[greg matthews]

Well not sure what to think they said come back in 6 months.

by greg matthews on Tue Jul 24, 2012 10:22 pm

I feel like i am falling through the cracks. no 24 hour urine collection, no PET, no Biopsy. no spep or upep. so what the hell tells me i am still in remmision. I gues me going off meds made me a black sheep at CTCA. I am thinking about another place to go. God I feel lost

[Christa's Mom]

Re: Well not sure what to think they said come back in 6 mon

by Christa's Mom on Wed Jul 25, 2012 1:00 pm

Hi Greg,

I read back through some of your old posts. You and EJ had your SCT about the same time last year. EJ achieved CR as well. EJs onc. does 24 hour urine, biopsy, skeletal survey once a year, CBCs are done prior to getting zometa, and was checking his m-spike every two months. Now that he is past his year mark, the onc. wants to see him every three months, so his m-spike will be tested then.

Six months between visits seems excessive. Did they give you an explanation as to why so long?

Lyn

[greg matthews]

Re: Well not sure what to think they said come back in 6 mon

by greg matthews on Thu Jul 26, 2012 5:42 pm

I guess because of my LABS

Lab results
Test name value
IgM 86
IgA 85
Kappa/Lam free serum 0.70
Lambda light chain serum 5.65
Kappa Light chain serum 3.97

All with in limits