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Myeloma On The High Plains: Old Dogs

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Published: Jun 15, 2020 5:22 pm

Sometimes you can teach old dogs new tricks, and other times those old dogs just need to remember the tricks they already know.

I have been living with mul­ti­ple myeloma for over five years, and trust me when I say that I am very grateful for this time. My gratefulness for life is hard to put into words. I love getting up in the morn­ing and realizing that I am looking down at the green grass. That is tre­men­dous and never taken for granted.

That is not to say, how­ever, that life is always a bowl full of cherries. Often­times there is strug­gle. Strug­gle is one of life’s con­stants, com­ing in many shapes and sizes.

About two months ago, in the midst of this coro­na­virus pan­dem­ic (as if we mul­ti­ple myeloma sur­vivors had nothing else to strug­gle with), I was terribly nervous, anxious, and very unsettled. Struggle, it seemed, was piling on, and I could not get away from all of the “bad news.” It was unbelievable and cer­tainly not very much fun. All of the mes­sages put out by the media and others were neg­a­tive and added more fuel to my nervous un­cer­tainty.

Maybe I was a fool for thinking that this gift of life was really great. I mean, everything I heard was telling me that I should be fearful and panicked. And oftentimes, this news was com­mu­ni­cated by someone who seemed glad to be telling me all of this. Crazy.

And then it hap­pened. One morn­ing, as I was looking in the mirror brushing my teeth, I had this mind-, heart-, and eye-opening revelation. In order for me to con­tinue on without becoming a basket case of nerves, worry, and angst, I needed to make a change. I needed an ad­just­ment.

I needed to embrace the strug­gle.

That’s right. I needed to embrace the strug­gle.

Rather than avoid the new reality, with the dangers and fears that were being highlighted each and every day from just about every outlet of in­for­ma­tion on the planet, I needed to embrace it and make it my own. I needed not to be fearful but ac­cepting; I needed not to be panicked but responsible and car­ing. I needed to remember some of the lessons I had learned from my ex­peri­ence of having and living with mul­ti­ple myeloma, and I needed to apply those lessons as I moved for­ward in this life with COVID-19.

First and foremost, having mul­ti­ple myeloma reminds me that life is a gift no mat­ter what the cir­cum­stances. I go to treat­ments, take in­jec­tions, and try to sur­vive because I cherish the gift of life re­gard­less of the cir­cum­stances. Once I ac­cepted that my life re­quires spe­cial adaptations, I moved for­ward. I let go of trying to manipulate the situation to meet some sort of preconceived idea of what I was owed or what my life should look like. I let go thinking that I, “Mark The Almighty,” was the man with the plan. I realized that life hap­pens, and it is my choice to take it or leave it.

Spending a lot of energy judging the unfairness or cruelty of my par­tic­u­lar situation, be it my mul­ti­ple myeloma or this pan­dem­ic, was useless, unproductive, draining, and a bit foolish.

By embracing my life as it comes to me and moving gently with gratefulness to the cir­cum­stances of my life, I recog­nized that “struggle” was no longer present. The strug­gle was only present if I defined my cir­cum­stances as strug­gle.

Certainly my life has pain, sadness, frustration, disappointment, and testing situations. But that is life, plain and simple. Having mul­ti­ple myeloma taught me that and keeps teaching me that. I remembered that the emotional and physical “adventures” or “escapades” that I have encountered often bring so much love, car­ing, kindness, and under­stand­ing to my life. It was and is such a humbling ex­peri­ence because most, if not all, of that good encountered oc­curs without direct input from myself if I am aware of its presence.

My life cir­cum­stance is only a strug­gle if I fight it, wrangle with it, and try to put a hot branding iron on it labeling it as strug­gle.

Having mul­ti­ple myeloma, or for that mat­ter any other chal­leng­ing cir­cum­stance in my life, is a great reminder that my ego-driven perception of how things “should” be is pretty worth­less. What is not worth­less is an awareness or mindfulness of the goodness of the gift of life and all that we get to ex­peri­ence re­gard­less of whether or not it complies or corresponds with some preconceived idea as to how it should be or what we are owed.

I be­lieve that not a one of us asked to have mul­ti­ple myeloma. And, of course, no one asked to have it in conjunction with all of the others chal­lenges that life brings on a daily basis. 

But we love life, we love the gift.

Nothing new. As “old dogs” – and I apologize to those of you who are not old dogs, but I think you will get the mes­sage – we cer­tainly could ben­e­fit from remembering some of our old tricks.

Mark Pajak is a mul­ti­ple myeloma patient and columnist here at The Myeloma Beacon. His column is pub­lished once a month.

If you are interested in writing a reg­u­lar column to be pub­lished by The Myeloma Beacon, please contact the Beacon team at .

Photo of Mark Pajak, monthly columnist at The Myeloma Beacon.
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5 Comments »

  • Lisa R said:

    This is brilliant! Thanks so much, Mark, for sharing your insights.

    And thanks to The Myeloma Beacon for publishing your column!

  • Nancy Shamanna said:

    Thanks for the thoughtful column, Mark. Indeed, there have been health challenges for everyone this year. I don't exactly think it is great, but at least we are in a position to understand that we must be careful about the pandemic, as well as our health challenges. Good luck with everything!

  • Craig Volk said:

    Mark,

    Fantastic article. I’ve shared it with others and bookmarked it for future reference. I’ve drawn similar comparisons between myeloma and COVID-19, but this was a different perspective. Best of health.

    Craig

  • Patty Muckala said:

    Thanks for another great column, Mark. The pandemic was just another black cloud over our heads. I have to admit, it made me feel hopeless for a while. Scared, too! Eventually, like you, this old dog re-thought the situation. We get to choose how we react to things, and changing our perception of the virus can help us in dealing with it. We all deal with myeloma; we are all warriors! We’ve got this. Never give up!

  • Susan Mandel said:

    Great article!