My husband was diagnosed with multiple myeloma in June of 2010. Prior to that time, he suffered from tinnitus, and continues to do so. He has tried a few of the over-the-counter meds available, without much relief.
I would be interested in knowing if anyone else has encountered this, and if you have found something to give you relief. Thanks for your response.
Forums
Re: tinnitus (ringing in the ears)
I also have the same thing. I only noticed it Jan of this year. I had been given Revlimid (which turned out to be a mistake since I am at MGUS vs multiple myeloma). I have been to ENT, so far nothing works. Mine is in the left ear only and is very annoying. I have PN and I have a strong feeling it might related. I am going to Mayo this friday for a Neuro followup and I will ask them.
regards,
scott
regards,
scott
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AZScott - Name: AZ Scott
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Dec 2010
- Age at diagnosis: 52
Re: tinnitus (ringing in the ears)
I have had Tinnitus since I can remember...childhood. The meds I take to treat multiple myeloma only seems to accentuate it. I have not really looked into anything...ever, to treat the condition. I have just lived with it.
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P. Aaron - Name: P. Aaron
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: 10/2009
- Age at diagnosis: 49
Ringing Ear caused by Revlimid
Hi folks, I was wondering if anyone is experiencing ringing in the ear while on maintenance Revlimid? I am taking 15mg for 21 days. Currently I am on my 3rd run. I have found in each cycle, the ringing starts to get stronger further into the treatment cycle. During my week break in the drug, it goes down quite a bit but not totally gone.
I have heard Revlimid can cause this condition. Does anyone have thoughts on a way to reduce the ringing? I know a lower dose is an option, but my doctor has advised it would be good to keep this dose as I am VGPR right now after my SCT.
I have heard Revlimid can cause this condition. Does anyone have thoughts on a way to reduce the ringing? I know a lower dose is an option, but my doctor has advised it would be good to keep this dose as I am VGPR right now after my SCT.
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Denis H - Name: Denis H
- When were you/they diagnosed?: Oct 2010
- Age at diagnosis: 39
Re: tinnitus (ringing in the ears)
Interesting!
I'm also suffering from tinnitus for the past 7-8 years. 4 ears ago I was diagnosed with multiple myeloma. Following 2 years of Velcade and thalidomide treatment (I'm in remission now) my tinnitus seems to become worse. I dont know though if its related .
Shay
I'm also suffering from tinnitus for the past 7-8 years. 4 ears ago I was diagnosed with multiple myeloma. Following 2 years of Velcade and thalidomide treatment (I'm in remission now) my tinnitus seems to become worse. I dont know though if its related .
Shay
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HP1610
Re: tinnitus (ringing in the ears)
I have had tinnitus since I was early 20s from working in the automotive stereo industry. Chemo only made it worse. It's loud. I don't have to be in a quiet room to hear it.
I have tried Tinnitex, ear plugs with natural ingredients that are supposed to cure/ease it. Zero results so don't waste your money.
Anyone have something that works?
Chris
I have tried Tinnitex, ear plugs with natural ingredients that are supposed to cure/ease it. Zero results so don't waste your money.
Anyone have something that works?
Chris
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ninja performance - Name: Chris Hill
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: 08/04/2011
- Age at diagnosis: 43
Re: tinnitus (ringing in the ears)
I've been on maintenance Revlimid and dexamethasone for about 8 months now and just last night my ears started ringing. It's like a hissing/buzzing noise that is continuous. My ears were not ringing before this.
Has anyone else had their ears start ringing while on treatment with Revlimid?
Has anyone else had their ears start ringing while on treatment with Revlimid?
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DallasGG - Name: Kent
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 6/20/2013
- Age at diagnosis: 56
Re: tinnitus (ringing in the ears)
Hello Huskerfan,
I had tinnitus for years prior to my diagnosis. I saw an ENT that put tubes in my ears after misdiagnosing me with a Eustacian Tube Dysfunction. Interestingly enough, it went away with IVIG (immunoglobulin therapy). I was put on antibiotics before starting the therapy, and I'm thinking it was a chronic lo- grade infection causing the ringing in my ears or perhaps just being immunocompromised?
Good luck.
J
I had tinnitus for years prior to my diagnosis. I saw an ENT that put tubes in my ears after misdiagnosing me with a Eustacian Tube Dysfunction. Interestingly enough, it went away with IVIG (immunoglobulin therapy). I was put on antibiotics before starting the therapy, and I'm thinking it was a chronic lo- grade infection causing the ringing in my ears or perhaps just being immunocompromised?
Good luck.
J
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jhorner - Name: Magpie
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: 2013
- Age at diagnosis: 49
Re: Tinnitus (ringing in the ears)
Hi people,
I started carfilzomib (Kyprolis) and Pomalyst / dex two days ago to deal with a pretty fast relapse and becoming completely refractive to even a high dose (25 mg) of Revlimid and Velcade.
Last night, after a day of my second infusion of carfilzomib, I had a high fever reaction (104.1 F / 40.1 C) and this morning got up with very LOUD tinnitus. I'm thinking it was fever-related, but I see in here that my chemotherapies don't lack for potential causes of this.
I've always had a little bit of tinnitus, but this is alarming ... it's distracting and will be depressing if it keeps up.
And one has to wonder, if the chemo is killing tiny nerve cells in the hearing system, what the heck it's doing to brain cells. There's a fun thought.
Anyone see a reduction in tinnitus over time on chemo? Or is everyone seeing it irreversible?
I started carfilzomib (Kyprolis) and Pomalyst / dex two days ago to deal with a pretty fast relapse and becoming completely refractive to even a high dose (25 mg) of Revlimid and Velcade.
Last night, after a day of my second infusion of carfilzomib, I had a high fever reaction (104.1 F / 40.1 C) and this morning got up with very LOUD tinnitus. I'm thinking it was fever-related, but I see in here that my chemotherapies don't lack for potential causes of this.
I've always had a little bit of tinnitus, but this is alarming ... it's distracting and will be depressing if it keeps up.
And one has to wonder, if the chemo is killing tiny nerve cells in the hearing system, what the heck it's doing to brain cells. There's a fun thought.
Anyone see a reduction in tinnitus over time on chemo? Or is everyone seeing it irreversible?
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bardrichmond - Name: Bard Richmond
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: Nov 2014
- Age at diagnosis: 64
Re: Tinnitus (ringing in the ears)
Mine comes and goes but generally seems to be more frequent and worse the longer I'm on maintenance therapy with Revlimid and dex.
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DallasGG - Name: Kent
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 6/20/2013
- Age at diagnosis: 56
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