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Re: Best Treatment Approach for Newly Diagnosed
That your Mon's M-spike dropped so dramatically in just 4 weeks is potentially great - but paradoxocially a rapid and deep response can sometimes be a sign of a more proliferative, agressive disease, in which case an upfront ASCT may be a good idea. Presumably, your mom had a cytogenetic analysis, which can bear on this issue. Bottom line: You need to ask the doctor why HE thinks an upfront ASCT is the way to go.
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Re: Best Treatment Approach for Newly Diagnosed
Shall we go for ASCT if MSpike is reduced to 0.77 in just 3 weeks of Rev/Dex in induction therapy, or we can hope that Novel drugs will play their part without the need of ASCT. Will it be a right decision not to take any therapy once it reaches 0.00 (if plasma cell count also reduces to less than 5%) and go for some naturopathic/nutrients/supplements aided treatment only?
Has any one tried Homeopathic or Ayurvedic treatments as well in addition to Allopathic?
Has any one tried Homeopathic or Ayurvedic treatments as well in addition to Allopathic?
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ankitbhardwaj - Name: Ankit
- Who do you know with myeloma?: Mom
- When were you/they diagnosed?: Mar 2013
- Age at diagnosis: 54
Re: Best Treatment Approach for Newly Diagnosed
I am doing naturopathic therapies. I know other multiple myeloma patients that doing it too with success. I am in touch with some one right now that the bone marrow transplants failed, drugs failed, and he is doing just naturopathic therapy right now. His blood work stabilized and he is getting another one the end of this month and hoping for improvements. He is feeling much better. I am taking low dose Revlimid along with the therapies myself for 3-4 months. I am late stage with a lot of cancer so needed help.
Re: Best Treatment Approach for Newly Diagnosed
After second cycle of Rev/Dex, my moms MSpike is down to 0.30 (i.e. 4.04 -> 0.77 -> 0.30). Have consulted two docs below is their opinion:
1. Lets plan for Auto SCT after 3rd or max 4th cylce. If dont wanna ASCT, then he will change the regimen so that option for ASCT remains open.
2. No need of Auto SCT upfront, continue with Rev/Dex until it works and then only we will think abt ASCT.
Confusions again, looks like more you consult more you get confused.
I have got many useful info from this forum from u guys, pls advise further.
Thanks All.
1. Lets plan for Auto SCT after 3rd or max 4th cylce. If dont wanna ASCT, then he will change the regimen so that option for ASCT remains open.
2. No need of Auto SCT upfront, continue with Rev/Dex until it works and then only we will think abt ASCT.
Confusions again, looks like more you consult more you get confused.
I have got many useful info from this forum from u guys, pls advise further.
Thanks All.
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ankitbhardwaj - Name: Ankit
- Who do you know with myeloma?: Mom
- When were you/they diagnosed?: Mar 2013
- Age at diagnosis: 54
Re: Best Treatment Approach for Newly Diagnosed
There are times you have to do your own research and make your own decision. You will get different answers from different doctors and different people.
Re: Best Treatment Approach for Newly Diagnosed
Ya I understand dee777,but really torn between early or delayed asct. Read in many posts that in the era if novel drugs we may not even need asct but that is not proven yet.
Are there much risks in going for asct?
Are there much risks in going for asct?
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ankitbhardwaj - Name: Ankit
- Who do you know with myeloma?: Mom
- When were you/they diagnosed?: Mar 2013
- Age at diagnosis: 54
Re: Best Treatment Approach for Newly Diagnosed
Read up about people's experience with bone marrow transplants. Completely destroy the bone marrow and immune system and than rebuild. Some people do die during and after so not risk free. I have no plans to EVER have one. There are some that are happy with their decision to have one.
With more and more drugs coming out there are more choices now.
With more and more drugs coming out there are more choices now.
Re: Best Treatment Approach for Newly Diagnosed
Thanks all.
Further update, latest MSpike report as on 17.06.2013 reads below:
? 0.20 g/dl
(Suspicious non discrete protein band in gamma globulin region. Possibly monoclonal gammopathy.
It came down as below in 3 cycles - 4.040@diagnosis, 0.77 after 1st cycle rev/dex, 0.33 after 2nd cycle rev/dex,? 0.20 after 3rd cycle rec/dex.
Doctor advise now is Auto Sct but as we were quite hesitant for that right now so he started 4th cycle with Thalidomid/dex. As he said continued lenalidomide may impact the stem cell collection process when we plan for ASCT may be after a few months.
Confusion still persists though we got a couple of months again now for SCT, yes or no
Further update, latest MSpike report as on 17.06.2013 reads below:
? 0.20 g/dl
(Suspicious non discrete protein band in gamma globulin region. Possibly monoclonal gammopathy.
It came down as below in 3 cycles - 4.040@diagnosis, 0.77 after 1st cycle rev/dex, 0.33 after 2nd cycle rev/dex,? 0.20 after 3rd cycle rec/dex.
Doctor advise now is Auto Sct but as we were quite hesitant for that right now so he started 4th cycle with Thalidomid/dex. As he said continued lenalidomide may impact the stem cell collection process when we plan for ASCT may be after a few months.
Confusion still persists though we got a couple of months again now for SCT, yes or no
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ankitbhardwaj - Name: Ankit
- Who do you know with myeloma?: Mom
- When were you/they diagnosed?: Mar 2013
- Age at diagnosis: 54
Re: Best Treatment Approach for Newly Diagnosed
Does the treatment also causes skin of the palms to be pluffy?
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ankitbhardwaj - Name: Ankit
- Who do you know with myeloma?: Mom
- When were you/they diagnosed?: Mar 2013
- Age at diagnosis: 54
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