This week’s poll topic is about what your initial myeloma therapy was upon your diagnosis. We are asking a series of these questions, one for each of several different countries.
A few clarifications:
First, this particular poll question is for residents of the Canada only. (Other polls for other countries are coming soon!)
Second, please answer this poll only if you have been diagnosed with multiple myeloma within the last two years.
Third, initial therapy is frequently called induction therapy. It does not matter for this question whether you proceeded to have a stem cell transplant after the initial therapy.
Fourth, if you are a caregiver or family member of a myeloma patient, feel free to answer on their behalf.
Fifth, if you received a therapy that is not included in the list above, please use the space below to describe it.
As always, feel free to post comments, thoughts, or feedback in the space below. They can be very useful to other readers.
Forums
Re: Weekly Poll - Initial Myeloma Therapy - CANADA - 2015
I was diagnosed with multiple myeloma in early 2010. After radiation and Velcade treatment, I received my first transplant in late December. I was put on thalidomide and dexamethasone treatment. I discontinued dexamethasone two months after.
I felt great and had a lot of energy, especially the days I had dexamethasone. I was now taking just thalidomide for six more months. However I developed a severe neuropathy in my legs and toes. My doctor advised me to stop taking thalidomide. I did not take any other drug for multiple myeloma until my multiple myeloma returned in late 2013. Up to this point, my blood test was done regularly (once a month) and all vital numbers were fine, including total protein, M protein, haemoglobin, etc.
I was administered second transplant in early 2014. The transplant went well, Though I had some complications after the transplant, I was put on 10 mg of Revlimid, which I didn't tolerate well. I was put on 5 mg Revlimid in July 2014. I am continuing with Revlimid therapy. My blood test is good. However I feel week tired and fatigued all day.
I felt great and had a lot of energy, especially the days I had dexamethasone. I was now taking just thalidomide for six more months. However I developed a severe neuropathy in my legs and toes. My doctor advised me to stop taking thalidomide. I did not take any other drug for multiple myeloma until my multiple myeloma returned in late 2013. Up to this point, my blood test was done regularly (once a month) and all vital numbers were fine, including total protein, M protein, haemoglobin, etc.
I was administered second transplant in early 2014. The transplant went well, Though I had some complications after the transplant, I was put on 10 mg of Revlimid, which I didn't tolerate well. I was put on 5 mg Revlimid in July 2014. I am continuing with Revlimid therapy. My blood test is good. However I feel week tired and fatigued all day.
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R Sachdeva
Re: Weekly Poll - Initial Myeloma Therapy - CANADA - 2015
Diagnosed 2012. First line of treatment: Velcade and dexamethasone.
Re: Weekly Poll - Initial Myeloma Therapy - CANADA - 2015
Wife diagnosed with smoldering multiple myeloma, IgA kappa with 17p deletion and hyperploidy. Had MGUS for at least 12 years prior.
Due to cytogenics, CyBorD 4 cycles, pamidronate (Aredia) monthly, tandem autologous stem cell transplant (ASCT) in progress.
Due to cytogenics, CyBorD 4 cycles, pamidronate (Aredia) monthly, tandem autologous stem cell transplant (ASCT) in progress.
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SK1 - Name: SK
- Who do you know with myeloma?: Spouse
- When were you/they diagnosed?: June 2015
- Age at diagnosis: 62
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