This week’s poll is about the phase of treatment you are currently undergoing.
A few clarifications:
First, this poll is open to all multiple myeloma, smoldering myeloma, and monoclonal gammopathy of undetermined significance (MGUS) patients or their family members. If you are a caregiver or family member of a patient, feel free to answer on their behalf.
Second, please choose the option that is most applicable.
As always, feel free to post comments, thoughts, or feedback in the space below. They can be very useful to other readers.
Forums
Re: Weekly Poll - Phase Of Treatment
I have SMM. Was Diagnosed almost a year ago at. 40 y.o. Taking part in Natural Progression Study at NIH. They would love for me to do the CRD trial for SMM but that's not for me. I like the watch and wait approach.best wishes to All!!
Art
Art
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Art - Name: Art
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: 12/2011
- Age at diagnosis: 40
Re: Weekly Poll - Phase Of Treatment
Hi I was diagnosed in may of this year started rev, dex, Velcade. I have completed 4 months of treatment, but only 1session was a complete 2week regime, due to issues. I just started again, and my numbers are way down. My initial igg level was 10,900 now at 1,460. My doc says he is almost ready to call Stanford for stem cell transplant. I am nervous about the non existence of fighting off any infections and the 5 to7 days of being super sick.
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Jackie - Name: Jackie
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: April 2012
- Age at diagnosis: 56
Re: Weekly Poll - Phase Of Treatment
Diagnoised in '05, transplant in '06, recently relapsed. Hope to be starting the third cycle of clinical trial MLN 9708 on Friday. The first cycle went well, second cycle wiped out my platelets and neutrophils so I wasn't able to complete that cycle. Each of you remains on my prayer list. Counting my blessings.
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justme - Who do you know with myeloma?: Me
- When were you/they diagnosed?: December 2005
- Age at diagnosis: 56
Re: Weekly Poll - Phase Of Treatment
It would seem that you have missed an option in the choices.
" completed stem cell capture am in remission and and have not preceded with Stenm cell transplant". This option of waiting until the cancer becomes active again before going through the process of stem cell transplant has been discussed but doesn't seem to be an option that is regarded as common practice. With the advent of the new drugs, many physicians are suggesting that the treatment options may be just as effective as the transplant option.
" completed stem cell capture am in remission and and have not preceded with Stenm cell transplant". This option of waiting until the cancer becomes active again before going through the process of stem cell transplant has been discussed but doesn't seem to be an option that is regarded as common practice. With the advent of the new drugs, many physicians are suggesting that the treatment options may be just as effective as the transplant option.
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KDay
Re: Weekly Poll - Phase Of Treatment
Hi KDay,
If you haven't voted already, feel free to pick whichever option seems most appropriate for you. It sounds like this one may be right for you: I am between treatment regimens right now.
If you haven't voted already, feel free to pick whichever option seems most appropriate for you. It sounds like this one may be right for you: I am between treatment regimens right now.
Re: Weekly Poll - Phase Of Treatment
Hi KDay,
Has any oncologist mentioned that you could go on manintenace at this point? It might delay the time of relapse. If you take Revlimid as maintenance without having had the transplant the likelihood of a scenond cancer seems drematically reduced.
Best of Luck
Lin
Has any oncologist mentioned that you could go on manintenace at this point? It might delay the time of relapse. If you take Revlimid as maintenance without having had the transplant the likelihood of a scenond cancer seems drematically reduced.
Best of Luck
Lin
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Lin
Re: Weekly Poll - Phase Of Treatment
Hi - I noticed this poll focused on phase of treatment for multiple myeloma, SM, and MGUS. Are there any new treatments for MGUS? I was diagnosed this winter with MGUS (Chrom 7, Ig) and it appears that 'watch and wait' along with a blood test every six months is what my doctor recommended. And, it sure appears that many with MGUS also have an autoimmune disease. Does that put one in a risk group for MGUS? Thanks, Diane
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dianem
Re: Weekly Poll - Phase Of Treatment
Hi Diane,
The standard of care for MGUS, and often for smoldering myeloma too, is to watch and wait. Most MGUS and smoldering myeloma patients are likely to select "I have not yet begun treatment."
A recent study showed that MGUS patients are at a higher risk of developing infections, which the study investigators said may be due to an underlying condition, such as an autoimmune disease:
https://myelomabeacon.org/news/2012/02/22/myeloma-precursor-disease-mgus-may-increase-risk-of-developing-infections/
The standard of care for MGUS, and often for smoldering myeloma too, is to watch and wait. Most MGUS and smoldering myeloma patients are likely to select "I have not yet begun treatment."
A recent study showed that MGUS patients are at a higher risk of developing infections, which the study investigators said may be due to an underlying condition, such as an autoimmune disease:
https://myelomabeacon.org/news/2012/02/22/myeloma-precursor-disease-mgus-may-increase-risk-of-developing-infections/
Re: Weekly Poll - Phase Of Treatment
I am pretty much in KDay's ballpark. This week I just completed stem cell collection at the NIH. It went well for me except for the bone pain caused by the Neupogen.The cells will be stored for the proverbial rainy day one hopes never comes. I am in the CRD trial there for newly diagnosed which is 8 cycles of CRD and 12 cycles of low dose Revlimid w/o SCT. The CRD worked super quickly....just hope it lasts a long time.
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terryl1 - Name: Terry
- Who do you know with myeloma?: self
- When were you/they diagnosed?: August 10, 2011
- Age at diagnosis: 49
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