[Cmolinaro]

Younger Patients with multiple myeloma

by Cmolinaro on Sun Jun 23, 2013 10:11 pm

So as we know, multiple myeloma is comsidered to be an older person's disease but many younger people have been diagnosed with multiple myeloma lately. While most patients who are older die because of something unrelated, what is usually the outcome of someone in their 30s? Should they expect to die quite early in life, know that they will have to be on treatment for the next 30 yrs or just go with an allo and hope they are cured?

[dnalex]

Re: Younger Patients with multiple myeloma

by dnalex on Sun Jun 23, 2013 11:57 pm

Here is one article that might be of interest to you. It's 5 years old now, so there are certainly more advances, but the heart of the matter should remain essentially the same, I think.

http://bloodjournal.hematologylibrary.org/content/111/8/4039.full

[LYS2012]

Re: Younger Patients with multiple myeloma

by LYS2012 on Wed Jun 26, 2013 10:44 am

As a yonger person (35) with multiple myeloma just thought I would respond and say I read your post.

I think you have picked out a huge issue that young adults with Cancer struggle wtih, probably more then older adults. And not just for multiple myeloma, but any cancer diagnosis at a young age.

In your 30's you are just beginning to grow into your adult self, just starting your family, your career is hopefully progressing, and then bam. Cancer. We do not have any experience coping with the what if's and it is an everyday struggle for me trying to decide if I should hope that I will live a long full life, but then being realistic about what the multiple myeloma stats say (7-10 years)

no easy answer to this..

[CMolinaro]

Re: Younger Patients with multiple myeloma

by CMolinaro on Thu Jun 27, 2013 4:18 pm

Thanks for the replies but still, I am unsure how to feel. Im not even sure if Ill see 40 at this point.