Hi, my name is Victor, I have been testing for a month now.
It started with a blood test ordered by my gp. The result was an elavated m protien of 1.1. A full body scan showed numerous leasions, a 24 hour urine test was negative, pet scan was negative. I thought everything was good but I still had ongoing back pain that was new to me so I had a full spinal mri conducted with and without contrast. The mri report indicated lesions on most of the t vertebrea.
I failed to mention I had a BMB on the opposite side of the pain, it too was negative. I am getting ready for another BMB.
Does this sound like multiple myeloma?
Forums
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Re: Where am I at?
Hi Victor,
The traditional criteria for diagnosing someone with multiple myeloma are:
> Clonal plasma cells >10% on bone marrow biopsy or (in any quantity) in a biopsy from other tissues (plasmacytoma)
> A monoclonal protein (paraprotein) in either serum or urine (except in cases of true non-secretory myeloma)
> Evidence of end-organ damage felt related to the plasma cell disorder (related organ or tissue impairment, ROTI, commonly referred to by the acronym "CRAB"):
C. HyperCalcemia (corrected calcium >2.75 mmol/L)
R. Renal insufficiency attributable to myeloma
A. Anemia (hemoglobin <10 g/dL)
B. Bone lesions (lytic lesions or osteoporosis with compression fractures)
You seem to have bone lesions and the presence of a monoclonal protein in your blood test.
However, your bone marrow biopsy didn't show any myeloma cells, and the 24-hour urine test also was negative for an elevated m-protein.
So you don't seem to fulfill the criteria for having multiple myeloma based on the data you have at this point.
Your next bone marrow biopsy will therefore provide important information.
Hopefully, it will be negative for myeloma cells like your first biopsy, and your doctors will figure out that something else that's a lot less serious is causing your bone lesions.
The traditional criteria for diagnosing someone with multiple myeloma are:
> Clonal plasma cells >10% on bone marrow biopsy or (in any quantity) in a biopsy from other tissues (plasmacytoma)
> A monoclonal protein (paraprotein) in either serum or urine (except in cases of true non-secretory myeloma)
> Evidence of end-organ damage felt related to the plasma cell disorder (related organ or tissue impairment, ROTI, commonly referred to by the acronym "CRAB"):
C. HyperCalcemia (corrected calcium >2.75 mmol/L)
R. Renal insufficiency attributable to myeloma
A. Anemia (hemoglobin <10 g/dL)
B. Bone lesions (lytic lesions or osteoporosis with compression fractures)
You seem to have bone lesions and the presence of a monoclonal protein in your blood test.
However, your bone marrow biopsy didn't show any myeloma cells, and the 24-hour urine test also was negative for an elevated m-protein.
So you don't seem to fulfill the criteria for having multiple myeloma based on the data you have at this point.
Your next bone marrow biopsy will therefore provide important information.
Hopefully, it will be negative for myeloma cells like your first biopsy, and your doctors will figure out that something else that's a lot less serious is causing your bone lesions.
-
JimNY
2 posts
• Page 1 of 1
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