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Big Sis In Burgundy: Be An Inspiration

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Published: Mar 12, 2012 10:02 am

Last Tuesday, I made my 13th trip to Pittsburgh since last April when my sister Deana was diagnosed with multiple myeloma. When I think back to my April trip, I am so thankful for how far we have come.

That day last year when I sat on the plane, I was working hard to keep my composure and ready myself for whatever battle we faced.  My limited research upon hearing Deana’s diagnosis had me very worried, and I prayed we would find out that the doctors were wrong.

As many of you know, the doctors were right, and in fact, Deana presented with a very aggressive case of multiple myeloma.  When we saw Deana’s oncologist Dr. Agha yesterday, he said he believes Deana may have had myeloma for four or five years.  Imagine!

When I boarded the plane Tuesday in Atlanta, it was with a very different spirit.  Deana has been in remission for six weeks, and this was our first doctor visit as part of the maintenance phase.  My happiness level has been off the charts since January 25 when Deana received the news about her remission.

Perspective changes dramatically when you’ve faced cancer.  In the beginning, when I would find myself frustrated or upset about trivial matters, I would remind myself that whatever was troubling me was minor compared to the cancer battle.  Now, when in the same circumstance, I instead focus on the fact that my sister is in remission and the rest is minor detail.

While I still would have preferred my sister never have had to go through this, there have been some unexpected gifts along the way.

Tuesday evening, Deana and I went to a pasta-making class.  We immediately started chatting with other participants, helped served wine as people arrived, and in short, had a terrific evening.  My heart filled with joy each time I would look at Deana and see her smiling or laughing at something the colorful chef said.  We ate and drank until we could eat and drink no more, and when we left, Deana proclaimed it fun.  She also said that there was no way she could have stood for that long several months ago.  At that moment, I again paused to give thanks for our progress.  My sister is still here, and my sister is doing great.

During my visit, I had the opportunity to visit Gilda’s Club of Western Pennsylvania, where Deana has attended support groups, guided relaxation classes, and other events.  The club was so warm and welcoming, and we saw a few people Deana has met through the activities there.  The environment exudes positivity.  What a wonderful place for those facing cancer, whether patient or loved one, to gather and gain the strength that is found in numbers.

At our Wednesday appointment with Dr. Agha, he expressed delight at how well Deana is doing and has suggested that she now change her mindset from that of a patient to that of being an inspiration to others.  Deana has already been reaching out to multiple myeloma patients who are in earlier phases of their treatment, and she’s also developed a closer relationship with a woman fighting breast cancer.  I am confident she will continue to pay it forward.  But, Dr. Agha was clear that this should be a hobby and she should get back to her life.

When Deana and I had lunch following the appointment, she looked at me and declared, with perhaps a hint of question in her voice, “So this was just a blip in my life.”

From your mouth to God’s ears, dear Deana.  Go forth and be an inspiration.  I am so proud to be your big sister.

Deborah Dietzler is a columnist at The Myeloma Beacon. Her sister Deana has multiple myeloma.

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Photo of Deborah Dietzler (center), biweekly columnist at The Myeloma Beacon, and her sisters Deana (left) and Darrie (right).
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4 Comments »

  • nancy shamanna said:

    Hi Deb...what a difference a year can make! So glad to hear of the successes you have reached and that you are both continuing to try to make a difference for other patients too.

  • Christine said:

    I know, it is crazy how there can be a "gift" in the middle of all this, but I find the same is true. You are blessed to have each other. May your sisters remission last for many years to come.

  • Dale said:

    As I read this, it was through tears of happiness. I couldn't be happier and know that Deana has been, and will continue to be, be an inspiration to many.

  • Robyn said:

    So happy to read this update! Deana most certainly is an inspiration, as are you.