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Digestive issues after transplant - anyone?

by summit on Wed Apr 29, 2015 10:35 pm

Hi to all,

So we have just underwent a horrible transplant procedure. I say horrible since seeing your loved one go through this "vegetation" and suffering state is just unbearable.

My question to all who also had a transplant is: When were you able to properly eat and digest. We have experienced unstoppable nausea. He could not eat anything for two weeks and now, when he starts, it seems fine for a few hours and then his stomach sort of stops – the food is thrown up, not digested.

Does anyone have any advice? Doctors are useless ...

summit

Re: Digestive issues after transplant - anyone?

by Bar-none on Wed Apr 29, 2015 10:45 pm

Summit,

I am sorry to hear that your loved one has had such a terrible time. You may have been all thru this with his docs, but IV anti-nausea medications were a big help to me. Specifically Ativan (lorazepam) and Zofran (ondansetron) given in tandem. My appetite was not normal; however, I was able to keep solid food down after these were given. Of course I was drowsy and lethargic, but at least I wasn't hurling.

All the best! BN

Bar-none
Who do you know with myeloma?: Me
When were you/they diagnosed?: 3/14

Re: Digestive issues after transplant - anyone?

by summit on Wed Apr 29, 2015 10:52 pm

Hi BN,

Thanks for the quick response. He is on anti-nausea – Zofran gravel – one more which I cannot recall. So when he is not nauseous and can eat, the food is still not being properly digested. May­be it is related and I was wondering if anyone experienced the same digestive problem even if not nauseous.

Thanks!

S

summit

Re: Digestive issues after transplant - anyone?

by Bar-none on Wed Apr 29, 2015 11:05 pm

Thanks for clarifying S,

One suggestion you may already know about are the liquid easy-to-digest options like Ensure. There may be better options, but that is the name that comes to mind.

Best!

BN

Bar-none
Who do you know with myeloma?: Me
When were you/they diagnosed?: 3/14

Re: Digestive issues after transplant - anyone?

by Joneman on Fri May 01, 2015 2:05 pm

It took me 4 months for the nausea to stop.

Joneman

Re: Digestive issues after transplant - anyone?

by Music box lady on Fri May 01, 2015 8:34 pm

So sorry you are having such a problem, but hopefully it will pass soon, it took me about 3 months to get over it. I also stopped eating for about two weeks while in hospital because nothing would stay down. I found out the two food items I wanted were watermelon and macaroni salad. The salad was made kind of bland, but I could tolerate this better. I think I ate it for three weeks before eating anything else.

It does get better.

Music box lady
Name: Margie
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2012
Age at diagnosis: 60

Re: Digestive issues after transplant - anyone?

by Terrij on Fri May 01, 2015 10:57 pm

My daughter couldn't eat much during and after her transplant. Her go-to food was mashed potatoes because it was bland but filling.

Terrij

Re: Digestive issues after transplant - anyone?

by heddleandhook on Sat May 02, 2015 1:11 am

Do they ever use hyperalimentation when someone can't eat for so long?

heddleandhook
Name: heddleandhook
Who do you know with myeloma?: self
When were you/they diagnosed?: Jan 2015
Age at diagnosis: 68

Re: Digestive issues after transplant - anyone?

by DallasGG on Sat May 02, 2015 11:17 am

I was in the hospital for 17 days for my transplant. After the transplant, my appetite went away almost completely. I had nausea and diarrhea in the hospital and was given IV meds for that (I couldn't keep the pills down), and those meds helped a lot.

About the only thing that tasted somewhat good to me in the hospital were the milkshakes that they offered me as an alternative to the meals that you could order from a menu. My appetite started to come back the day I got home from the hospital, but my digestive system took another couple of months to return to normal.

DallasGG
Name: Kent
Who do you know with myeloma?: myself
When were you/they diagnosed?: 6/20/2013
Age at diagnosis: 56

Re: Digestive issues after transplant - anyone?

by summit on Sun May 03, 2015 11:13 pm

Thanks. Yes, we are trying all the options. Good to know it might take 3-4 months to get over it. I was concerned one month is too long not to eat properly. :roll:

summit

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