This week’s poll is about how effective your first stem cell transplant was. How long did your myeloma remain in remission? How long was it before your myeloma relapsed / progressed?
A few clarifications:
First, count from the day you had your first stem cell transplant until your myeloma relapsed, such as when your M-spike began to rise.
Second, if you are a caregiver or family member of a myeloma patient who has had a stem cell transplant, feel free to answer on their behalf.
As always, feel free to post comment, thoughts, or feedback in the space below.
The results from this poll show that about half of the respondents are still in remission from their first stem cell transplant. To find out how long these patients have been in remission, keeping in mind that these patients may continue in remission for a while longer, check out the following week's poll: "If you are still in remission after your first stem cell transplant, how long ago was your transplant?"
https://myelomabeacon.org/forum/weekly-poll-remission-after-stem-cell-transplant-t1230.html
Forums
8 posts
• Page 1 of 1
Re: Weekly Poll - Relapse After Stem Cell Transplant
I would be interested in corresponding with the others who had an initial response to their stem cell transplant and relapsed prior to 6 months. My email is rudi48@atcnet.net
I have what my oncologist describes as ultra high risk IgG Kappa multiple myeloma diagnosed 24 May 2011 (age 60) with 80 percent plasma cells in my bone marrow with abnormal cytogenetic 4:14 and 1q21, with no bone lesions nor kidney disease. I was initially treated with Velcade and Revlimid followed by one cycle VDT-PACE. I was able to donate my own stem cells and had an autologous stem cell transplant (ASCT) on 13 Sept 2011, which I responded well too, achieving stringent complete remission on Day 60.
I started Velcade and Revlimid maintenance chemotherapy and RELAPSED on Day 167 with greater than 50 percent plasma cells in my bone marrow and continued abnormal cytogenetics 4:14 and 1q21. Then, went through 2 cycles of VD-PACE (unable to tolerate Thalidomide due to neurologic side effects) and BEAM conditioning prior to my 2nd autologous stem cell transplant on 18 May 2012. On Day 55 following 2nd ASCT, my M-Spike dropped to less than 0.1 and my bone marrow biopsy showed less than 10 percent plasma cells with continued abnormal cytogenetic changes 4:14 and 1q21. Now (5 Aug 2012) waiting for approval of vorinostat and Velcade continuing chemotherapy. jm
I have what my oncologist describes as ultra high risk IgG Kappa multiple myeloma diagnosed 24 May 2011 (age 60) with 80 percent plasma cells in my bone marrow with abnormal cytogenetic 4:14 and 1q21, with no bone lesions nor kidney disease. I was initially treated with Velcade and Revlimid followed by one cycle VDT-PACE. I was able to donate my own stem cells and had an autologous stem cell transplant (ASCT) on 13 Sept 2011, which I responded well too, achieving stringent complete remission on Day 60.
I started Velcade and Revlimid maintenance chemotherapy and RELAPSED on Day 167 with greater than 50 percent plasma cells in my bone marrow and continued abnormal cytogenetics 4:14 and 1q21. Then, went through 2 cycles of VD-PACE (unable to tolerate Thalidomide due to neurologic side effects) and BEAM conditioning prior to my 2nd autologous stem cell transplant on 18 May 2012. On Day 55 following 2nd ASCT, my M-Spike dropped to less than 0.1 and my bone marrow biopsy showed less than 10 percent plasma cells with continued abnormal cytogenetic changes 4:14 and 1q21. Now (5 Aug 2012) waiting for approval of vorinostat and Velcade continuing chemotherapy. jm
-
Judy Malkiewicz - Name: Judy Malkiewicz
- When were you/they diagnosed?: 24 May 2011
- Age at diagnosis: 60
Re: Weekly Poll - Relapse After Stem Cell Transplant
Hi Judy,
I hope that your m-spike and the percent of myeloma cells in your marrow continues to decline.
I also hope you'll share with everyone else here on the forum some of the things you learn through any tips or experiences people email you directly. The sharing of experiences and knowledge is one of the things about this forum that I've found so useful. It's also why I try to share with everyone here whatever I come across that might be helpful or interesting to others.
Good luck with everything,
Ricardo
I hope that your m-spike and the percent of myeloma cells in your marrow continues to decline.
I also hope you'll share with everyone else here on the forum some of the things you learn through any tips or experiences people email you directly. The sharing of experiences and knowledge is one of the things about this forum that I've found so useful. It's also why I try to share with everyone here whatever I come across that might be helpful or interesting to others.
Good luck with everything,
Ricardo
Re: Weekly Poll - Relapse After Stem Cell Transplant
This results of this poll confuse me. The majority of patients have not relapsed yet. But are the majority of respondents recent transplants? It's hard to tell if they had their transplants 3 months ago or 5 years ago. Am I missing something?
-
rumnting - Who do you know with myeloma?: husband
- When were you/they diagnosed?: 4/9/11
- Age at diagnosis: 54
Re: Weekly Poll - Relapse After Stem Cell Transplant
Rumnting - I thought exactly the same as you!
-
Guest
Re: Weekly Poll - Relapse After Stem Cell Transplant
I'm a bit confused also, some folks could be on maintenance where as my husband relapsed after 22 months while taking no meds at all.
-
Kathyhb4
Re: Weekly Poll - Relapse After Stem Cell Transplant
Thanks for the feedback and questions about this poll.
The poll does not provide any information about how long ago these patients had their first stem cell transplant. Some were likely recent, some were likely years ago, and many in between.
We asked a follow-up poll for the half of patients who have not yet relapsed since their first stem cell transplant: If you are still in remission after your first stem cell transplant, how long ago was your transplant?
https://myelomabeacon.org/forum/weekly-poll-remission-after-stem-cell-transplant-t1230.html
Neither poll distinguishes between patients who did and those who did not use maintenance therapy after stem cell transplantation.
The poll does not provide any information about how long ago these patients had their first stem cell transplant. Some were likely recent, some were likely years ago, and many in between.
We asked a follow-up poll for the half of patients who have not yet relapsed since their first stem cell transplant: If you are still in remission after your first stem cell transplant, how long ago was your transplant?
https://myelomabeacon.org/forum/weekly-poll-remission-after-stem-cell-transplant-t1230.html
Neither poll distinguishes between patients who did and those who did not use maintenance therapy after stem cell transplantation.
8 posts
• Page 1 of 1