Myeloma, Party Of Two: Letters To Santa

My husband Daniel and I love visiting New York City at Christmas time. No other city seems to decorate quite so well, and we find all the festivity is just what the doctor ordered to get us in the holiday spirit.
We made our familiar pilgrimage to New York earlier this month, and we visited a major department store to see the holiday windows and all the decorations they had hanging inside.
The store’s theme this year is Believe in the Magic of Christmas, and while I understand that it’s a department store’s job to make me feel sentimental (so that I’ll spend my Christmas dollars there), I have to tell you, their plan worked.
Beautiful life-sized orbs hung from the ceiling of the store, and each breathtaking centerpiece was surrounded by countless yards of red bows and ribbon, and yards of gold garland hung like Christmas bunting from all the rafters.
Each orb was like a snow globe, containing beautiful scenes inside with things like brightly wrapped foil gifts, children skating in wintry cityscapes, or moving red and gold choo-choo trains circumnavigating the North Pole. A one word message labeled each globe. The words read: Imagine. Wish. Dream. Believe. It was truly breathtaking.
In the center of the store stood a large red mailbox labeled SANTA MAIL in block letters with Believe in bright cursive script above it. Tables were set up with stationary for letters to Santa, and throngs of children and adults alike were scribbling their wishes to Santa. For each letter written, the store was donating one dollar to the Make A Wish foundation, so everyone seemed to be joining in the fun.
As I stood waiting for my turn to fill out a letter to Santa, I couldn’t help but see some of the Christmas wishes around me. Little kids were writing about toys, bicycles, and game consoles. One set of parents giggled as they wished to win the lottery. I looked up to see if Dan was still where I had left him, waiting to take my picture with the mailbox.
He stood there smiling at me, warm with the merriment of the season, and the exuberant children clamoring to see Santa upstairs.
I smiled back at him, capturing the moment with my mental camera. It’s moments like these when I still can’t believe that myeloma is growing inside of him. To me, he’s the same handsome young man that I married 11 years ago.
I didn’t need to wonder what I’d wish for. As I began to write my letter to Santa, I thought about Daniel and so many others like him. People like you and your families. Caregivers and spouses like me.
As I wrote my letter, I didn't ask Santa for a new purse or fancy earrings. My Christmas wish for Santa was written simply, and with all the hope of a child.
Dear Santa,
All I want for Christmas is a cure for multiple myeloma. I believe.
Please help me. Hope for a cure.
Merry Christmas,
Tabitha Burns
It was one of those times. One of the unplanned moments when living with myeloma catches you off-guard when you least expect it.
The good news is that we don’t have to rely on letters to Santa as our source for hope.
This year alone we’ve seen the United States Food and Drug Administration approve Farydak (panobinostat) in February, Darzalex (daratumumab) and Ninlaro (ixazomib) in November, and then Empliciti (elotuzumab) this month.
Clinical trials are taking place in research hospitals all over the world as specialists, researchers, and pharmaceutical companies test single-agent and multi-agent treatments, often targeting those who have already had, or may be refractory to, multiple lines of therapy.
The treatment landscape is changing for myeloma patients.
In recent years we’ve seen new therapies, new classes of drugs, and now some specialists even look to the day when advanced blood or urine testing techniques may make bone marrow aspirations obsolete.
I do believe. I believe that a cure for myeloma, or at the very least a sustainable, long-term remission, will happen for patients in my lifetime.
There is a good possibility that I was put on this earth for this purpose. To encourage. To believe. To help my husband on this journey. And I’m good with that.
I usher in this holiday season inviting you to join me in daring to Imagine. Wish. Dream. Believe. And yes, hope. Hope that 2016 is the year to wipe out multiple myeloma.
Merry Christmas from Daniel and me. May God bless you and keep you all.
Tabitha Tow Burns writes a monthly column for The Myeloma Beacon. Her husband Daniel was diagnosed with smoldering myeloma in 2012 after initially being told he had MGUS. You can view a list of her previously published columns here.
If you are interested in writing a regular column for The Myeloma Beacon, please contact the Beacon team at .
I love this paragraph:
"It was one of those times. One of the unplanned moments when living with myeloma catches you off-guard when you least expect it."
Here's to all your wishes coming true!
Another great article, Tabitha. I believe, too!! Wishing everyone a happy and healthy year in 2016.
Thank you Tabitha for your letter of believing and hope.
I do believe in God and Santa. Most of all, I believe that multiple myeloma will totally consume my body to the point that all or any treatment will no longer have an effect.
I do have Hope that a cure is found so others have a different outlook once diagnosed with this disease.
Tabitha, your Xmas article made me cry happy tears. It was simply beautiful and made me, as a carer, feel not so alone. Thank you and may your wish come true.
Take care.
Thank you all for your comments. I'm so glad that my recent experience resonated with you all. Kim, I've been thinking about your comment all night long. Sometimes I think it's a blessing that the crystal ball is blank – that the future is a mystery to us all. A new world of possibilities awaits in 2016, and we're just a few days away. Hang tight everybody. Hoping the new year brings you what you wish for. Blessings and peace to us all.
What an absolutely beautifully written article once again, Tabitha. I do hope and have faith that all the new treatments will bring about a cure or a sustainable maintenance regimen. After reading your amazingly inspirational words, they traveled to my core and gave me so much more hope, faith, and belief that this disease will be eradicated sooner rather than later. I pray this for the man who will always hold my heart and for all others affected by multiple myeloma. Thank you, and I wish your family a healthy New Year filled with positive dreams and reality. I'm grateful you were able to truly "feel" the beauty, magic, and inspiration you needed in that New York City department store. God bless each and every one of you affected in various ways by multiple myeloma. I believe in miracles.
Thanks Tabitha, super article as usual. I'm from Ireland and we are usually a little behind when we receive approval for the same drugs (we need EU approval also). It still amazes me the smart folks out there that are creating these drugs, we are so completely beholden to them. I'm a myeloma patient but can appreciate first hand the role of my partner in my continuing battle with myeloma since my diagnosis 3 years ago. Without this help from people like you, many of us would not still be here.
All the best to you and your your husband in the New Year and beyond and please keep up the positive vibes for us all !
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