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Re: Weekly Poll - M-Spike At Multiple Myeloma Diagnosis 2014
My husband was diagnosed a year ago with multiple myeloma after surgery for a single myeloma tumor. His spike was at 2.5 and his recently moved to 2.8.
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spouse
Re: Weekly Poll - M-Spike At Multiple Myeloma Diagnosis 2014
Multibilly wrote: "I am stunned that the > 8 category had the most replies. Makes me wonder how many years folks went undiagnosed with multiple myeloma. I was fortunate to have an astute GP that picked up on my SMM by noticing just a small uptick in my globulin level during a routine physical."
I have have multiple myeloma since 2012. I am now sure I would not have wanted to be diagnosed with smoldering myeloma or MGUS. The temptation to treat with treatments that are not benign, the follow up and anxiety that this may generate, would not have been an asset to me. And I know some of you may think or feel otherwise. Just a personal thought.
I have have multiple myeloma since 2012. I am now sure I would not have wanted to be diagnosed with smoldering myeloma or MGUS. The temptation to treat with treatments that are not benign, the follow up and anxiety that this may generate, would not have been an asset to me. And I know some of you may think or feel otherwise. Just a personal thought.
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Nicole R
Re: Weekly Poll - M-Spike At Multiple Myeloma Diagnosis 2014
Nicole: Regarding " I have had multiple myeloma since 2012. I am now sure I would not have wanted to be diagnosed with smoldering myeloma or MGUS. The temptation to treat with treatments that are not benign, the follow up and anxiety that this may generate, would not have been an asset to me. And I know some of you may think or feel otherwise. Just a personal thought."
In my case, I consider it a blessing that I was diagnosed at a fairly early stage. I don't believe that one has to simply "watch and wait", nor opt for early treatment in a trial if one is considered high risk SMM. Those choices would indeed drive me crazy. I believe that through supplementation, diet and exercise that there is the opportunity to hold this thing at bay or at least delay the "CRAB day"....and the longer I can fend it off, the better the drugs will be down the line. It also gives me time to research all my options with a variety of specialists and refine my own philosophy of treatment, should I ever progress. Having that knowledge and being proactive has given me a fair measure of peace.
So, I'm with TAB regarding how he views the SMM situation:
https://myelomabeacon.org/headline/2014/01/16/mohrs-myeloma-musings-from-watch-and-wait-to-uncertain-certainty/
In my case, I consider it a blessing that I was diagnosed at a fairly early stage. I don't believe that one has to simply "watch and wait", nor opt for early treatment in a trial if one is considered high risk SMM. Those choices would indeed drive me crazy. I believe that through supplementation, diet and exercise that there is the opportunity to hold this thing at bay or at least delay the "CRAB day"....and the longer I can fend it off, the better the drugs will be down the line. It also gives me time to research all my options with a variety of specialists and refine my own philosophy of treatment, should I ever progress. Having that knowledge and being proactive has given me a fair measure of peace.
So, I'm with TAB regarding how he views the SMM situation:
https://myelomabeacon.org/headline/2014/01/16/mohrs-myeloma-musings-from-watch-and-wait-to-uncertain-certainty/
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
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