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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.
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Re: Zometa side effects: are they really that bad?

by Benny on Sun Jan 01, 2017 1:10 pm

Thanks Rick. Glad your husband is on smoother sailing these days. Can't wait to get there myself.

It's really hard as a physician to be a patient!

Benny
Name: BM1971
Who do you know with myeloma?: Me
When were you/they diagnosed?: 12/2/16
Age at diagnosis: 45
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Re: Zometa side effects: are they really that bad?

by moonscape on Mon Jan 02, 2017 10:10 pm

Perhaps the grass is always greener, but it seems doubly tough to be a patient without the knowledge of a physician!

Imagine trying to cram med school while managing one's myeloma :)

moonscape
Who do you know with myeloma?: me
When were you/they diagnosed?: 11/2015
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Re: Zometa side effects: are they really that bad?

by WendyinIndy on Sat Nov 25, 2017 9:52 am

I just naively went the day before Thanksgiving to get my first infusion of Zometa. I went home to a houseful of people, where I have one redeeming quality, cooking! That night began the worst experience of "flu-like" symptoms I have ever experienced. The vomiting and bone & joint pain was excruciating. I had no heads up from my doctor.

I will NEVER let them give me this evil drug again. For me, the drug is worse than the disease. Never again.

WendyinIndy
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Re: Zometa side effects: are they really that bad?

by DeeBaker45 on Fri Dec 01, 2017 10:00 pm

Hi Wendy,

I'm sorry your first experience with Zometa was awful. I had my first infusion this past July. I was sick for the first 48 hours afterwards and then had uncontrollable chills and felt very run down for the day and night. I also developed pink eye 2 days after that. The good news is when I had my second infusion in October I had no side effects at all. My nurse said they ran the drip slower than before because that is supposed to lessen the side effects.

DeeBaker45
Name: D'Anne
Who do you know with myeloma?: Myself
When were you/they diagnosed?: June 2017
Age at diagnosis: 45
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Re: Zometa side effects: are they really that bad?

by Rscottsutherland on Tue Dec 19, 2017 4:25 pm

I have been taking Zometa for a few years, every other month. Side effects for me are negligible. Maybe very mild flu symp­toms for a day or so, but not an issue.

For awhile, I was taking Zometa monthly as well as monthly IVIG. The two of them together had mild flu symptoms and minor lower back ache. Again, not a big deal thankfully.

Good luck

Rscottsutherland
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Re: Zometa side effects: are they really that bad?

by michaelgreer on Fri Dec 22, 2017 10:12 pm

I’ve had two Zometa infusions, first when I began Velcade, and another 6 weeks later, and experienced no problems.

michaelgreer
Who do you know with myeloma?: Self
When were you/they diagnosed?: 10/25/17
Age at diagnosis: 68
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