Wasn't the neutropenic diet a drag? I hadn't been told about it and had stocked my refrigerator with what I though would be healthful foods to eat during the time between Cytoxan infusion and stem cell harvest. When I was discharged after my Cytoxan infusion was completed, I was given the neutropenic diet guidelines. Almost everything that I had stocked my refrigerator with was a no-no on the diet.
The day I went to have my hair shaved because it was falling out, I treated myself to lunch out. When I started reading the menu I realized that every selection on the menu had some ingredient(s) that was on the list. I ended up with a well done burger, blech, with no pickles, black pepper, lettuce, tomatoes, or cheese. Well, I learned my lesson and didn't go out to eat again until several weeks after my transplant.
I'm still pretty careful about the doneness of my meat, but now have medium rare so that there is some pink. I stay away from raw meat and fish. Last week I couldn't help myself and got some sushi with rare tuna. Huge Mistake!!!!! I won't do that again. I really miss sushi with raw fish and raw oysters.
Keep improving and thank you for your videos. I think that they probably helped a lot of people who are trying to decide whether to transplant, or not, for fear of the recovery from it. You are a stellar example of how well most of them go.
Nancy in Phila
Forums
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: MattSchtick's Stem Cell Transplant
Video update recorded on Day 48
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MattSchtick - Name: Andy
- Who do you know with myeloma?: me
- When were you/they diagnosed?: Feb27 2014
- Age at diagnosis: 61
Re: MattSchtick's Stem Cell Transplant
Hi Andy!!
So good to hear from you!! Day 48, wow, the time sure has flown by, Sounds like you are doing great. Your numbers are all in normal ranges, your appetite is good, you're putting on weight ... Way to go Andy!!
If I may say so, you look great with your head shaved. That being said, I am a fan of that look, but not everyone can pull it off. You are looking great!
Keep up the great work and thanks for sharing.
Kim
So good to hear from you!! Day 48, wow, the time sure has flown by, Sounds like you are doing great. Your numbers are all in normal ranges, your appetite is good, you're putting on weight ... Way to go Andy!!
If I may say so, you look great with your head shaved. That being said, I am a fan of that look, but not everyone can pull it off. You are looking great!
Keep up the great work and thanks for sharing.
Kim
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Jerseygyrl - Name: Kim
- Who do you know with myeloma?: My Loved One
- When were you/they diagnosed?: February 2014
- Age at diagnosis: 58
Re: MattSchtick's Stem Cell Transplant
Wow! You look wonderful ... even without the hair. Looks like you did not lose your eyebrows, either. I'm encouraged by your recovery, as I am headed for a stem cell transplant soon. Mine will be inpatient, though.
I hope you continue to feel well, and that your remission is very long.
I hope you continue to feel well, and that your remission is very long.
Re: MattSchtick's Stem Cell Transplant
Video update recorded Day 100-And-SomethingModerator's Note: Andy's friend that appears with him in the video is a mud lark.
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MattSchtick - Name: Andy
- Who do you know with myeloma?: me
- When were you/they diagnosed?: Feb27 2014
- Age at diagnosis: 61
Re: MattSchtick's Stem Cell Transplant
This video absolutely cracked me up. Good luck with your upcoming test results Matt!
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: MattSchtick's Stem Cell Transplant
Hey Matt,
I love the hat/headgear! Congratulations on hitting the Day 100 milestone.
Good luck to both you and your little friend.
I'm already looking forward to your Day 1000 video!
Mike
I love the hat/headgear! Congratulations on hitting the Day 100 milestone.
Good luck to both you and your little friend.
I'm already looking forward to your Day 1000 video!
Mike
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mikeb - Name: mikeb
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 2009 (MGUS at that time)
- Age at diagnosis: 55
Re: MattSchtick's Stem Cell Transplant
Great hearing from you again, Andy, and wishing you well with the 100-day test results and BMB. Glad to hear your feeling well and it looks like you made a new friend for life.
I just had my ASCT on October 20th and I'm still recuperating. I lost about 20 lbs and with my bald head I'm looking poorly; however, I do feel a bit stronger each day.
Keep us posted on your progress and thanks for the transplant diary/video. I'm sure it was helpful to many of us going through ASCT.
I just had my ASCT on October 20th and I'm still recuperating. I lost about 20 lbs and with my bald head I'm looking poorly; however, I do feel a bit stronger each day.
Keep us posted on your progress and thanks for the transplant diary/video. I'm sure it was helpful to many of us going through ASCT.
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Dano - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Jan 2014
- Age at diagnosis: 65
Re: MattSchtick's Stem Cell Transplant
It's great to hear from you, Andy! I'm glad you are doing well.
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KimT - Name: Kim Tank
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: July 2013
- Age at diagnosis: 53
Re: MattSchtick's Stem Cell Transplant
So good to hear from you Andy! You're looking great and happy to hear you are feeling great as well.
Positive thoughts and prayers for your results on the 19th!
Positive thoughts and prayers for your results on the 19th!
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Jerseygyrl - Name: Kim
- Who do you know with myeloma?: My Loved One
- When were you/they diagnosed?: February 2014
- Age at diagnosis: 58
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