Yes Nancy, I'm currently having my 3rd blood transfusion as I write this., been in hospital since last Friday as blood counts were bad after cyclo week before. Feeling very light headed but better :) Gosh Joy, 90%!!!!!!! My specialist said I was critical at 52%! I feel quite melodramatic now :) I di...

Hi Nancy & Joy, My myeloma has not responded well to Velcade enough for the Australian Commonwealth to approve me for more...I went down from 52% to 31% in 3 months which sounds ok to me but I guess not good enough. In Australia we don't have to pay for Velcade if responding well in first 4 cycl...

Hello friends, I have had my high dose of cyclophosomide last week in view of stem cell harvesting today. I became quite sick with nausea & couldn't eat or drink for 3 days so remained in hospital a total of 5 days. I was surprised as I was told by transplant coordinator I would be fine. Back in...

Hello, I am really feeling for you going through this on your own in a foreign country. Is anyone supporting you? I'm in Australia, 42years old mother with babies, diagnosed early August, high risk 52% cancer cells, bone lesions,, anaemia but everything else ok apparently. I had to start treat urgen...

Thankyou very much for the feedback everybody xx

I am having a Hickman line put in and stem cell harvest next week. My family has tried to seize custody of my children (ages 10mths, 2 & 7) citing my anxiety & depression due to multiple myeloma that has recently surfaced. Mental health teams stepped in and said the biggest risk factor to my...

Well said Nancey, you know your stuff xx

Don't delay!

Good luck with your journey, I was 52% at diagnosis 3 months ago & my right arm was a mess from bone lesions & unusable. It was so sudden & frightening as it must be for you too. I'm on treatment working towards transplant, with slow progress but now down to 34%. I am told we have to wor...

Thankyou so much for the message Paul. I'm seeking a second opinion at a hospital in Sydney as I'm not happy with the conflicting information I have been given on myself at current hospital. We are working towards transplant but my progress is slow getting the para-protein down in time ( 1 month to ...