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Big Sis In Burgundy: Christmas Came Early

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Published: Dec 19, 2011 4:16 pm

It is hard to believe Christmas is here.  I’ve mentioned to some friends that, since my sister Deana’s myeloma diagnosis on April 27 this year, I’ve had little sense of the passage of seasons and holidays. I suspect many of you understand. 

Since my last column, Deana, who underwent a stem cell transplant the day before Thanksgiving, has been released from the hospital. So Christmas came early for us. 

When Deana was admitted for her transplant, one of the doctors came by the first day (Day Minus Two) and told us that it was very likely they would discharge Deana on Day 14 or 15 after the transplant. We were very surprised at this possibility, as the original plan was for her to stay in the hospital for a month.

At the transplant class, the coordinator mentioned a shorter stay. However, since Deana had heard from her doctor -- and had it repeated by the coordinator we met on the day she was cleared for transplant -- that we needed to be prepared for a month’s stay, we did just that.

Deana and I decided that we wouldn’t mention this new information to anyone as we didn’t want to get hopes up.  Better to under-promise and over-deliver, as the business mantra goes.

Although Deana at first thought the time in the hospital would be akin to a month’s vacation, she was getting cabin fever after only a few days.  Thus, it was motivating for her to know, in the back of her mind, that the time in the hospital could be cut in half if things went well,.

Time and again, Deana was told she was the least sick person in the stem cell transplant unit, and all hospital staff who worked with her exuded optimism that she’d be gone before the Christmas party, including the visit from Santa, on December 14.  Turns out, this optimism was warranted.

On Day 14, Deana emailed me to let me know that it looked like she’d be discharged the next day.  Just in case things didn’t go as planned, we continued to keep mum. Keeping good secrets is hard for me, because when I’m excited, I desperately want to share good news.

During Deana’s hospitalization, our mother would visit in the late morning on most days.  She’d bring two-and-a-half year-old Gregory so he could spend time with his mommy prior to his afternoon nap. These visits certainly helped mother and son!

On the morning of Day 15, Deana called home to tell Mom that she should hold off on the morning visit, as it looked like she’d be released in the afternoon, so Mom would be needed to come get her.  Needless to say, our mother was most excited – and it was really terrific to be able to give Mom a good surprise.

Deana has been home for 10 days, and she is doing well.  Her oncologist saw her last week and told her he is very pleased with her progress.  She’s going to get to enjoy Christmas with her family, which I do believe will hold very special meaning this year.

The next oncologist appointment is December 28, at which time the next bone marrow biopsy will be scheduled.  It appears that we’ll have to wait until early February for a report on where we stand in our battle against myeloma. I have a good feeling, of the women’s intuition sort, that we are close to putting this disease in the best place we can at this time – remission.

As I prepare for the holiday week, there is no need for presents under my tree. I am grateful for the gift of Deana’s life and her presence in mine.  I am grateful for the work of the researchers making inroads into better treatments and, ultimately, a cure -- which is a gift to humanity that can never be repaid.   

If there has been one gift to come out of my experiences of the last eight months, it has been the gift of greater perspective about what’s truly important.

My very best to you and your families as you celebrate the holidays and prepare for the arrival of 2012.

Deborah Dietzler is a columnist at The Myeloma Beacon. Her sister Deana has multiple myeloma.

If you are interested in writing a regular column to be published by The Myeloma Beacon, please contact the Beacon team at .

Photo of Deborah Dietzler (center), biweekly columnist at The Myeloma Beacon, and her sisters Deana (left) and Darrie (right).
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3 Comments »

  • Debi said:

    Deborah,
    I know the blessed joy of having your sis home for Christmas and having her transplant go so well, is the best Christmas present any family could hope for. We know the relief, the gratitude, and the flood of emotions that will forever mark your special family celebrations now, because my husband is two years post transplant, this January.
    We rejoice with your family! May God bless you all with health and happiness throughout Christmas and the New Year!
    Kind regards,
    Debi and Jamey

  • Nancy S. said:

    These are very glad tidings of your family's news. Hope that Deana and yourselves really enjoy the season with the children and get a chance to relax and unwind after the busyness of being in hospital. Take good care of yourselves ... happy holidays!

  • Gaetan Chevalier said:

    Deborah,

    I read with great interest all of your articles. I find a lot of great information that will help me for my autologous stem cell transplant (SCT) & hi dose chemotherapy scheduled for mid January 2012.
    Like your sister, I was diagnosed in April 2011 but for a different illness that is not curable, the name is : amyloidosis AL (primary amyloidosis) and the only organ affected right now is my liver.

    AL amyloidosis is a hematological disorder, associated with plasma cell dyscrasia that means an abnormal condition of blood cells, in which extra-cellular insoluble protein (amyloid) fibrils accumulate in various tissues and organs throughout the body.

    Amyloid fibrils can affect any major organ in the body. The most common organs affected are the kidney, heart, liver, and autonomic or peripheral nerves.

    AL amyloidosis is a rare disease; only 1200 to 3200 new cases are reported each year in the United States. It is similar in many ways to multiple myeloma, another plasma cell dyscrasia.

    Why I read websites abut multiple myeloma? Because treatment for amyloidosis is similar to treatment for multiple myeloma. “Currently, many treatments can be used for both [multiple myeloma and amyloidosis]” said Dr. Fonseca. There is little information about amyloidosis,it is another reason I read a lot about multiple myeloma.

    In October 1991 I was diagnosed having a non-Hodgkin lymphoma, and his name is diffuse large B-cell lymphoma. I am in complete remission of this cancer since that time!

    I am very glad to see that Deana is doing well especially for her stem cell transplant. You are so generous for her. You are great for doing all those things, I admire you.

    So thanks a lot for sharing, and I am sure it helps a lot of other people in many ways. Continue your great work!

    I wish for Deana and all your families a merry christmas and for the new year good health and happiness.

    Excuse my bad english, I am a french canadian living in Quebec, Canada.