The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
Home page Deutsche Artikel Artículos Españoles

Forums

General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Re: Diet, dairy and multiple myeloma

by dee777 on Thu Feb 06, 2014 9:45 pm

I believe I know about the patient, he didn't stick to it, I question his compliancy on it as he was just experimenting with it along other therapies.

Dr. Gonzalez has multiple myeloma patients still alive 20 years. By the way, I went there in October and started the protocol and will be going back in April. Dr. Isaacs who works with him at his office is my doctor. I couldn't see Dr. Gonzalez till November so picked Dr. Isaacs. I am going in tomorrow to have a physical done with my primary and will have blood work so I will see where I am at, at 3 months. Alternative therapies do take time.

The patient I think you referred to only did it for about 2-3 months. As the cancer cells die they release the cancer marker in them, so for instance I am IgA so my IgA will go up. By 6 months it should start coming down, but my CBC should improve. I will share when I get the results back next week.

People who are lactose intolerant tend to do better with raw milk. I was told not to eat a lot of cheese, I make my own raw cheese but I am not a big cheese eater so that was fine with me. I think if you didn't do dairy that wouldn't be major, I think it is the meat that is important to get us more acidic. I don't know of one person that cured multiple myeloma with a vegan diet. That is why other naturopath doctors multiple myeloma patients don't get better because no one can wrap their heads around the thought that some one can be too alkaline. Most people are too acidic. There is another blog of a woman that is patient of his, she never used any drugs, still doing great 4 or 5 years now. I only know she is IgA like me.

Now Dr. Gonzalez will not accept patients he cannot help, you have to apply to see him. I don't think he will see someone with bone involvement or who has had dialysis. His protocol takes time and you have be complaint including do the daily coffee enemas and patients with bone involvement won't be able to do it and are too advanced and ones with kidney failure are too advanced too.

dee777

Re: Diet, dairy and multiple myeloma

by dnalex on Fri Feb 07, 2014 1:43 am

Six months is an awfully long time to give something a chance, in the face of disease markers rising. Six months is quite enough to do quite a lot of (irreversible) damage to a myeloma patient, so it makes sense to me to change gears.

I have no opinion on alternative therapies, and hope that they work as well, if not better, than they claim.

Best wishes to all who are fighting this cancer, and look forward to a day with a cure, alternative or conventional.

dnalex
Name: Alex N.
Who do you know with myeloma?: mother
When were you/they diagnosed?: 2007
Age at diagnosis: 56

Re: Diet, dairy and multiple myeloma

by dee777 on Fri Feb 07, 2014 11:03 am

dnalex, one can monitor thru blood work the same as on drugs. I choose to wait, I choose to not have an oncologist. My choices. I had blood work done this morning at 3 months. My primary doctor said everything looked great after the physical. No abnormalities noted. Will see what the blood work results are next week. Alternative therapies are not for every one. If one feels more comfortable with conventional treatment then they should do them. You have to do what you have faith in.

dee777

Re: Diet, dairy and multiple myeloma

by SVBriggs on Sun Feb 09, 2014 4:22 pm

Dee, please keep us up to date on your progress. It is great that this forum allows us to explore alternative treatments. I applaud your courage for taking the path less traveled. You are definitely a thriver and a fighter.

Dr. Gonzales has always been my plan B. If my bone marrow biopsy doesn't show molecular remission, then I am definitely applying to become a patient since I am IgA, with p17 deletion and (14,16). I have been on Wobozym N, not Gonzales' formula, but better than nothing. Wobozym people told me to try 10 tablets 3 times per day.

Your success has made me rethink my diet. I was on Kelly's metabolic diet (I am parasympathetic dominant, protein type), but I went off the diet when I was diagnosed thinking that it was fueling my cancer which in retrospect was probably dumb. The diet probably kept the cancer at bay because at diagnosis I had no kidney issues and no bone lesions, only anemia.

SVBriggs

Re: Diet, dairy and multiple myeloma

by Lizzie on Sun Feb 09, 2014 5:24 pm

Dee, I'm trying to understand the diet you're mentioning. I am considered high risk smoldering because of no CRAB. But high plasma infiltration and chromo abnormalities make me high risk.

