Myeloma On The High Plains: Old Dogs

Sometimes you can teach old dogs new tricks, and other times those old dogs just need to remember the tricks they already know.
I have been living with multiple myeloma for over five years, and trust me when I say that I am very grateful for this time. My gratefulness for life is hard to put into words. I love getting up in the morning and realizing that I am looking down at the green grass. That is tremendous and never taken for granted.
That is not to say, however, that life is always a bowl full of cherries. Oftentimes there is struggle. Struggle is one of life’s constants, coming in many shapes and sizes.
About two months ago, in the midst of this coronavirus pandemic (as if we multiple myeloma survivors had nothing else to struggle with), I was terribly nervous, anxious, and very unsettled. Struggle, it seemed, was piling on, and I could not get away from all of the “bad news.” It was unbelievable and certainly not very much fun. All of the messages put out by the media and others were negative and added more fuel to my nervous uncertainty.
Maybe I was a fool for thinking that this gift of life was really great. I mean, everything I heard was telling me that I should be fearful and panicked. And oftentimes, this news was communicated by someone who seemed glad to be telling me all of this. Crazy.
And then it happened. One morning, as I was looking in the mirror brushing my teeth, I had this mind-, heart-, and eye-opening revelation. In order for me to continue on without becoming a basket case of nerves, worry, and angst, I needed to make a change. I needed an adjustment.
I needed to embrace the struggle.
That’s right. I needed to embrace the struggle.
Rather than avoid the new reality, with the dangers and fears that were being highlighted each and every day from just about every outlet of information on the planet, I needed to embrace it and make it my own. I needed not to be fearful but accepting; I needed not to be panicked but responsible and caring. I needed to remember some of the lessons I had learned from my experience of having and living with multiple myeloma, and I needed to apply those lessons as I moved forward in this life with COVID-19.
First and foremost, having multiple myeloma reminds me that life is a gift no matter what the circumstances. I go to treatments, take injections, and try to survive because I cherish the gift of life regardless of the circumstances. Once I accepted that my life requires special adaptations, I moved forward. I let go of trying to manipulate the situation to meet some sort of preconceived idea of what I was owed or what my life should look like. I let go thinking that I, “Mark The Almighty,” was the man with the plan. I realized that life happens, and it is my choice to take it or leave it.
Spending a lot of energy judging the unfairness or cruelty of my particular situation, be it my multiple myeloma or this pandemic, was useless, unproductive, draining, and a bit foolish.
By embracing my life as it comes to me and moving gently with gratefulness to the circumstances of my life, I recognized that “struggle” was no longer present. The struggle was only present if I defined my circumstances as struggle.
Certainly my life has pain, sadness, frustration, disappointment, and testing situations. But that is life, plain and simple. Having multiple myeloma taught me that and keeps teaching me that. I remembered that the emotional and physical “adventures” or “escapades” that I have encountered often bring so much love, caring, kindness, and understanding to my life. It was and is such a humbling experience because most, if not all, of that good encountered occurs without direct input from myself if I am aware of its presence.
My life circumstance is only a struggle if I fight it, wrangle with it, and try to put a hot branding iron on it labeling it as struggle.
Having multiple myeloma, or for that matter any other challenging circumstance in my life, is a great reminder that my ego-driven perception of how things “should” be is pretty worthless. What is not worthless is an awareness or mindfulness of the goodness of the gift of life and all that we get to experience regardless of whether or not it complies or corresponds with some preconceived idea as to how it should be or what we are owed.
I believe that not a one of us asked to have multiple myeloma. And, of course, no one asked to have it in conjunction with all of the others challenges that life brings on a daily basis.
But we love life, we love the gift.
Nothing new. As “old dogs” – and I apologize to those of you who are not old dogs, but I think you will get the message – we certainly could benefit from remembering some of our old tricks.
Mark Pajak is a multiple myeloma patient and columnist here at The Myeloma Beacon. His column is published once a month.
If you are interested in writing a regular column to be published by The Myeloma Beacon, please contact the Beacon team at .
This is brilliant! Thanks so much, Mark, for sharing your insights.
And thanks to The Myeloma Beacon for publishing your column!
Thanks for the thoughtful column, Mark. Indeed, there have been health challenges for everyone this year. I don't exactly think it is great, but at least we are in a position to understand that we must be careful about the pandemic, as well as our health challenges. Good luck with everything!
Mark,
Fantastic article. I’ve shared it with others and bookmarked it for future reference. I’ve drawn similar comparisons between myeloma and COVID-19, but this was a different perspective. Best of health.
Craig
Thanks for another great column, Mark. The pandemic was just another black cloud over our heads. I have to admit, it made me feel hopeless for a while. Scared, too! Eventually, like you, this old dog re-thought the situation. We get to choose how we react to things, and changing our perception of the virus can help us in dealing with it. We all deal with myeloma; we are all warriors! We’ve got this. Never give up!
Great article!