We are just at the beginning of this disease and it is scaring us to death. It is my husband that has this disease. He just turned 66 and has Medicare A and his company insurance.
My husband's orthopedic doctor, who was at the place that did the MRI and diagnosed multiple myeloma (looks pretty advanced) recommended that we go to a cancer center. It is nationally known. BUT we live 30 minutes from Duke. I am sure we would get more personal care from the care center, but do you believe the best treatment would be from Duke? Money wise, the care center would be much cheaper, but it is not about money
Thanks for y'alls comments. I am dying here.
rosemary , Oxford, NC
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Re: In North Carolina - where to get treatment?
Hello Rosemary,
We're very sorry to hear about your husband's diagnosis. We hope that you find the community here at The Beacon to be a source of both support and helpful information.
There are very well respected multiple myeloma specialists at both Duke and the University of North Carolina - Chapel Hill. For example, Dr. Peter Voorhees is a multiple myeloma specialist at UNC-Chapel Hill, and he regularly assists patients and caregivers here in the forum. You can find a list of his previous forum postings here.
Others here in the forum may have additional recommendations of centers and/or specialists you may wish to consider. Other resources you may find helpful is this list of multiple myeloma treatment centers and this list of internationally recognized multiple myeloma specialists.
If your husband's multiple myeloma already is quite advanced, it is important that he start treatment as soon as possible, regardless of when you might be able to get an appointment with a myeloma specialist. You want to limit any damage the disease can do to your husband's bones and his kidneys. The doctors you are currently seeing can get your husband started on a treatment regimen that should be able to control and counteract his disease while you decide on where you would like to go to be seen by a myeloma specialist.
It is important, however, that you eventually arrange for your husband to see a myeloma specialist. Such a specialist is a doctor who sees almost only multiple myeloma patients, and also typically does research related to the disease. Most, but not all, multiple myeloma specialists are located at major cancer centers such as Duke and UNC-Chapel Hill. They have the experience and knowledge about the latest research to ensure your husband gets the best possible care.
Let us know if we can be of further assistance to you, and please keep us posted on how things are going with your husband.
We're very sorry to hear about your husband's diagnosis. We hope that you find the community here at The Beacon to be a source of both support and helpful information.
There are very well respected multiple myeloma specialists at both Duke and the University of North Carolina - Chapel Hill. For example, Dr. Peter Voorhees is a multiple myeloma specialist at UNC-Chapel Hill, and he regularly assists patients and caregivers here in the forum. You can find a list of his previous forum postings here.
Others here in the forum may have additional recommendations of centers and/or specialists you may wish to consider. Other resources you may find helpful is this list of multiple myeloma treatment centers and this list of internationally recognized multiple myeloma specialists.
If your husband's multiple myeloma already is quite advanced, it is important that he start treatment as soon as possible, regardless of when you might be able to get an appointment with a myeloma specialist. You want to limit any damage the disease can do to your husband's bones and his kidneys. The doctors you are currently seeing can get your husband started on a treatment regimen that should be able to control and counteract his disease while you decide on where you would like to go to be seen by a myeloma specialist.
It is important, however, that you eventually arrange for your husband to see a myeloma specialist. Such a specialist is a doctor who sees almost only multiple myeloma patients, and also typically does research related to the disease. Most, but not all, multiple myeloma specialists are located at major cancer centers such as Duke and UNC-Chapel Hill. They have the experience and knowledge about the latest research to ensure your husband gets the best possible care.
Let us know if we can be of further assistance to you, and please keep us posted on how things are going with your husband.
Re: In North Carolina - where to get treatment?
Rosemary, I am near Oxford myself. I am still in the test result collection phase (I had my bmb today). I know i am SMM and hoping I am not moved in to the multiple myeloma category. I just wanted to say hello since we're "neighbors"
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Timshel - Name: Kelly
- Who do you know with myeloma?: me
- When were you/they diagnosed?: December 2015
- Age at diagnosis: 48
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