text of article)
Note that I happen to take both Lipitor and fenofibrate (fenofibrate is a fibrate drug and is not a statin). But be clear that one needs to be careful with the combination of fibrates and statins, as it can potentially lead to rhabdomyolysis, a condition that involves the breakdown of skeletal muscle tissue. My doctor screens for this potential condition by tracking my CPK level (creatinine phosphokinase).
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
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