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What causes multiple myeloma?

by nadia33 on Wed Sep 14, 2011 6:19 pm

Recently I heard from a doctor that multiple myeloma is caused by environmental factors. Does anyone have any information on this? Should a patient consider changing their job if they are involved in construction work type of field?

Thanks.



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nadia33

Re: What causes multiple myeloma?

by Dr. Edward Libby on Wed Sep 14, 2011 7:24 pm

1) We do not know what causes multiple myeloma.
2) There is no conclusive evidence that any occupational exposure/job increases the risk of developing multiple myeloma.

Dr. Edward Libby
Name: Edward Libby, M.D.
Beacon Medical Advisor

Re: What causes multiple myeloma?

by Nanette on Mon Sep 19, 2011 1:35 pm

Hi Nadia-

In my husband's case, exposure to Agent Orange while he served in Vietnam was the culprit. The Federal government has accepted total responsibility for this. The VA has been absolutely marvelous to us.

Nanette
Name: Nanette "Deaux"
Who do you know with myeloma?: My dear husband, Dominic
When were you/they diagnosed?: Spring of 2008
Age at diagnosis: 62

Re: What causes multiple myeloma?

by genk on Thu Oct 13, 2011 6:15 pm

I was told that my exposure to petroleum products probably caused mine I was an auto mechanic for 35 years exposed every day to grease and oil. They told me it was the benzene in them.

genk
Name: Ed
Who do you know with myeloma?: myself
When were you/they diagnosed?: August 2011
Age at diagnosis: 61

Re: What causes multiple myeloma?

by suzierose on Mon Oct 17, 2011 5:56 pm

Hi Nanette,

The Agent Orange sounds like association not conclusive evidence.

Unproven, but associated.

You are blessed that our government has chosen to take care of those who serve our country honorably and courageously, without conclusive evidence.

I would hope that they would do nothing less.

Wishing you and your spouse all the best.

suzierose
Name: suzierose
When were you/they diagnosed?: 2 sept 2011

Re: What causes multiple myeloma?

by Nanette on Tue Oct 25, 2011 3:10 pm

Hi Suzie,

Thanks for the kind words.

However, I contend that if the Federal government is assuming responsibility, as well as financial support, Agent Orange has, in fact, been proven to cause multiple myeloma (as well as other diseases).

The VA doesn't throw money around.

Nanette
Name: Nanette "Deaux"
Who do you know with myeloma?: My dear husband, Dominic
When were you/they diagnosed?: Spring of 2008
Age at diagnosis: 62

Re: What causes multiple myeloma?

by Dr. Ken Shain on Wed Oct 26, 2011 8:04 am

It is very nice that the VA includes multiple myeloma as a diagnosis covered in patients exposed to agent orange. And increased risk of multiple myeloma and a list of cancers have been linked to agent orange exposure.

But to echo Dr. Libby's comments from earlier in this posting chain, we really don't know what en­vironmental exposures cause myeloma or if they did in any given individual. Everyone, in­clud­ing physicians, want to know what causes it as then we may be able to address it in terms of pre­venta­tive measures. However, today we do not know. There are certain en­viron­mental exposures that have been linked to increased incidence, including Agent Orange, solvents, significant radiation ex­posure, benzene, petroleum products, and others. More recently an increased incidence of myeloma was noted in younger first responders at Ground Zero (Moline et al, Journal of En­viron­mental Medicine, I believe this was discussed in another posting in more detail). But these are associations without direct evidence of causality.

Regardless, we are all glad that for your case the VA has taken that responsibility and best of luck.

Dr. Ken Shain
Name: Ken Shain, M.D., Ph.D.
Beacon Medical Advisor

Re: What causes multiple myeloma?

by Husker Fan on Wed Oct 26, 2011 2:40 pm

My husband has never been exposed to Agent Orange, but he does have multiple myeloma. So, in some cases, Agent Orange may have caused myeloma, but it's obviously not the only thing that causes it.

Husker Fan

Re: What causes multiple myeloma?

by Stann on Wed Oct 26, 2011 4:18 pm

The problem is when people use the term "proven to cause".

I'm a farmer and the casual observer would say "It's proven that exposure to pesticides etc has caused my multiple myeloma."

I know approximately 200 other farmers. No other farmer I know has multiple myeloma, or any type of blood cancer for that matter. And of those 200 or so farmers, I would put my exposure to farm chemicals in the bottom 10%. So if farm chemicals are proven to cause multiple myeloma, why didn't any other farmer I know come down with multiple myeloma?

My trigger for getting it must be a hair trigger. Maybe pumping gas once a week caused it? Maybe idling in traffic for more than 3 minutes a day? Maybe sitting by campfires caused it? Barbecues? Or my incessant use of cosmetics? (ha!)

Just because the government decides to cover people for multiple myeloma, it doesn't mean much scientifically. I'll bet 99% of our soldiers who were exposed to Agent Orange didn't get multiple myeloma. The lobbying was intense, as it will be from WTC responders. I'm assuming there might be an increased risk from these two events, but if so it is small.

I've read that some multiple myeloma patients are being covered for multiple myeloma treatment who did serve in Vietnam, but were miles away from where Agent Orange was used (stationed in Saigon or even offshore in a destroyer). I'm not sure if that's true, and I don't remember where I read it, but when the government is involved anything is possible.

Just my two cents on a topic that might make me unpopular with others in this forum!

(And yes, I like seeing our veterans given the benefit of the doubt.)

Stann
Name: Stann
Who do you know with myeloma?: Myself
When were you/they diagnosed?: 9/11/09
Age at diagnosis: 46

Re: What causes multiple myeloma?

by Sarah on Mon Oct 31, 2011 1:32 pm

My husband was diagnosed with multiple myeloma in October, 2010. I've seen the following listed as "possible" causes: Pesticides, herbicides, petroleum-based products, or wood dust.

He grew up in the Mississippi Delta, where cotton was king. In the growing season, the planes flew low over the cotton fields, spraying pesticides over the cotton. And, during the harvest season, the planes flew low over the fields, spraying defoliate to kill the leaves. Obviously, these chemicals were also picked up by the breeze and inhaled by many.

We have been told that the largest population of multiple myeloma in Mississippi comes from the Delta. However, we don't know anyone else with multiple myeloma.

After we were married, we moved to Iowa, where he farmed,and once again, he inhaled herbi­cides and pesticides.

Again, we know lots of farmers, but we don't know any with multiple myeloma.

He also had a cabinet shop, where he was covered with wood dust from sanding and the fumes of pain and paint thinner (petroleum based products).

And, we don't know any other cabinet makers or woodworkers with multiple myeloma.

There are many others with multiple myeloma, who have probably had no association with any of the "possible" causes, listed above. Just as my husband was never exposed to Agent Orange.

I've often thought, if the cause could be found, then possibly, so could a cure!

Sarah
Name: Sarah
Who do you know with myeloma?: Husband
When were you/they diagnosed?: October 7, 2010
Age at diagnosis: 72

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