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How often do you see your oncologist?

by dogmom on Wed Jan 06, 2016 4:53 pm

How often do you actually see the oncologist after you are put on a treatment regimen?

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: How often do you see your oncologist?

by goldmine848 on Wed Jan 06, 2016 8:58 pm

Every 2 months.

goldmine848
Name: Andrew
When were you/they diagnosed?: June 2013
Age at diagnosis: 60

Re: How often do you see your oncologist?

by Kimberly T on Thu Jan 07, 2016 7:49 am

When my husband first got diagnosed with POEMS, his blood work was checked every 8 weeks. Now after treatment his blood gets checked every 12 weeks.

Kimberly T

Re: How often do you see your oncologist?

by Tracy J on Thu Jan 07, 2016 9:59 am

I see my local oncologist monthly, at the beginning of every cyclophosphamide (Cytoxan) cycle. We check labs every two weeks – again because of the cyclophosphamide.

I see my onc at Dana Farber every 6 months or when things come up.

Tracy J
Name: Tracy Jalbuena
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2014
Age at diagnosis: 42

Re: How often do you see your oncologist?

by Rhonda on Thu Jan 07, 2016 10:03 am

My induction therapy was weekly and administered in the oncologist office infusion treatment center, so I saw my oncologist once a week. I liked this, as I always had questions. My maintenance will be administered bi-weekly, so I will see him every other week. I will see my multiple myeloma specialist every six months or sooner if needed.

Best wishes to you and your husband today. You had mentioned today is his first appointment. Hopefully it will bring some comfort ti both of you.

Rhonda

Rhonda
Who do you know with myeloma?: myself
When were you/they diagnosed?: September 2014
Age at diagnosis: 54

Re: How often do you see your oncologist?

by Ron Harvot on Thu Jan 07, 2016 11:35 am

When I was first diagnosed, I saw him once a month. That lasted a little over a year, but as I went into a remissive state, he changed the protocol and moved the appointment back to once every quarter (3 months). I have been on that schedule for the past 4 years.

Ron Harvot
Name: Ron Harvot
Who do you know with myeloma?: Myself
When were you/they diagnosed?: Feb 2009
Age at diagnosis: 56

Re: How often do you see your oncologist?

by SK1 on Thu Jan 07, 2016 12:21 pm

Monthly during induction therapy unless a specific issue came up.

SK1
Name: SK
Who do you know with myeloma?: Spouse
When were you/they diagnosed?: June 2015
Age at diagnosis: 62

Re: How often do you see your oncologist?

by Little Monkey on Thu Jan 07, 2016 2:26 pm

My dad has not started his cyclophosphamide, Velcade, and dexamethasone (CyBorD) treatment yet, but he has completed radiation. He sees his haematologist every two months, his neuro­surgeon every three months for a checkup, with a smattering of family doctor and palliative care (pain) doctor in between.

Little Monkey
Name: Little Monkey
Who do you know with myeloma?: Father-stage 1 multiple myeloma
When were you/they diagnosed?: March/April of 2015

Re: How often do you see your oncologist?

by NStewart on Thu Jan 07, 2016 2:37 pm

When I was first diagnosed with smoldering myeloma, I saw my oncologist (myeloma specialist) once a month. I had lab work at the same time. That lasted for a year.

Then, because I was doing well, he changed it to every 3 months. But, in the first 3 months, I progressed to active myeloma and began treatment. I was back on the monthly schedule with labs and Zometa infusion on the same day until my transplant.

After the transplant, I saw him weekly for about 6 weeks, then biweekly for about 2 months, then weekly for a few months. I have now been seeing him every 6 weeks for about 5 years. Labs and Zometa infusion are done on the same day.

Nancy in Phila

NStewart
Name: Nancy Stewart
Who do you know with myeloma?: self
When were you/they diagnosed?: 3/08
Age at diagnosis: 60

Re: How often do you see your oncologist?

by dianaiad on Fri Jan 08, 2016 12:00 am

I see mine every other cycle (21 days on, 7 days off, Revlimid). He calls me between the cycles he doesn't see me.

Until I relapse, I think that's what the schedule will be.

dianaiad
Who do you know with myeloma?: Me
When were you/they diagnosed?: Officially...March 2013
Age at diagnosis: 63

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