[Beacon Staff]

Weekly Poll – Multiple Myeloma And Disease Risk

by Beacon Staff on Wed Oct 10, 2012 11:15 am

This week's poll is about multiple myeloma patients’ disease risk.

A few clarifications:

First, this question is only for readers who have been diagnosed with active multiple myeloma. If you are a caregiver or family member of someone who has been diagnosed with myeloma, feel free to answer on their behalf.

Second, if you have been assessed for disease risk (which can be used to make predictions about your likely response to therapy and survival) multiple times during the course of your disease (such as at diagnosis and several months or years later), please answer based on your risk evaluation soon after you were diagnosed with active multiple myeloma. Also, if you have already relapsed or are refractory to treatment, please answer based on the information you were told at your diagnosis, not based on how you have responded to treatment.

Third, most myeloma studies only differentiate between high-risk and standard-risk (not high-risk). If your physician classified you as low-risk or intermediate-risk or anything that is not high-risk, please vote for standard-risk.

As always, feel free to post comments, thoughts, or feedback in the space below. They can be very useful to other readers. For instance, please describe what you have been told about your disease risk. If you have already relapsed or are refractory to treatment, please describe whether your response to treatment aligns with what you were told at your diagnosis.

We are also running similar polls this week for patients diagnosed with:
Smoldering myeloma:
https://myelomabeacon.org/forum/weekly-poll-smoldering-myeloma-and-disease-risk-t1373.html
Monoclonal gammopathy of undetermined significance (MGUS):
https://myelomabeacon.org/forum/weekly-poll-mgus-and-disease-risk-t1372.html

[annrosemary]

Re: Weekly Poll – Multiple Myeloma And Disease Risk

by annrosemary on Wed Oct 10, 2012 3:22 pm

I was told I was at stage 2 so I guess that would be standard.

[Jackie]

Re: Weekly Poll – Multiple Myeloma And Disease Risk

by Jackie on Wed Oct 10, 2012 4:19 pm

Stage 3 for me, back in may now my igg is 640. M protein 1.25. And plasma cell count 0.8. So what stage is that?

[rumnting]

Re: Weekly Poll – Multiple Myeloma And Disease Risk

by rumnting on Sat Oct 13, 2012 7:49 pm

Risk has more to do with chromosomal changes, not stage.