Myeloma, Party Of Two: My Thanksgiving Story

As we draw nearer to Thanksgiving, I’ve been thinking about how myeloma patients will spend the holiday. I suspect that many of you will be with family and friends, and some of you may have some bedside celebrations with your hospital staff.
Now that myeloma has entered your world, I wonder if you see the holidays in a new light – illuminating less of what’s on the table, and more of who’s sitting at it.
I know it has for me, but I hadn’t realized how much so until I finished the book The Bucolic Plague by Josh Kilmer-Purcell. It reminded me of my pre-caregiver self, a time when I was the “hostess with the most-ess” and I thought of entertaining as an art form.
The Bucolic Plague is a comedic memoir about two big-city slickers who realized their dream of being “gentlemen farmers” when they purchased the Beekman Mansion, a historic farm several hours outside of Manhattan. Together, advertising executive Josh and his partner Brent strive to create a “Martha Stewart-approved life” whilst juggling filth-splattered goats, dead zombie house flies, and professional disappointments.
In one particularly moving passage, Josh talks about ruining the holidays in the pursuit of unattainable “Hallmark moments” – these moments in which he desperately tried to recreate the perfect sentimental moment that he saw in too many Hallmark commercials. They were moments that didn’t actually remind him of his childhood, but rather they were what he wished his childhood had been. It was in the pursuit of this fabricated perfection that he realized he had missed the point of “his best life” altogether.
In the end, the couple discovered that striving toward perfection – creating the perfectly restored interior, the best historic garden, and flawless photo-ready food – meant nothing without sharing the journey together, even if their best efforts were flawed or somehow limited by their differing perspectives.
I could relate to it all too well.
Before my husband Daniel was diagnosed with smoldering myeloma in 2012, he and I went through a lot of effort to restore our own historic home, a prairie-style American Foursquare built in 1914.
Back then, Thanksgiving wasn’t just a holiday; it was accompanied by what Daniel referred to as the “Great Thanksgiving Panic” – a month of anxiety, lists, and chores in anticipation of the perfectly roasted turkey event set in the perfect house.
I spent every October running around the house planning for the big event. I would begin by categorizing all the improvements that needed to be made before we had guests come to stay. Soon the Great Thanksgiving Panic would come alive in spreadsheets, documenting all the tasks to be done – freshly painted rooms, gardens overhauled with fall plantings, and refinished period furniture were added to the list so that every room would be a beautiful, magazine-ready display.
And it didn’t end there. My “Martha-approved” holiday would have me running all over town finding the perfect centerpiece for the table, spending hours ironing monogrammed napkins, and searching for recipes that would take me from cold pizza warmer-upper to full-fledged chef overnight.
It wasn’t just about creating a holiday meal for me. It was about creating a perfect memory, a snapshot in time documenting our perfect day.
But with Daniel’s diagnosis came an awareness that many things we once thought important were far less so than we first estimated. Soon thereafter, crafting the perfect holiday memory just didn’t seem to matter much anymore.
What I did want was more time with us, with our loved ones, sitting around a table – anyone’s table – where the focus wasn’t how I found the damask tablecloth, but rather the laughter we shared.
I still love to entertain, but the “Great Thanksgiving Panic” is a distant memory. I no longer obsess about William Morris patterned curtains or art nouveau candlesticks. I don’t have a preference on where or what we eat. What I do have is the greatest of all treasures, and it’s not counted in china or lump-free gravy.
It’s not about the decorations or the food, or being the perfect hostess. Myeloma has grounded me securely in the knowledge of what the holidays should be about – sharing time with those you love.
We have a tradition at Thanksgiving where each person at the table shares what he or she is thankful for, and while my response hasn’t changed much over the years, I would still like to share mine with you.
This year I am most thankful for my wonderful husband and for the health that he has now. I’m thankful that we can sit at the same table and laugh with our friends and family. I’m thankful for the blessings that we’ve been given today, and the hope of a cure tomorrow. Most of all, I’m thankful for our less-than-perfect Thanksgivings, and I pray that we’ll have many, many more to share.
Tabitha Tow Burns writes a monthly column for The Myeloma Beacon. Her husband Daniel was diagnosed with smoldering myeloma in 2012 after initially being told he had MGUS. You can view a list of her previously published columns here.
If you are interested in writing a regular column for The Myeloma Beacon, please contact the Beacon team at .
Tabitha - As usual, another eloquent, thought-provoking column! I hope that your husband's myeloma stays smoldering, as often happens. This is my 3rd Thanksgiving since being diagnosed with multiple myeloma, and I've found that routine, time-consuming things that "had" to be done during the holiday hustle and bustle are now enjoyable and a chance to make memories. I just got done putting up our Christmas lights and can't wait for it to turn dark to see what my son and I have created this year!
Tabitha, I love your description of the 'Martha Stewart' type striving towards outward perfection! These are ideals in publications. Probably they have a team of ten or so preparing those supposedly simple displays! Anyways, perfection is not my strong suit, but we had a wonderful Thanksgiving in October and I hope that you do too. (I like William Morris' artwork from the 1800's and have books on needlework based on his designs and some WM quilt fabric too!)
I always loved Thanksgiving with family around the table laughing and and eating wonderful food. Though the people around the table have changed, the feelings I had pre multiple myeloma are exactly the same today post SCT. What is interesting, is that the craziness is gone and a sense of peace has taken its place, and a deep gratitude for being well ... and for the extraordinary doctors and nurses who worked so hard to get me to this place. Happy Thanksgiving.
Steve, I'm so glad to hear that you're enjoying family time, hanging Christmas lights, and doing so well! I especially enjoy your columns, because you began your journey smoldering too. It gives me hope to see how you have transitioned to "the other side" and still maintain a healthy and positive lifestyle. Thanks so much for sharing your experiences with us!
Nancy, I love that you are familiar with William Morris fabrics! I bet that we'd enjoy antiquing together sometime. If you're ever in my neck of the woods, you've got an open invitation!
Carol, I couldn't agree more with you about how nice it is to celebrate all the wonderful, heartwarming aspects of Thanksgiving without any of the stress!
Thank you so much for your comments. I hope that you all have had a wonderful holiday!
Thank you - I loved this.
Wonderful article from the heart. Celebrating with those you love creates much better memories than any food presentation could. Very well said, Tabitha. Thank you for a great article to help us focus on what's really important.
I was just diagnosed with multiple myeloma this week. But I had a tumor removed 2 months ago from my spine and cord. We thought is was plasmacytoma, but no it is multiple myeloma. I have learned to let go of the holiday perfectness that I had done for many years for my family and loved doing it. My husband passed away 5 years ago and my daughter went off to college at NYU and I moved to the beach in Florida. My family always came here for Christmas and I decked everything out on a smaller basis. This year with my multiple myeloma I will be moving back to my family home in Atlanta. So in the next 3 weeks, I will get a wreath on the door, a small tree for the coffee table, have my Mom here and my daughter home from college and MOVE!! Merry Christmas. I have learned to let it go and be thankful for the ones I love!