If possible, I'd love to get this disease under control before I do have CRAB. All of the alternative diet options have my head spinning ... curcumin, plant based, juicing ... seems there are so many theories. Would you mind sharing the blog of the the woman who has been on Gonzalez diet for 20 years? I'm fascinated by your success.

Svbriggs ... Where did you get the enzymes? I've read about them and would like to try!

Lizzie
Name: Lizzie
Who do you know with myeloma?: Self
When were you/they diagnosed?: Jan 2014
Age at diagnosis: 43

Re: Diet, dairy and multiple myeloma

by Lizzie on Sun Feb 09, 2014 5:26 pm

Dee, one more thing ... are you saying multiple myeloma patients should stay away from high alkaline foods or eat more? I thought it was the opposite, so I've integrated many alkaline foods into my diet.

Lizzie
Name: Lizzie
Who do you know with myeloma?: Self
When were you/they diagnosed?: Jan 2014
Age at diagnosis: 43

Re: Diet, dairy and multiple myeloma

by dee777 on Sun Feb 09, 2014 6:20 pm

Yes Lizzie, we are too alkaline. We need to eat more acidic foods like red meat and animal fats. It will help with red blood cell production and anemia.

The other woman that is a patient of his has been on it for about 4-5 years. All I know is she is IgA. Her blog is: http://curingmyeloma.blogspot.com/p/about-me.html

Dr. Gonzalez used these enzymes before perfecting his own, you can only get his supplements and enzymes as a patient. Online you can purchase these: "Nutricology / Allergy Research Group Natural Glandular Pancreas Pork".

I take over 70 of the enzymes a day. I take 12 at a time throughout the day IN BETWEEN MEALS. I do take a few with meals to help with digestion but the ones taken in between are the ones that go in the blood stream and digest the outer cover of the cancer cells, at least the thought is that is what is happening.

You have to do the coffee enemas too along with the enzymes to get rid of the toxins. I also do a gall bladder liver flush, colon cleanse, and carrot juice fast for a couple days. These are done alternately every month during my 5 day break from the supplements, 25 days on and 5 off. The 5 days are so the body can catch up and repair.

dee777

Re: Diet, dairy and multiple myeloma

by SVBriggs on Sun Feb 09, 2014 8:58 pm

Hi Lizzie,

Wobozym N (Amazon should carry, I get mine at local health food store), but the Nutricology probably has higher levels of chymotrysin. I cannot get the professional formula that has been used in myeloma clinical trials, with good results. I will probably be switching to Nutricology.

Theresa, whose blog is Curing Myeloma, has not posted since last June. I tried emailing her but no response. People have been requesting that she update everyone as to her progress as she had been improving but was not out of the woods yet (as of her last blog).

I would really like to hear how someone who has been on the program for a few years is doing.

Dee, do you know if his myeloma patients that have been doing well for 10 plus years are high risk or standard risk? Also, do you have any stomach irritation taking such large amounts of enzymes?

SVBriggs

Re: Diet, dairy and multiple myeloma

by SVBriggs on Sun Feb 09, 2014 9:25 pm

http://n.wobenzymonline.com/wobenzym-research/systemicoralenzymesincancertherapy

Here is link describing clinical trial results using enzymes and multiple myeloma. It does work. If one can not afford to see Dr. Gonzales, at least adding enzymes might be beneficial. As Dee stated earlier, you must take before meals on empty stomach. The Beacon has given the thumbs up to enzymes in their articles on nutrition. Of course, if you are on chemo, run it by your oncologist just to be safe. I am looking for an alternative doctor close by who follows Gonzales' protocol, but if I have to go to N.Y. I will find a way to pay for it.

SVBriggs

Re: Diet, dairy and multiple myeloma

by dee777 on Sun Feb 09, 2014 9:38 pm

I don't have any problems with the enzymes. There are people that are sensitive to the pork. There is the option of lamb, but it does cost more and you have to take more as they are not as strong. I did not ask about the risk factors of his other patients. I do realize though that it does not matter. I am high risk because I am treatment resistant ... TO DRUGS. Pancreatic enzymes are equal opportunist. They go after all cancer. :D

dee777

PreviousNext

Return to Multiple Myeloma