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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Re: How often do you see your oncologist?

by KimT on Fri Jan 08, 2016 10:28 pm

I'm in remission and not on any treatment currently. I see my oncologist every three months.

KimT
Name: Kim Tank
Who do you know with myeloma?: Me
When were you/they diagnosed?: July 2013
Age at diagnosis: 53

Re: How often do you see your oncologist?

by LeslieK on Tue Jan 12, 2016 1:04 pm

When I was first diagnosed in 2006 and stared chemo, I saw him at least once a week and then I ended up in hospital because I started having horrendous side effects. Saw a lot of him then LOL

Once I was back on my feet, I only had to have a blood test every 3 months then 6 months as my count was low. The chemo and then flatlining a couple of times and going into intensive care and then skin grafts (long story) all helped to whack the myeloma into the stratosphere.

After a couple of years my count was creeping up and then it had the magic number which meant more chemo.

I have had 5 cycles of chemo over 10 years and have never finished the 4 months as everything goes pear shaped.

I now see my oncologist every 3 months - next visit is February. Bit apprehensive, as my last results showed I had reached the magic number for treatment.

My poor oncologist said I am his most challenging patient :twisted:

LeslieK
Name: LeslieK
Who do you know with myeloma?: Myself
When were you/they diagnosed?: Nov 2006
Age at diagnosis: 51

Re: How often do you see your oncologist?

by Little Monkey on Tue Jan 12, 2016 1:42 pm

Leslie, a bit off topic, I noticed you live in the Channel Islands. Do you have to travel to the UK (or, dare I say, France) for your specialist appointments, or is there a haematologist in Jersey / Guernsey for you to see?

Little Monkey
Name: Little Monkey
Who do you know with myeloma?: Father-stage 1 multiple myeloma
When were you/they diagnosed?: March/April of 2015

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