Yes, it takes several weeks to get all the test results to determine if you have multiple myeloma, what kind of multiple myeloma, and what chromosome abnormalities are present. This sets up a treatment plan based on your husband's current health. There is nothing you can do but wait. And you may find additional tests will be requested.
Even after all this initial testing, there will be additional testing to track results. So, you will always be waiting for test results. You'll have to find a way to deal with the anxiety of waiting because it's never ending.
Forums
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JBarnes - Name: Jerry Barnes
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: Aug 17, 2012
- Age at diagnosis: 54
Re: I'm Scared
I just live my life like I want until my multiple myeloma rears its ugly head. I can't do nothing about it so I just go on and try to ignore it until that time. Life's too short too worry all the time about something you have no control over.
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coop223 - Name: derek cooper
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: November 2011
- Age at diagnosis: 57
Re: I'm Scared
Hello Mildred,
I understand how you feel. The initial diagnosis takes time following test after test, and the waiting and associated anxiety is mind blowing.
My question is: Why does it take 22 days to get your husband's BMB results back? My first BMB was December 27, and we had results on January 1. My second BMB was September 26, and results were back by October 1.
I would suggest you call the oncologist and ask for the BMB results and see if you can move your husband's appointment up. We are our own health care advocates, and I have learned you need to be forceful and persistent when seeking information, asking questions, and making requests for something to be done.
Now is the time to put together your husband's medical team and let them help you. Seek out the best myeloma specialist you can find, join a support group, and learn as much as you can about multiple myeloma.
Having myeloma is a daily battle, and the initial diagnosis is difficult to accept. Do your best to support your husband through his journey with myeloma.
Wishing you and your husband the best.
I understand how you feel. The initial diagnosis takes time following test after test, and the waiting and associated anxiety is mind blowing.
My question is: Why does it take 22 days to get your husband's BMB results back? My first BMB was December 27, and we had results on January 1. My second BMB was September 26, and results were back by October 1.
I would suggest you call the oncologist and ask for the BMB results and see if you can move your husband's appointment up. We are our own health care advocates, and I have learned you need to be forceful and persistent when seeking information, asking questions, and making requests for something to be done.
Now is the time to put together your husband's medical team and let them help you. Seek out the best myeloma specialist you can find, join a support group, and learn as much as you can about multiple myeloma.
Having myeloma is a daily battle, and the initial diagnosis is difficult to accept. Do your best to support your husband through his journey with myeloma.
Wishing you and your husband the best.
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Dano - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Jan 2014
- Age at diagnosis: 65
Re: I'm Scared
Hi,
Thank you for answering. Our oncologist/hematologist and internist believe that this was caught very early.
Our oncologist, who practiced at MD Anderson before moving to our city, informed us that he was going to be out of town the week of October 13 through 17 (he has speaking engagements at a lymphoma conference). He is actually the doctor who told me to come to this site.
Our oncologist said that, unless something is off with our blood work, he would wait and see us on our appointment. I am confident that if something is found that he needs to talk to us about, he will call. Sometimes I have a hard time trying to remember that perhaps we are not his only patient.
I will keep you posted on what comes about. My husband has said that he may possibly go to MD Anderson in Houston if he has any doubts.
Thank you again for showing so much concern.
Thank you for answering. Our oncologist/hematologist and internist believe that this was caught very early.
Our oncologist, who practiced at MD Anderson before moving to our city, informed us that he was going to be out of town the week of October 13 through 17 (he has speaking engagements at a lymphoma conference). He is actually the doctor who told me to come to this site.
Our oncologist said that, unless something is off with our blood work, he would wait and see us on our appointment. I am confident that if something is found that he needs to talk to us about, he will call. Sometimes I have a hard time trying to remember that perhaps we are not his only patient.
I will keep you posted on what comes about. My husband has said that he may possibly go to MD Anderson in Houston if he has any doubts.
Thank you again for showing so much concern.
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