[goldmine848]

Re: Some hope if you are embarking on ASCT

by goldmine848 on Mon Dec 09, 2013 3:42 pm

I want to echo Wesley's sentiments; headed for an ASCT January or February (timing depending on whether Eagles make the playoffs; gotta have your priorities straight). It is very helpful and encouraging to hear from those who have weathered the storm successfully.

[Mark]

Re: Some hope if you are embarking on ASCT

by Mark on Tue Dec 10, 2013 1:47 pm

I just saw this online this morning. It is about a 75 year old British man that did an allogeneic transplant to treat his actute myeloid leukemia. He is the oldest patient in Britain to undergo an allo transplant. What an inspirational patient!

"“I just feel very lucky and grateful,” said Mr Meakin as he recovers at his home in Cornwall Avenue, North Shore.

“I know I was unlucky to get the disease in the first place, but at one time they didn’t do a bone marrow transplant on anyone over the age of 50.

“Thankfully that age limit has gradually crept up.

“I feel very honoured to be the oldest person to have it because without it there would have been only one outcome.”"



"Three months on from the procedure, all is going well.

“I’ve always believed that being active is the key to recovering from an illness, so within days of the operation I was walking around the hospital corridors, doing half-a-mile at a time,” Mr Meakin added.

“Now I’m home I still go walking every day and although there have been some very tough times, when I’ve felt dreadful, I am finally now starting to feel like my old self again."

http://www.blackpoolgazette.co.uk/news/health/local-health/olympian-alf-s-transplant-record-at-75-1-6307374

Not hard to see why Alf is a former Olympic Athlete. Talk about a "fighting spirit"!!!

[Barneasada]

Re: Some hope if you are embarking on ASCT

by Barneasada on Tue Dec 17, 2013 6:02 pm

I'm a 27 yr old with dxd at 19...Just decided to proactively do auto SCT even though I'm at 0.2 m-spike with low risk disease and completely healthy. With work and life this winter is the best time to do it. I'm going to do it March 1 and I'm scared sh*tless but seeing these positive words of wisdom helps a lot. It's a hard pill to swallow but I want years of complete remission with no hospital trips and can gain my life back after being on RVD/CRD for last 13 months ....thank you for positive feedback and I believe this is the best choice for me!!! Hopefully will soon be a 10, 15, 20 year survivor with this auto transplant.

Mark

[mikeb]

Re: Some hope if you are embarking on ASCT

by mikeb on Wed Dec 18, 2013 1:07 am

I had an auto SCT on May 15. There was a bump in the road at day +8 when I got an e Coli infection, went into septic shock, and ended up in the ICU for 3 days. But after that recovery was pretty smooth. I went through 6 weeks of RVD consolidation therapy in August and September, and now I am on Revlimid maintenance. I ran a half marathon a couple of Sundays ago, so I think I'm pretty much back to "normal" now.

My main advice to anyone facing an SCT is to stay positive and be as active as you can (mentally and physically) during your recovery.

[LadyLib]

Re: Some hope if you are embarking on ASCT

by LadyLib on Wed Dec 18, 2013 1:45 am

Thank you for this thread. My husband has started the harvest process. He is on Day 3 of Neuprogen. He is doing well with no pain. His transplant date is set for December 27th, but may move to December 30th. I will keep everyone posted.

[Guest]

Re: Some hope if you are embarking on ASCT

by Guest on Thu Dec 26, 2013 10:04 pm

What a great thread. My husband is scheduled tentatively for early Feb. Was supposed to be Jan, but he ended up in the hospital with a piece of steak stuck in his esphogus and the vomiting caused a tear in his esphogus. Was scary at first, but turned out fine. Just giving him time to heal now. He has a lot of other health issues, so we worry about the transplant a lot. but it is what he has to do now. Its just nice to hear some positive reports. Minnesota in February does not sound like a lot of fun tho!