[lys2012]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by lys2012 on Tue Oct 14, 2014 11:54 am

After my transplant, I had continuing symptoms such as fatigue, body aches, and neuropathy.

I felt a lump in my neck so my family doc ordered a neck ultrasound. The results did not show any myeloma, but the report questioned if I had hashimoto's thryoiditis because my thyroid appeared enlarged and scarred with scar tissue.

My doctor ordered bloodwork, and it showed very high antibodies and high tsh. I started synthroid. Many of my "chemo" side effects got a lot better.

I told my myeloma doc I was diagnosed with autoimmune thyroid disease, and she said it is a rare diagnosis after so much treatment, but I probably had it before and it was just not diagnosed yet.

[Pjorg45]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by Pjorg45 on Fri Nov 07, 2014 8:57 pm

So I am wondering if the converse it true. THat is if you are synthroid or other hormone supplement is your chance of getting Myeloma high. Is Synthroid a Myeloma carcinogen? I have been on Synthroid for 20 some years and for about five yers before my Myeloma DIagnosis I was on a much too high of a doee that I should have been. I liked the speed and the affect it had on my intellect and memory. Turnes out my doc said enough and forced me to a lower dose which after a month or so seemed to work out for me. SO now I am wondering if the Synthroid had something to do with it. Well then a month ago I was convinced that it was the Acrilimaids from toast and TRiscuits that was the initiating factor. Maybe it is just bad luck.

[Susan RI]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by Susan RI on Mon Nov 10, 2014 9:43 pm

I am replying to this poll since recent changes in the classification of SMM puts me here, with multiple myeloma. What a difference a day makes>> anyway, Hashimoto's thyroiditis preceded my SMM diagnosis by about a year. However, when I looked at my blood tests for the ten years prior to the SMM diagnosis, there was a point where the WBC count dropped below normal and stayed there. I assume therefore,( and got an opinion that it wasn't unreasonable to assume this,) that the process of multiple myeloma had begun quite some time the identification of the disease. Formal identification wise, however, thyroid was first.

[John Kay]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by John Kay on Tue Nov 25, 2014 1:54 am

Why does the right column list current polls; but when I click on one of the current polls, it says that the poll ended four weeks ago?

[Madison]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by Madison on Thu Dec 25, 2014 12:01 pm

Fifth year multiple myeloma. I asked to have thyroid checked cause I had all symptoms of hypo­thyroidism. It was way off but not even mentioned by my doctors or nurses. Course not much of anything is mentioned.

I got stomach cancer third year with multiple myeloma.

Now can't find chemo that will work without tearing up the quarter of stomach I've got left . Haven't had chemo in 3 weeks. Thinking of just stopping all multiple myeloma treatment. Nothings working anyway. Need social worker desperately, but no one will help me get one. I go to Karmanos in Detroit. They don't have very good ones, least haven't been to me.

Any ideas? I've about given up. I'd like to hear from you.
Madison

[StephenL]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by StephenL on Sun Dec 28, 2014 4:58 pm

I was diagnosed with myeloma in January, 2014, and my thyroid was checked at the same time and indicated hypothyroid. Later thyroid antibodies confirmed Hashimoto's. I asked my doctor at MIRT if the two were connected and he said no. I take Naturethroid. It is kinda interesting that about 56% who answered the poll have thyroid issues.

[Randonee13]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by Randonee13 on Tue Jan 13, 2015 12:19 am

Yes -- three to five years before my multiple myeloma diagnosis.

[Laura]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by Laura on Sun Mar 15, 2015 10:22 pm

In 1964. I was in an accident and one of my injuries was contusions of the thyroid. Exactly two years to the date later, I had thyroid surgery due to a toxic goiter. I have been on Synthroid for hypthyroidism ever since, with Cytomel (liothyronine) added to my regimen about twelve years ago. The combination seems to work for me, although dosage has had to be adjusted several times.

In March, 2013 I had a severe increase in my TSH level, which my endocinologist could not explain, and then I was diagnosed with multiple myeloma in April, 2013. I am still in the early stages, and my oncologist started me on dexamethasone in September, 2014. I take it once a week and feel better that day and day after, but then start winding down like a top until my next dose.

I have had a history of calcium deficiency ever since my thyroid surgery due to unavoidable removal of some of my parathyroid glands at that time, due to the size of the goiter. I know my oncologist watches my calcium, as an increase could indicate kidney problems, but lately my level is actually running on the low side, even though I take prescribed calcium supplements (have for years), to avoid tetany, which I had several times right after my thyroid surgery and off and on for a couple of years after.

I also have mild bronchiectasis, and am wondering if this also is connected to multiple myeloma. I was diagnosed with the bronchiectasis about two years prior to my multiple myeloma diagnosis.

[Cheryl T]

Re: Weekly Poll – Hypothyroidism & Multiple Myeloma - 2014

by Cheryl T on Fri Mar 20, 2015 1:01 am

I had thyroid cancer and thyroidectomy in 2004 and was diagnosed with multiple myeloma in 2014. From 2004 until 2015, I have been on a Synthroid dose high enough to keep TSH sup­pressed to about 0.02 to 0.04.