[malz5779]

anyone with agressive IgD lambda multiple myeloma?

by malz5779 on Wed Oct 05, 2011 2:11 am

Hello, my uncle was recently diagnosed with multiple myeloma and was told that his type is extremely rare. I was just wondering how many, if any, people have this type and for how long? What is their course of treatment....etc.

Thanks

[Beacon Staff]

Re: anyone with agressive IgD lambda multiple myeloma?

by Beacon Staff on Wed Oct 05, 2011 10:51 am

Hi malz5779,

Several other people who have posted to the Beacon forums have indicated that they have IgD myeloma. Here are their stories:

https://myelomabeacon.org/forum/member-introductions-personal-stories-t278.html?hilit=igd#p1107

https://myelomabeacon.org/forum/hello-i-am-new-here-is-my-story-t208.html?hilit=igd

https://myelomabeacon.org/forum/igd-non-secreting-multiple-myeloma-t128.html?hilit=igd

People with IgD myeloma tend to respond well to therapy, but unfortunately their survival tends to be somewhat shorter than people with more common myelomas. There are many new myeloma drugs in clinical trials, though, so treatment options for people with IgD myeloma should continue to increase.

Here's some more information about the prognosis of people with IgD and other rare myelomas:
https://myelomabeacon.org/news/2011/01/12/the-majority-of-rare-myelomas-are-associated-with-poorer-survival-than-common-myelomas/

Best wishes to your uncle!