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Pat’s Cracked Cup: Finding Balance In The Multiple Myeloma Journey

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Published: Jan 24, 2013 12:52 pm

One of my favorite sayings is a Chinese proverb that I have previously quoted here, but it is worth mentioning again. “It is easy to get a thousand prescriptions, but hard to get one single remedy.”

Wandering through life with my partner, multiple myeloma, has been a call for just the right gifts to help me along. Finding what we need to thrive is a mysterious task – trusting that these right gifts will come our way may be the key to receiving them.

A Buddhist monk wears a robe and carries a bowl, symbols of two life-sustaining necessities. Externally, we need clothing and shelter. Internally, we rely upon food and water. The monk holds out his begging bowl and gratefully accepts all that is offered, trusting that he will receive a sufficient amount to survive.

I have recently been inspired by the bowl metaphor after reading the book “Everyday Sacred” by Sue Bender.

Each one of us begins as an empty bowl to be filled by our living days. Too much or too little tends to cause problems. We live in an age of excess, abundance, and plenty. Still, we fear not having what we need, as we often have too much of the wrong things.

In her book, Bender suggests an exercise that I decided to try. I wrapped an old ceramic bowl in a towel and hit it against the floor to intentionally break it. The task was to reassemble the pieces with cement. I managed to cobble several large pieces back together, but there remains a hole in the bottom where the shards were too fragmented to attach. This broken bowl exercise closely resembles my personal process of recovery and learning to appreciate becoming whole again. The hole in the bottom may be a way to quickly eliminate all that is unnecessary – to be left with just enough.

The “cracked cup” mentioned in the title of my columns also refers to a piece of pottery of mine that represents my own fragile yet hardy condition – imperfect, worn, yet fully functional.

Prior to my multiple myeloma diagnosis, I was unaware of my plasma cells converting to myeloma cells. Excess proteins made by the myeloma cells began to disturb the delicate balance within. The myeloma cells were quietly crowding out the healthy plasma cells that make precious antibodies deep inside my bone marrow.

I had a good robe – a solid supply of clothing and sturdy shelter. I had a bowl full of food and water, but the bowl of a western woman requires a more varied blend of ingredients. Mine may have had had too many chemicals, too much work, and too much stress – but not enough companionship.

After diagnosis, my remedy was trust. I held out my empty bowl for medicine, care, and comfort. I trusted that just the right dosages of chemotherapy would be administered. I trusted that the proper needle size would be used for infusions and blood draws. I trusted that I would somehow receive suitable nourishment. I also trusted that family and friends would find their own ways to help, support, and offer inspirational news.

The experience of living with multiple myeloma has taught me to be alert to the small rumblings within.

After my autologous stem cell transplant, my doctor assured me that I would gradually feel better each day, but it would take an entire year to truly recover. At the time, 365 days felt like an eternity. That was almost nine years ago.

Filling my bowl after that was trial and error.

I initially took the advice of another woman recovering from a serious illness who said, “I baby myself.”

My nourishment in recent years has included books, movies, meditation, relocation to a life in a different home in a different city, and new work. I have noticed a natural drift away from those who do not brighten me and an attraction to new friends. I have had the opportunity to live in the same city as my aging mother and to be closer to family.

During this winter season of colds and flu, I hope to receive just the right immune function to fight off bugs and viruses. I trust that I will secure sure footing on icy paths to avoid bone-breaking falls. I am cheered on to know that my empty bowl continues to be filled with friendship and laughter. This remedy of finding just enough balances the loss, fear, and struggle of ordinary life – with or without multiple myeloma.

Finding balance is receiving what is offered, as well as giving away whenever possible – having “just enough.” I help fill the bowls of others around me as I receive their offerings. When asked to help with something, I try to comply. Giving away small amounts of money to those who ask for help with various causes or projects is my way to return the generosity that has been given to me.

My process of accepting what is offered into my empty bowl is not simply waiting to be given to. It is more of matter of keen listening and watching to recognize important information or opportunities in order to best position myself to receive these gifts. I am a western woman after all – not a Buddhist monk.

Pat Pendleton is a multiple myeloma patient and columnist at The Myeloma Beacon. You can view a list of her columns here.

If you are interested in writing a regular column for The Myeloma Beacon, please contact the Beacon team at .

Photo of Pat Pendleton, monthly columnist at The Myeloma Beacon.
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5 Comments »

  • Ron Harvot said:

    Excellent! What a great column Pat. I wish I had half of your insight and wisdom.

    Ron

  • Lydia Comty said:

    I am not officially a Buddhist, nor do I consider myself a member, as I perceive membership, of any organized religion . However, I love it when my friends assure me that their prayers are with me. Guess I would love it if they told me they took every opportunity to "howl at the moon" on my behalf. I have to credit my dear friend, who did not make it through her bout with ovarian cancer in spite of all our prayers and "howlings",for this belief of mine.

    Tonight, I was having a conversation with my loving husband when I suddenly noted that our dear"smiling Buddha" statue was (subconsciously) placed on our kitchen cupboard so that it seemed to be focusing light on the wee corner where we were expressing the joy that it is to be living in this new place that we are learning to appreciate after a painful year of wrenching ourselves away from our beloved home situated on land we loved. Now we are coming to terms with condo living to be nearer to our medical supports, but most of all to be near our daughter, her husband, and our youngest two grandchildren who give us so much joy.

    I think that what I need to learn from this is that whatever "faith construct" becomes our life's guiding light and gives us optimism and joy in the midst of struggle is worthy of acceptance and respect.

    Thank you, Pat, for "putting yourself" out there, sharing another way of handling this strange and unexpected disease as part of our life's journey.

    Love to you all, Lydia

  • nancy shamanna said:

    Hi Pat, Thanks for your lovely column. I always enjoy reading your work...you are such a philosopher! I have a 'singing' bowl...It is a metal bowl with a wooden stick. You run the stick around the rim of the bowl and the metal starts to make a pleasant resounding song. I got it in Vancouver's Chinatown. That might be similar to your metaphorical 'bowl'. I am a big fan of Leonard Cohen..consider this stanza from his song 'Anthem'....

    'Ring the bells that still can ring
    Forget your perfect offerings
    There is a crack, a crack, in everything....
    That's how the light gets in.

    (I am so absent minded sometimes that I think you may have quoted this in a column last year...if so, I just want to repeat it again. it resonates with me.)

  • Jan Stafl said:

    As Leonard Cohen sings, Halelujah, Halelujah! A poet turned songwriter extraordinaire. Van Morrison, Peter Gabriel and Bruce Cockburn are inspirational is this manner as well. Music like that heals the soul. Thank you for an artistic entry that looks at the big picture. It is what it is, now what can we do about it?
    I like to allow synchronicity to be my lead, and let life unfold as it will. Meditation is a wonderful tool to get our egos out of the way to allow that to happen. As John O'Donohue wrote, "I would love to live like a river flows, carried by the surprise of its own unfolding". Blessings to all on their journey! Jan

  • Judy Van Meter said:

    Pat, I love the way you write. I always look forward to your columns. Never depressing. I read them over & over unlike any other. Thanks, Judy