The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Re: More wives & daughters, less husbands & sons

by Anonymous on Fri May 16, 2014 10:21 pm

Hello,

I think it's the caregiver-nurturing side in women just being supportive of their family member with a serious illness -- most of whom are men.

Like Lyn, I post periodically and my husband never does. In fact, he doesn't read the Beacon, but I usually do 2-3 nights a week. If I see something that I think he would like to know, I'll give him a quick update. We both know there's an elephant in the room whose presence will need to be dealt with head-on some day, but right now I like to let him have as normal a daily life as possible. He already has to deal with the physical consequences of multiple myeloma.

Best wishes to everyone fighting this disease, and to all the spouses/significant others/caregivers going through it too ...

Chris M.

Anonymous

Re: More wives & daughters, less husbands & sons

by LadyLib on Sat May 17, 2014 6:06 pm

I am a wife/caretaker and I honestly want my husband to focus on getting well and not be bothered with researching. Everything he researched gave him a death sentence. From there, I told him that I would be the deciphering eyes/ears for multiple myeloma. He walks in faith now and does not claim illness. We view it as going through the motions. I pray that my husband lives a great life and that this is just "one of the things" that we deal with in life.

He was viewed as high risk - did 5 cycles, had a stem cell transplant, and has had a complete response (CR). I am good with that and he is too.

My goal in logging in is to still be informed from the others and to definitely provide support and comfort to those going through as well.

Wishing you all the best and lots of hope and faith to make it through this. This too shall pass.

LadyLib
Name: LadyLib
Who do you know with myeloma?: Spouse
When were you/they diagnosed?: July 2013
Age at diagnosis: 42

Re: More wives & daughters, less husbands & sons

by kjpoppit on Sat May 17, 2014 11:03 pm

I am the one with myeloma and I research obsessively also. I can't get my husband interested in this site or any researching. He takes care of me and is concerned, but that is it. I don't believe he would research for himself either but just trust the doctor to make all decisions. You can bet I would be researching for him too.

kjpoppit
Name: Kim Nelson
Who do you know with myeloma?: Me
When were you/they diagnosed?: Sept. 19th, 2013
Age at diagnosis: 47

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