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What is your normal platelet count?

by hopeful27 on Tue Aug 18, 2015 8:36 am

I was just curious what is your average platelet count and what treatment are you on? Does it rise and fall with treatment?

Thanks.

hopeful27

Re: What is your normal platelet count?

by Ron Harvot on Tue Aug 18, 2015 4:51 pm

I personally have always had platelet counts in the normal range, usually between 200 and 250. I have been under continuous treatment for 6 1/2 years. Started with Revlimid, Velcade, and dex (RVD) and, for the last 3 years, have been on just Velcade and dex. I started with weekly infusions of Velcade, 10 mg of Revlimid (on 21 days, off 7), and 40 mg of dex a week. Plus I originally re­ceived a monthly infusion of Aredia (pamidronate).

For the last 3 years, I have been receiving a subcutaneous shot of Velcade every two weeks with 8 mg of dex taken the same time as the Velcade. The Aredia I now receive once every 3 months.

I think that you are going to get a variety of answers. Patients' blood counts, including the platelet count, will fall to -0- immediately following an SCT, but build back up over time.

Ron Harvot
Name: Ron Harvot
Who do you know with myeloma?: Myself
When were you/they diagnosed?: Feb 2009
Age at diagnosis: 56

Re: What is your normal platelet count?

by Kaew on Wed Aug 19, 2015 1:53 pm

Hi Hopeful27,

My platelets are usually 60-75 after 1 week off from Revlimid. I''m on maintenance 5 mg, 3 weeks on and 1 week off. I used to be on 10 mg with no off week, but my platelets dropped below 50 quite often, so they dropped the dosage.

Good luck

Kaew

Re: What is your normal platelet count?

by Tracy J on Wed Aug 19, 2015 6:57 pm

A normal platelet count is 150,000 to 350,000. Significant bleeding doesn't truly occur until the platelets go below 50,000. For example, surgeries and procedures (like removing a central line catheter) are delayed until the platelet count is above 50,000. Spontaneous bleeding (like bleeding in the brain for no particular reason) can happen when the platelet count goes below 20,000. That's the level at which most people would get a platelet transfusion.

Tracy J
Name: Tracy Jalbuena
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2014
Age at diagnosis: 42


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