This week’s poll question is about the types of myeloma and myeloma-related diseases Beacon readers were first diagnosed with.
A few clarifications:
First, this question is open to readers with any myeloma-related disease.
Second, if you are a caregiver or family member of someone with a myeloma-related disease, feel free to answer on their behalf.
Third, some of you may have originally been diagnosed with MGUS or smoldering myeloma and have since progressed. Others of you may have been first diagnosed with multiple myeloma (sometimes called symptomatic myeloma or active myeloma). Please vote for whichever disease you were first diagnosed with.
If you select "Other", please post a comment below to let us know what type of myeloma-related disease you were first diagnosed with.
As always, feel free to post additional thoughts, feedback, or comments in the space below. They can be very useful to other readers.
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Re: Weekly Poll – Type Of Myeloma At Diagnosis
Diagnosed 1/15/10 with Non Secretory Multiple Myeloma age 61
Two stem cell transplants in 2010 Zometa infusion every 3 months
Pet scan every 6 months.
Two stem cell transplants in 2010 Zometa infusion every 3 months
Pet scan every 6 months.
Re: Weekly Poll – Type Of Myeloma At Diagnosis
Initially diagnosed in Jan. 2011 with a plasmacytoma. After a bone marrow biopsy a couple of weeks later the dx was changed to non-secretory multiple myeloma.
Several rounds of chemo and an autologous transplant later I am doing well.
My best wishes and good luck to you all!
Tom
Several rounds of chemo and an autologous transplant later I am doing well.
My best wishes and good luck to you all!
Tom
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Tom184 - Name: Tom
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: January 2011
- Age at diagnosis: 64
Re: Weekly Poll – Type Of Myeloma At Diagnosis
12/2010 - Dx MGUS, Low Risk
1/2012 - Dx SMM, High Risk
1/2012 - Dx SMM, High Risk
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DanaH - Who do you know with myeloma?: Myself, SMM as of 1/2012
- When were you/they diagnosed?: 1/2012
- Age at diagnosis: 54
Re: Weekly Poll – Type Of Myeloma At Diagnosis
Diagnosed w/multiple myeloma in Dec 2011 rec'd two autologous stem cell transplants in 2012 and have been in remission since June 2012, feel good and doing well. Thank you God!
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Mimi
Re: Weekly Poll – Type Of Myeloma At Diagnosis
Was dx with MGUS 2002. It converted to myeloma in 2010. Had auto SCT Nov of 2010. Was drug free until Feb 2012. Now I am on Rev and prednisone. I feel almost normal except for some neurapathy . May be receiving what is called a mini allo transplant. 
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Music meme - Who do you know with myeloma?: Self
- When were you/they diagnosed?: Feb 2010
- Age at diagnosis: 53
Re: Weekly Poll – Type Of Myeloma At Diagnosis
Dx medium risk MGUS April 2011; Dx high risk SMM July 2012. Had been showing abnormal serum protein about 6 months prior to MGUS diagnosis. Primary doc (family practice) missed it; neurologist picked up on it and initiated further testing.
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MissMolly - Who do you know with myeloma?: Self; Grandfather died from multiple myeloma
- When were you/they diagnosed?: April 2011 MGUS; July 2012 SMM
- Age at diagnosis: 49
Re: Weekly Poll – Type Of Myeloma At Diagnosis
Smoldering Light Chain Multiple Myeloma Stage1 - Nov 20, 2012
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