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Re: Subcutaneous Velcade injections - rash, redness & welts

by darnold on Sat Sep 06, 2014 6:41 pm

LOL, thanks, Mike! My Velcade "patches" faded quite a bit this week, although they are still there, even the ones from the July.

Dana A

darnold
Name: Dana Arnold
Who do you know with myeloma?: self
When were you/they diagnosed?: May 2009
Age at diagnosis: 52

Re: Subcutaneous Velcade injections - rash, redness & welts

by Dan in Phoenix on Tue Sep 09, 2014 2:33 pm

Hi Mike,

I was on subcutaneous Velcade shots for ~2 years. I started with my stomach but switched to alternate arms because these hurt less. I was getting them at the Mayo Clinic in Scottsdale, AZ.

Concerning the rash, it went away once the staff was trained to put a small (~100ul air bubble) into the syringe. When they inject the drug they also push a small amount of air into the tissue. It sounds worse then it was and didn't hurt or even feel it.

What the nurses said was that this reduced the "tracking" of Velcade back through the skin when the needle is withdrawn.

This may seem like a small thing to do but it completely got rid of any marks from the injections and reduced the lingering pain I sometimes felt at the site.

I suggest everyone who is getting subcutaneous Velcade ask the nurses to try this!

I hope this helps.

All my best,

Dan in Phoenix

Dan in Phoenix

Re: Subcutaneous Velcade injections - rash, redness & welts

by Ron Harvot on Thu Sep 11, 2014 2:58 pm

I get a red welt around the injection site that is between the size of a quarter to a half-dollar. I get my shots in the belly and rotate side to side. It takes about 2 weeks for the mark to fade and my shots are once every two weeks, so this is working for me.

Ron

Ron Harvot
Name: Ron Harvot
Who do you know with myeloma?: Myself
When were you/they diagnosed?: Feb 2009
Age at diagnosis: 56

Re: Subcutaneous Velcade injections - rash, redness & welts

by mikeb on Fri Sep 12, 2014 9:26 am

Dan, very interesting about the small air bubble in the syringe. I don't think my medical team did that when they gave me Velcade injections. Fortunately, I'm not on Velcade now, but will keep that in mind of Velcade is added to my treatment sometime in the future.

Mike

mikeb
Name: mikeb
Who do you know with myeloma?: self
When were you/they diagnosed?: 2009 (MGUS at that time)
Age at diagnosis: 55

Re: Subcutaneous Velcade injections - rash, redness & welts

by Dan in Phoenix on Fri Sep 12, 2014 11:29 am

Thanks Mike,

Like I mentioned, it worked for me.

Dan

Dan in Phoenix

Re: Subcutaneous Velcade injections - rash, redness & welts

by darnold on Thu Sep 18, 2014 10:54 am

Thanks for sharing that idea, Dan. I might be going back on additional Velcade treatments and will definitely ask about the air bubble.

Dana A

darnold
Name: Dana Arnold
Who do you know with myeloma?: self
When were you/they diagnosed?: May 2009
Age at diagnosis: 52

Re: Subcutaneous Velcade injections - rash, redness & welts

by Jmiller on Sun Oct 05, 2014 10:20 am

Dan,

I also thank you for sharing about the air bubble. My husband got a fairly large spot on his arm with this last injection. I will tell him to ask the nurses if they do this. I know the injection prior to this the nurse stated that she gives it slowly, as she was told this causes less reaction, and there was only very minor redness. I do not know how it was given this last time as I was not able to be with my husband.

Jmiller
Name: Harleygirl
Who do you know with myeloma?: My husband
When were you/they diagnosed?: January 2014
Age at diagnosis: 57

Re: Subcutaneous Velcade injections - rash, redness & welts

by CabinGirl on Wed Oct 15, 2014 10:57 am

I'm so glad the Beacon exists to answer these types of Questions to newly diagnosed patients. I received my first SubQ Velcade injection and within 24 hours had a large red "sunburn looking" rash occur at the injection site. Thank you for all the folks that take the time to post their information. Now I know this isn't just happening to me, but does occur to several multiple myeloma patients receiving Velcade injections.

CabinGirl
Who do you know with myeloma?: Self
When were you/they diagnosed?: Sept. 2014
Age at diagnosis: 57

Re: Subcutaneous Velcade injections - rash, redness & welts

by aatraveler on Sat Oct 25, 2014 10:46 am

I got terrific relief from Velcade subQ rash (and dex facial rash) from aloe. Take a leaf from your houseplant - or garden if you're so lucky - and squeeze the juice onto the area where it is irritated. Use as often as you like.

aatraveler

Re: Subcutaneous Velcade injections - rash, redness & welts

by gardengirl on Mon Jan 05, 2015 1:45 pm

Just want to mention that I asked for the "bubble" at my last Velcade injection and I had NO rash or pain. Thank you, Dan!!!

gardengirl
Name: gardengirl
Who do you know with myeloma?: Me
When were you/they diagnosed?: Nov. 2013
Age at diagnosis: 47

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