Over the coming weeks or months, The Beacon will be running polls to ask about comorbidities (additional health issues) that affect people with multiple myeloma, smoldering myeloma, and monoclonal gammopathy of undetermined significance (MGUS). Comorbidities are important because they can affect they how patients are monitored or treated and because they can affect survival.
This week’s poll is about heart disease.
A few clarifications:
First, this poll is open to anyone who has been diagnosed with multiple myeloma, smoldering myeloma, or MGUS. If you are a caregiver or family member of a patient, feel free to answer on their behalf.
Second, if you have more than one type of heart disease, please vote for the one that you and your doctors are most concerned about or feel is most important.
As always, feel free to post comments, thoughts, or feedback in the space below. They can be very useful to other readers. In particular, feel free to share when you were diagnosed with heart disease, any additional types of heart disease you may have, and if or how your heart disease affects you myeloma, smoldering myeloma, or MGUS.
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Re: Weekly Poll - Heart Disease
I started have atrial fibrillation at the time of my stem cell transplant. It stopped on its own once I got better but when they put me on Revlimid maintenance about a year after (mind you, I had this as initial therapy with no problems except low blood counts) I again started having heart problems, this time skipping beats. The docs (both the oncologist and cardiac doc) said "no, no, no -- it is not the Revlimid" but I convinced them to stop the drug as it had stopped working and my light chain counts were rising anyway. I was put on a cardiac monitor for a month and two weeks after stopping the Revlimid the arrythmia had stopped. All was well. My heart seems to have become super sensitive to drugs since the stem cell transplant (I am only 54) so now if in the event I must use Revlimid in the future with a combo of something else I will likely have to have a pacemaker put in to counter the effects of the drug. Oh well, we will worry about that bridge when we come to it.
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mowgli18 - Name: Mowgli18
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: March 2011
- Age at diagnosis: 51
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