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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Welts & rash (still on Velcade, 5 months since Revlimid)

by Cyesmont on Tue May 08, 2018 9:53 am

My husband has had multiple myeloma for 4 years now. His doctor took him off Revlimid 5 months ago after he had been on it for 3 years. He is still on Velcade injections every other week after being on it a few years already. He has been breaking out with welts and rash throughout his body the last month or so.

His oncology doctor has no answer. Benadryl (diphenhydramine) is not very effective at times.

I'm wondering if what is happening with the welts and rash is due to the Velcade, or if it can be a lingering effect of Revlimid, even months after stopping it.

Any feedback or perspectives on this would be appreciated. Thank you!

Cyesmont

Re: Welts & rash (still on Velcade, 5 months since Revlimid)

by Castaway on Fri May 11, 2018 12:15 am

Hello Cyesmont,

I am also 4 years since diagnosis. I was on 25 mg Revlimid and dexamethasone after my initial diag­nosis. Everything was fine for several months, then the rash started. It covered 60 percent of my body. It never had any itching. Just welts / rash. I was taken off of Revlimid and it took a few weeks to clear up. I was given Revlimid, Velcade, and dexamethasone (RVD) a few months later, but the Revlimid was at 15 Mg. Never had the rash issue again.

Castaway
Name: George
Who do you know with myeloma?: just myself
When were you/they diagnosed?: 1/24/14
Age at diagnosis: 62


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