This week’s poll topic is about what your initial myeloma therapy was upon your diagnosis. We are asking a series of these questions, one for each of several different countries.
A few clarifications:
First, this particular poll question is for residents of the UK only. (Other polls for other countries are coming soon!)
Second, please answer this poll only if you have been diagnosed with multiple myeloma within the last two years.
Third, initial therapy is frequently called induction therapy. It does not matter for this question whether you proceeded to have a stem cell transplant after the initial therapy.
Fourth, if you are a caregiver or family member of a myeloma patient, feel free to answer on their behalf.
Fifth, if you received a therapy that is not included in the list above, please use the space below to describe it.
As always, feel free to post comments, thoughts, or feedback in the space below. They can be very useful to other readers.
Forums
Re: Weekly Poll - Initial Myeloma Therapy - UK - 2015
Interesting to see the (relatively) large number of "Other" responses in this poll for the UK. Looking through the options, I wonder if perhaps most of the "Other" cases are cyclophosphamide, thalidomide, and dexamethasone (CTD)?
Re: Weekly Poll - Initial Myeloma Therapy - UK - 2015
I tried to fill in the UK survey form for the initial treatment, but you did not list mine, which was cyclophosphamide, dexamethasone and thalidomide.
I could not find the "space below" in which it was possible to enter the details, but ticked the 'other' box.
I suspect that most of your UK respondents will have been on CDT as I understand that this is
the standard NICE recommended treatment, but that you will receive a variety of other responses, and probably many non-responses, due to the difficulty of finding a space in which to enter the CDT details.
Regards
Richard
I could not find the "space below" in which it was possible to enter the details, but ticked the 'other' box.
I suspect that most of your UK respondents will have been on CDT as I understand that this is
the standard NICE recommended treatment, but that you will receive a variety of other responses, and probably many non-responses, due to the difficulty of finding a space in which to enter the CDT details.
Regards
Richard
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Richard - Name: Richard
- Who do you know with myeloma?: me
- When were you/they diagnosed?: February 2014
- Age at diagnosis: 65
Re: Weekly Poll - Initial Myeloma Therapy - UK - 2015
Thanks for the comments and feedback, Terry and Richard.
In retrospect, we should have included an option for CTD in our list of treatment options for this poll. It is not a regimen that comes up regularly in postings here in the forum, even among participants from the UK. So it wasn't top of mind as we were updating the list of treatment options from the last time the poll was conducted. However, the CTD regimen certainly is common in the UK and therefore should have been included.
We have updated the explanation that accompanies the "Other" option to encourage people to share details of their "Other" treatment regimen as a posting below the survey. I appreciate your letting us know that the text as it was previously worded may have been confusing for some people.
Thanks again,
Boris.
In retrospect, we should have included an option for CTD in our list of treatment options for this poll. It is not a regimen that comes up regularly in postings here in the forum, even among participants from the UK. So it wasn't top of mind as we were updating the list of treatment options from the last time the poll was conducted. However, the CTD regimen certainly is common in the UK and therefore should have been included.
We have updated the explanation that accompanies the "Other" option to encourage people to share details of their "Other" treatment regimen as a posting below the survey. I appreciate your letting us know that the text as it was previously worded may have been confusing for some people.
Thanks again,
Boris.
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Boris Simkovich - Name: Boris Simkovich
Founder
The Myeloma Beacon
Re: Weekly Poll - Initial Myeloma Therapy - UK - 2015
Velcade, doxorubicin, dexamethasone - July 2013
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DamianF
5 posts
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